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Search: Posts Made By: cathy34
Forum: her2group 12-06-2006, 10:22 AM
Replies: 27
Views: 3,023
Posted By cathy34
Congratulations MaryAnne~

This is wonderful news.
Forum: her2group 12-05-2006, 10:35 AM
Replies: 8
Views: 1,424
Posted By cathy34
Smile Cathy, I feel your pain .... literally

It must be our name! I too have had cellulitus attacks ... 2 so far. They are HORRIBLE. About a year ago, I woke up in the middle of the night with horrible pain in my right arm.. It felt like I was...
Forum: her2group 12-05-2006, 10:29 AM
Replies: 22
Views: 2,709
Posted By cathy34
Smile My onc. prefers an ECHO over a MUGA

Hi,
Initially when all this started I got MUGA's and they were too much of a hassel. I had really small, rolling veins and I used to leave there looking like a pin cushion.
I told my onc. and she...
Forum: her2group 12-05-2006, 10:20 AM
Replies: 0
Views: 779
Posted By cathy34
Smile Shell...to answer your questions about Avastin

Well, I was on Avastin about 1 year ago. I tolerated it very well. I took it with Herceptin. However, my Dr. stopped it because my lung mets grew slightly in size. When I start a new med, my onc....
Forum: her2group 12-05-2006, 10:12 AM
Replies: 6
Views: 2,093
Posted By cathy34
Smile Biotene

The chemo nurses where I go tell me to use Biotene. It's great. However, I've had really - really bad mouth sores and the Biotene doesn't make them go away. Only a reduction in meds will do that. ...
Forum: her2group 12-05-2006, 09:59 AM
Replies: 8
Views: 1,609
Posted By cathy34
Thanks to all of you for responding ~

Hi,
My onc. had to refer me to another onc. who is conducting the trial in this area. I live on Long Island, New York. I was on Xeloda in July 2005. It didn't work for me alone but I am hoping...
Forum: her2group 11-29-2006, 10:24 AM
Replies: 8
Views: 1,609
Posted By cathy34
Smile Any input on the Tykerb trial is greatly appreciated

Hi to all,
It's been a while since I've posted. My onc. is submitting my paperwork to get into the Tykerb trial. We were waiting for the results from my echo to make sure my EF was greater than 50%...
Forum: her2group 07-11-2006, 08:52 AM
Replies: 6
Views: 1,516
Posted By cathy34
That's just horrible!

The thought just makes me want to cry for these little girls!
Forum: her2group 07-11-2006, 07:28 AM
Replies: 9
Views: 2,149
Posted By cathy34
I started w/herceptin once every

3 weeks for 90 mins. Only took tylenol. Then recently I was getting the herceptin once a week for 30 mins also with tylenol. Since I'm scheduled to start Doxil on an every 3 week cycle again, I'm...
Forum: her2group 07-11-2006, 07:20 AM
Replies: 8
Views: 1,401
Posted By cathy34
Smile Great reports! Keep em coming!

From what you wrote your cancer seems to be of the aggressive nature but who's to tell. The only thing I would be cautious about is any Dr. telling me that my cancer would never come back. How do...
Forum: her2group 07-11-2006, 07:10 AM
Replies: 9
sad
Views: 1,612
Posted By cathy34
Smile Sorry that you feel sad...I get that way and then

get past it, get right back in the saddle and keep going. You have to only have positive thoughts. I'm the Cathy that Shell wrote to you saying I was looking for info on Doxil. It didn't work for...
Forum: her2group 07-11-2006, 06:55 AM
Replies: 8
Views: 1,778
Posted By cathy34
Smile Thanks for your responses...I'm allergic to ALL taxanes

I only had one round on Taxol when I started the A/C/T regimin about 2 year ago. I tolerated the first round of Taxol ok. Then came time for the 2nd round and my body just didn't like it! My heart...
Forum: her2group 07-10-2006, 01:24 PM
Replies: 8
Views: 1,778
Posted By cathy34
No-one ever taken Doxil? that

makes me nervous!
Forum: her2group 07-10-2006, 12:51 PM
Replies: 5
Views: 1,282
Posted By cathy34
Yes, thanks for a great site

I feel alot more empowered with knowledge because of this site.
Forum: her2group 07-10-2006, 12:18 PM
Replies: 8
Views: 1,684
Posted By cathy34
Smile mkrny - where on LI are you?

