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Search: Posts Made By: Vicki revised
Forum: Herceptin / Tykerb 01-18-2013, 08:43 PM
Replies: 12
Views: 8,307
Posted By Vicki revised
Re: Start, stop, start, stop

Thanks everyone. Over the holidays I got an acute case of stomatitis (mouth sores) that was even in my throat. I cooked a big meal Christmas which the family enjoyed while I ate the teaspoon of...
Forum: her2group 01-18-2013, 08:10 PM
Replies: 25
Views: 2,914
Posted By Vicki revised
Re: Did you lose or gain weight while on chemo?

I have a high metabolism but while on chemo I gain 10 lbs max due to my carb addiction. Then I lose it. Steroids don't make a difference. Onc encourages me to gain weight in anticipation of times...
Forum: her2group 10-05-2012, 06:48 PM
Replies: 6
Views: 1,294
Posted By Vicki revised
Re: side effects question

I had trigger finger which started several months after starting Herceptin. Crazy name for a stuck thumb.
Forum: Herceptin / Tykerb 10-05-2012, 06:44 PM
Replies: 12
Views: 8,307
Posted By Vicki revised
Question Start, stop, start, stop

This is my X/T routine since we can't get these side effects manageable. Today is day 5 on nothing and the trots are back in full force and my feet are worse. Anyone else have this much difficulty...
Forum: Herceptin / Tykerb 10-05-2012, 06:39 PM
Replies: 6
Views: 9,287
Posted By Vicki revised
Re: Xeloda and Tykerb

I really, really recommend the Bliss gloves and socks from Ulta.
Forum: her2group 10-05-2012, 06:28 PM
Replies: 14
Views: 1,852
Posted By Vicki revised
Re: Praying...

Just read the board so I'm praying for good news for you from your scans, Penny.
Forum: Herceptin / Tykerb 10-03-2012, 11:13 PM
Replies: 6
Views: 9,287
Posted By Vicki revised
Re: Xeloda and Tykerb

Been of and on for a month, 2 attempts. Due to the side effects my dr stopped both twice do I could get control of the intense, constant diarrhea and nausea/vomiting. Also this round I've got the...
Forum: her2group 09-22-2012, 10:57 PM
Replies: 15
Views: 3,140
Posted By Vicki revised
Re: Blurry Vision

Steroids will really mess with your vision, as well as Herceptin.
Forum: her2group 09-22-2012, 10:56 PM
Replies: 30
Views: 3,513
Posted By Vicki revised
Re: HER2 Incidence by Geographical Location

I was unable to check the hormone recep questions. Im ER/PR - andvim in Alabama
Forum: her2group 09-21-2012, 07:05 PM
Replies: 33
Views: 8,851
Posted By Vicki revised
Re: Check the ANNOUNCEMENT on t-dm1 - Plus EAP sites updates

Thanks for the update . I'm anxiously hoping for Atlanta, Birmingham, DC, or Gainesville (Mayo or Shands) since we have family/friends in those areas I could stay with.
Forum: Herceptin / Tykerb 09-16-2012, 05:09 PM
Replies: 4
Views: 4,064
Posted By Vicki revised
Neuropathy in feet

Are paraffin baths ok to use for neuropathy? I knew the answer to this once, can't remember now. LOL
Forum: her2group 09-13-2012, 08:32 PM
Replies: 11
Views: 1,340
Posted By Vicki revised
Re: Scan results

That's great news! As Tim Gunn says, make sure to use accessories wisely!
Forum: her2group 09-05-2012, 06:32 PM
Replies: 59
Views: 13,376
Posted By Vicki revised
Re: Gammaknife, Tykerb...reality check

Denise, Tykerb is fickle. When I took it in the spring I had no side effects. I've been on it over a week now with intense nausea, cramps and sudden intense diarrhea several times day and night. ...
Forum: Herceptin / Tykerb 08-29-2012, 02:38 AM
Replies: 11
Views: 11,457
Posted By Vicki revised
Re: Bad scan--progression to lymph nodes

Thanks for taking time to wish me well. I had a regular appt w/ surgeon today. There are several affected nodes so surgery isnt an option.
Forum: Herceptin / Tykerb 08-24-2012, 06:26 PM
Replies: 11
Views: 11,457
Posted By Vicki revised
Re: Bad scan--progression to lymph nodes

Thanks all. I've recovered from my anxiety. Yes, I plan to pursue TDM1 availability. From what I can tell the nearest trial site is 4 hrs away. Unfortunatly, Alabama doesn't require insurance...
Forum: Herceptin / Tykerb 08-23-2012, 02:33 PM
Replies: 11
Views: 11,457
Posted By Vicki revised
Re: Bad scan--progression to lymph nodes

Thanks everyone. It's impossible for "civilians" to understand the importance of targeted drugs to us with Her2+++ and why I'm taking this so hard. I'm so pissed off at cancer right now. I know it...
Forum: her2group 08-23-2012, 11:35 AM
Replies: 11
Views: 3,064
Posted By Vicki revised
Re: $$ For Stage IV Sisters

Once you are officially disabled you can withdraw funds from an IRA or 401k without paying the early withdrawal penalty ( but it is taxable). I did that on one of my IRAs that wasn't earning much...
Forum: her2group 08-23-2012, 11:24 AM
Replies: 11
Views: 3,064
Posted By Vicki revised
Re: $$ For Stage IV Sisters

I was told by the local office my benefits would start 5 months from the last day I worked but in fact they were retroactive to 5 months from the date of stage 4 dx. Less than 3 wks after I applied...
Forum: Herceptin / Tykerb 08-23-2012, 10:50 AM
Replies: 11
Views: 11,457
Posted By Vicki revised
Unhappy Bad scan--progression to lymph nodes

Just got my pet scan results & the Abraxane and Herceptin aren't working. "marked" progression in liver AND now in lymph nodes around liver and right kidney. And my tumor markers, which normally...
Forum: her2group 08-02-2012, 01:23 PM
Replies: 50
Views: 5,059
Posted By Vicki revised
Re: Good News...Bad News...Okay News

God bless Denise! Your attitude and determination are amazing and inspirational.

Vicki
Forum: her2group 07-25-2012, 08:25 PM
Replies: 81
Views: 12,523
Posted By Vicki revised
Re: Brain Mets &%$#$!! :(

Those mets don't know who they are messing with!
Forum: her2group 07-25-2012, 08:18 PM
Replies: 7
Views: 1,798
Posted By Vicki revised
Re: Can of Worms

I receive SS disability and will be eligible for Medicare in March. Like Sheila I will be able to keep my existIng insurance as the primary with Medicare as secondary. There are many issues and...
Forum: her2group 07-25-2012, 05:43 PM
Replies: 81
Views: 12,523
Posted By Vicki revised
Re: Brain Mets &%$#$!! :(

Denise:

I'm so sorry you are going thru this! It's ok to be sad; you did all you were supposed to, and then some and this enemy of ours does not fight fair. It's time to reload and fight. You...
Forum: her2group 07-06-2012, 10:07 PM
Replies: 21
Views: 3,409
Posted By Vicki revised
Re: Is this aa bad sign?

A couple of years ago, prior to bc, I was on steroids for 2 months due to a severe allergic reaction. I currently get decadron iv 2x/week and have had the same se with and without cancer: weight...
Forum: her2group 07-04-2012, 06:16 PM
Replies: 9
Views: 1,417
Posted By Vicki revised
Re: Taxotere, carboplatin are done...

Congrats on the complete response!! TCH was really rough for me, but so worthwhile-- I too had big success and went from stage 4 with liver mets to NED/remission with it. I can relate to both your...
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