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Forum: Herceptin / Tykerb 08-04-2011, 02:12 AM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Looks like this new thread
http://her2support.org/vbulletin/showthread.php?p=254302#post254302
(Herceptin and leg and joint pains)
would bridge the gap of the past two months here.
Forum: Herceptin / Tykerb 05-14-2011, 03:38 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Matria,

The molecule of Herceptin is usually considered too big to cross the blood-brain barrier in our brain (that's why 'Tykerb' is often used for brain mets - because its molecure is much...
Forum: Herceptin / Tykerb 03-26-2011, 10:59 AM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Sounds like very 'typical' Herceptin effect. I was having very bad mouth sores and was prescribed a mouth wash that contained maalox, lydocaine, and benedryl (do a 'mouth sore' search on this site...
Forum: Herceptin / Tykerb 02-12-2011, 04:35 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Karen,

I had experienced the 'heavy legs' after getting the booster shots to increase the white blood cell counts during chemo.

My tumor was only tested 5% ER +, but I've been given...
Forum: Herceptin / Tykerb 09-25-2010, 04:55 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

PBK,

Read posting number 511, 512, 514 and 518 on this thread. Looks like several members have experienced the same thing and it stops once the treatment ends.
Forum: Herceptin / Tykerb 09-16-2010, 07:52 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Sorry for what you've been going through.

I had to stop my Herceptin treatment in January, 2008 because of reduced heart function. We did another MUGA after 4, 5 weeks, but the number had further...
Forum: Herceptin / Tykerb 08-04-2010, 04:30 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Kristen,

You are just two years younger than me. I think most of what you've experienced are menopause-related problems. Certainly chemo did not help...

One of the suggestions during...
Forum: Herceptin / Tykerb 12-10-2009, 07:12 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I had quit Herceptin long time ago. During the 18 weeks of TCH, I had to have 'shots' to boost both my red blood cells (once) and white blood cells (twice) I did only 4 weekly Herceptin only...
Forum: Herceptin / Tykerb 12-10-2009, 03:09 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I think one of the side effect of Herceptin is that I am so much tougher now than two years ago. (Psychologically and physically.) The side effect of Herceptin is that I've found so many warriors...
Forum: Herceptin / Tykerb 09-24-2009, 03:15 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

No problem, Maryanne. I was just relaying what I was told during chemo. You are probably right, because later on I needed to use the 'Swich' (licodine, malox, and ?)to treat mouth sores. (Sorry,...
Forum: Herceptin / Tykerb 09-22-2009, 07:48 PM
Replies: 689
Views: 291,619
Posted By Jackie07
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Be sure to gargle with salt + specks of baking soda after every meal and before going to bed.
Forum: Herceptin / Tykerb 02-03-2008, 07:53 PM
Replies: 689
Views: 291,619
Posted By Jackie07
I guess the heart problem is the biggest side...

I guess the heart problem is the biggest side effect.
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