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Forum: Herceptin / Tykerb 08-15-2013, 10:36 PM
Replies: 689
Views: 291,246
Posted By Lani
Re: Please post your two cents on Herceptin "side effects" real or perceived!

RAZm sometimes side effects happen long after a treatment. Then it is hard to attribute it to something you are no longer on.

I am not aware if you were premenopausal prior to the chemo, but one...
Forum: Herceptin / Tykerb 09-21-2009, 06:30 AM
Replies: 689
Views: 291,246
Posted By Lani
Re: Please post your two cents on Herceptin "side effects" real or perceived!

bumping this 3 1/2 year old thread up. It holds quite a wealth of information thanks to the over 440 contributions from her2support members
Forum: Herceptin / Tykerb 07-16-2008, 12:26 PM
Replies: 689
Views: 291,246
Posted By Lani
westwon

Several on the board have noted that asking for the herceptin to be mixed up with normal saline rather than the benzoyl alcohol has helped relieve some of the joint complaints they noted and had...
Forum: Herceptin / Tykerb 10-14-2007, 05:40 PM
Replies: 689
Views: 291,246
Posted By Lani
Kathy S I see you are ER+ and your profile doesn't mention

your currently being on an antihormonal

Just be aware of the ingredients of Vaseline Intensive care lotion --including methylparaben, lecithin (often from soy) and "soy sterol"

If you are on...
Forum: Herceptin / Tykerb 07-17-2007, 09:44 AM
Replies: 689
Views: 291,246
Posted By Lani
Nora

Couldn't access your profile. Are you ER+ are you getting antihormonal therapy, are you postmenopausal, have you had your ovaries out?

The effects of chemo are long term and may have thrown you...
Forum: Herceptin / Tykerb 05-16-2007, 01:05 PM
Replies: 689
Views: 291,246
Posted By Lani
Nora

Have you tried asking to have your oncologic nurse mix up your herceptin with normal saline instead of with the benzyl alcohol-containing vial that comes with it? Several on this board report less...
Forum: Herceptin / Tykerb 09-23-2006, 05:50 AM
Replies: 689
Views: 291,246
Posted By Lani
from what I understand

Herceptin is 99% humanized but there is still 1% of mouse antigens in it. Perhaps you are reacting to the mouse antigens as foreign invaders (which they are!)

At the Genentech stockholders...
Forum: Herceptin / Tykerb 05-10-2006, 08:57 AM
Replies: 689
Views: 291,246
Posted By Lani
Kaye

fascinating story! THE BIG QUESTION IS...which if any (or all) of the symptoms you attributed to herceptin disappeared after stopping herceptin and how long did it take? (and which persisted) ...
Forum: Herceptin / Tykerb 05-09-2006, 11:09 AM
Replies: 689
Views: 291,246
Posted By Lani
Kim, thanks for the reply

how long after the chemo did you do your herceptin? Did the memory issues come on only after Herceptin was started? Thanks, Lani
Forum: Herceptin / Tykerb 05-09-2006, 09:22 AM
Replies: 689
Views: 291,246
Posted By Lani
Thanks so much for sharing that information!

MY HEART TRULY DOES GO OUT TO YOU --Sorry to seem so heartless and uncaring in asking more questions, but, once life settles down we would appreciate if you could give us more information. I know...
Forum: Herceptin / Tykerb 05-09-2006, 08:07 AM
Replies: 689
Views: 291,246
Posted By Lani
Ps

please remember to post whether you are on weekly or every three weeks treatment with Herceptin

THANKS AGAIN,
LANI
Forum: Herceptin / Tykerb 05-09-2006, 08:04 AM
Replies: 689
Views: 291,246
Posted By Lani
Please post your two cents on Herceptin "side effects" real or perceived!

At the Genentech stockholders' meeting (I am not one) they were asked about their post-marketing surveillance and described their's (finding out what problems people were having with their drugs...
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