I too am located on Long Island. I go to Dr. Lora Weisleberg at the Monter Cancer Center (used to be at North Shore University Hosp in Manhasset). I don't think they have any ESP for Tykerb at there...
Forum: her2group 07-10-2006, 07:57 AM
Replies: 33
Views: 2,843
Posted By cathy34
Smile Wonderful!!!!!!!!!!!!!!!!!

Great news.
-Cathy34
Forum: her2group 07-10-2006, 07:28 AM
Replies: 8
Views: 1,778
Posted By cathy34
Smile Doxil w/herceptin. Anyone on this combo or taken this combo?

Hi,
I got the results from my chest CT on Friday. I have lung mets and I found out that I have NO new nodules which is good but of the 6 nodules that I do have 4 slightly grew and 2 remained the...
Forum: her2group 07-06-2006, 09:16 AM
Replies: 21
Views: 3,346
Posted By cathy34
Smile I was Dx 8 months after my 3rd child also

I know going into the PG there was no lump in my right breast. I thought it was a clogged milk duct. I gave birth to my daughter in Aug 2003 and was Dx in April 04, about 3 months after I stopped...
Forum: her2group 06-19-2006, 09:31 AM
Replies: 3
Views: 1,349
Posted By cathy34
Smile Mine are contained to one site

I have lung mets and they are contained to one spot since 2004.
I've been on alot of different meds but Navelbine and Herceptin are working the best.
Only Positive thoughts ++++++++++++++
Cathy34
Forum: her2group 06-19-2006, 09:23 AM
Replies: 20
Views: 3,513
Posted By cathy34
Wink Try "Roarin Waters" by Capri Suns

you can find them by the juice boxes in the supermarket. They're new. I bought them for my kids instead of regular Capri Sun drinks - too much sugar and calories for the kids - but they really like...
Forum: her2group 06-12-2006, 08:45 AM
Replies: 20
Views: 2,933
Posted By cathy34
Smile I spoke w/my Onc. on Friday the 9th about Tykerb

Hi to all,
I spoke with my onc on Friday about the Tykerb drug. She is very excited about it and what it is doing. Right now, I'm in a wait and see phase. I am on Navelbine w/Herceptin combo that as...
Forum: her2group 06-12-2006, 08:24 AM
Replies: 53
Views: 8,487
Posted By cathy34
Smile Survey

I was diagnosed at 36. 8 months after I gave birth to my 3rd child.
Cathy34
Forum: her2group 06-06-2006, 08:47 AM
Replies: 14
Views: 2,106
Posted By cathy34
Shell- that's great

now you're on the Tyberk? Any side effects? I was on Xeloda alone last summer and it did nothing for me. All the nodules in my lungs grew. I think I took it for 12 weeks and my Dr did another CT of...
Forum: her2group 06-05-2006, 01:03 PM
Replies: 14
Views: 2,106
Posted By cathy34
We need to take small steps

Sherryg - I too would like something more...a cure would be great! This is great for those who's cancer didn't respond to herceptin alone or can't take it because their ejection fraction had...
Forum: her2group 06-05-2006, 06:57 AM
Replies: 14
Views: 2,106
Posted By cathy34
Glaxo's experimental drug slows breast cancer spread by half - Jun. 3, 2006

This is very exciting news! I don't really post here but I read alot. I have HER2 + BC that spread to my lungs. I am currently taking Navelbine with herceptin and for the first time in 2 years the...
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