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Search: Posts Made By: Julie2
Forum: her2group 09-03-2011, 05:57 PM
Replies: 3
Views: 2,112
Posted By Julie2
Does radiation makes the tumor not responsive to chemo?

Hi All,

I progressed on Navelbine,Tykerb,TDM1 and Xeloda. I have mets in lungs and a mammary node. I just started Gemzar and also looking into local targeted radiation. The radiation oncologist...
Forum: her2group 08-28-2011, 07:41 PM
Replies: 15
Views: 3,462
Posted By Julie2
Re: Does tdm1 work after herc+Tyk

Tykerb and Herceptin worked for me for 9 months first time then I took Navelbine again and after the progression on Navelbine I took Herceptin and Tykerb for the second time and it kept me stabel for...
Forum: her2group 08-28-2011, 11:46 AM
Replies: 15
Views: 3,462
Posted By Julie2
Re: Does tdm1 work after herc+Tyk

Dear FOB,

TDM1 worked for me for 6 months after I failed on Hercpetin and Tykerb.

Julie
Forum: her2group 08-28-2011, 10:55 AM
Replies: 3
Views: 2,365
Posted By Julie2
cold cap

Anybody tried cold cap while on chemo not to loose the hair? Does it really work to keep the hair?

Thanks,
Julie
Forum: her2group 08-28-2011, 10:52 AM
Replies: 2
Views: 1,976
Posted By Julie2
chemo list

I became stage 4 in 2007. In these 4 years I have progressed on Navelbine,Tykerb,TDM1 and Xeloda.
Is there any chemo left except Gemzar on which I will not loose my hair? It is very depressing with...
Forum: her2group 08-26-2011, 07:09 PM
Replies: 8
Views: 3,561
Posted By Julie2
Re: Anyone on metformin?

Is it OK to use metformin even if you are not diabetic? Is there an easy way to get it without prescription?

Thanks,
Julie
Forum: her2group 08-26-2011, 06:28 PM
Replies: 2
Views: 2,168
Posted By Julie2
Trail at UCSF with Heat shock protien and Taxol

Has anybody participated in the UCSF clinical trial with Heat shock protien and Taxol? What are your idea or experience with this. I have been metastatic since 2007 and I failed Navelbine, TDM1 and...
Forum: her2group 08-25-2011, 08:30 AM
Replies: 2
Views: 2,229
Posted By Julie2
Anybody has experience with internal maamary nodes and how you got it resolved

Hi Everybody,

I have an internalmammary node which appeared suddenly while I was in TDM-1. And it grew so rapidly that it started pressing my sternum. Anybody trated them successfully with non...
Forum: her2group 08-25-2011, 08:25 AM
Replies: 18
Views: 3,774
Posted By Julie2
Re: My News

Hi FOB,

How dod you take care of your internal mammary node? By radiation or chemo? I have one which is pressing the sternum and gre quite rapidly.

Thanks,
JUlie
Forum: her2group 08-21-2011, 07:29 PM
Replies: 6
Views: 2,988
Posted By Julie2
Re: Need a referral to a good cyberknife/radiation oncologist at UCSF

Lani,

Could you give me a good referral at Stanford?

Thanks,
Julie
Forum: her2group 08-20-2011, 07:22 PM
Replies: 18
Views: 3,774
Posted By Julie2
Re: My News

Hi Beans,

Very thrilled to hear about your good scan results. I have the same issue of having multiple small mediastinal and lung nodules. I am tired of using the chemo. My oncologist doesn't...
Forum: her2group 08-20-2011, 07:16 PM
Replies: 6
Views: 2,988
Posted By Julie2
Need a referral to a good cyberknife/radiation oncologist at UCSF

Hi,

One of my internal mammary node is pressing the sternum. My oncologist wants to deal it with chemo but I would like to get it treated with a focal radiation or cyberknife. Can anybody give a...
Forum: her2group 06-15-2011, 08:04 PM
Replies: 14
Views: 3,824
Posted By Julie2
Re: Her2 Serum ?

Hi Kim,

My normal Her2serum reading when I was in remission was 8. After developing mets it is ranging from 10 to 20. The only time I had a false positive (increased by 3 points) was when I took...
Forum: her2group 05-18-2011, 11:30 AM
Replies: 2
Views: 1,630
Posted By Julie2
Re: TDM1 and my recent scan

You are right Chrisy, difference is 3mm and 2mm.Also i had pet/ct scan.
Thanks
Julie
Forum: her2group 05-18-2011, 07:11 AM
Replies: 2
Views: 1,630
Posted By Julie2
TDM1 and my recent scan

Hi All,
I have been on TDM1 since Dec 2010 and I had my second scan recently which showed some progression. It resolved completely the mediastinal nodes but two lung nodules grew in size from 9mm to...
Forum: her2group 05-17-2011, 07:07 PM
Replies: 43
Views: 6,555
Posted By Julie2
Re: Intrathecal Herceptin Is Working!

I am so thrilled Courtney. I am really very, very happy for you.

Julie
Forum: her2group 02-22-2011, 05:34 PM
Replies: 19
Views: 2,003
Posted By Julie2
Re: Prayers for Tabatha

Praying for Tabatha,you and your family.

Julie
Forum: her2group 02-18-2011, 03:14 PM
Replies: 22
Views: 2,379
Posted By Julie2
Re: Phew - glad I only have 2 legs

Hi Pam,

Is there any plan to change from Zometa to Denusumab? Whis you a speedy recovery.

Julie
Forum: her2group 02-15-2011, 04:43 PM
Replies: 30
Views: 4,969
Posted By Julie2
Re: High Dose Tykerb Experiment - wish me luck!

Hi Courtney,

Are you on Tykerb with Herceptin now? Wishing you all the best with your new approach.

-Julie
Forum: her2group 01-14-2011, 02:37 PM
Replies: 9
Views: 2,328
Posted By Julie2
Re: towards a rational tailored approach to who should receive herceptin/lapatinib/bo

I am just wondering why for some people the comibination of Herceptin and Lapatinib is not that effective.

-Julie
Forum: her2group 01-05-2011, 02:57 PM
Replies: 2
Views: 1,626
Posted By Julie2
Re: Tubal Ligation

I had tubal ligation after chemo. It was not a problem at all when compared to the mastectomy. I came back to full functionality within 3 to 4 days.

-Julie
Forum: her2group 01-05-2011, 02:51 PM
Replies: 23
Views: 2,327
Posted By Julie2
Re: Mom fell and now in rehab

Steph,

Sorry to hear about your mom's fall. I wish her a very speedy recovery.

-Julie
Forum: her2group 12-20-2010, 06:46 PM
Replies: 58
Views: 4,247
Posted By Julie2
Re: new development surgery on Saturday

Pam,

Sending you hugs and best wishes.

Julie
Forum: her2group 12-20-2010, 02:56 PM
Replies: 17
Views: 1,753
Posted By Julie2
Re: Anybody did University of Washington adoptive T cell therapy?

Hi Steph,

I took vaccine from UW 4 years ago. I didn't develop mesurable immune response at that time. Recently I participated in just the adoptive T cell therapy trial without the vaccine. This...
Forum: her2group 12-18-2010, 05:22 PM
Replies: 4
Views: 1,448
Posted By Julie2
TDM1 and lymphocytes( T cells)

Hi ,

I know this is highly technical but anybody know if TDM1 damages the lymhocytes or T cells. I know it lowers platelets.

Thanks,
Julie
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