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Forum: her2group 06-07-2019, 05:45 PM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Hi all
As a matter of update we had scans back in March to check results of the gamma knife , which ended being done on two spots with the second being precautionary as the neuron oncologist not...
Forum: her2group 02-19-2019, 06:51 AM
Replies: 16
Views: 2,569
Posted By Benk
Re: 7 years stage IV

Hey pam that’s great to hear keep celebrating those milestones .
Forum: her2group 02-19-2019, 06:41 AM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Hi all
Sorry I have not posted to your responses in a little while
We had the gamma knife done back on 7th of January and the biggest
Side effect apart from her face swelling from the frame was...
Forum: her2group 12-20-2018, 08:18 PM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Thanks Pam
Forum: her2group 12-20-2018, 02:50 AM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Hi
Update on my wife So mri confirms 1 brain met at 10mm x 18mm
Gamma knife booked for the the 7th of January
My wife seems even more tired than usual not sure why?
Forum: her2group 12-13-2018, 06:16 AM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Thanks Tricia
Ariana I have discovered through both this site and the recent discussions with oncologist and radio onc that a ct or other tests are not as clear a “ picture “ as an mri so as...
Forum: her2group 12-09-2018, 02:01 AM
Replies: 17
Views: 5,100
Posted By Benk
Re: Brain met ??? Anyone have advice

Hi Donna and Pam
Thanks for your thoughts and prayers
I am hoping it’s euther not cancer ( although the oncologists are confident it is )
And or it’s only one spot.
I have searched...
Forum: her2group 12-07-2018, 03:34 AM
Replies: 17
Views: 5,100
Posted By Benk
Brain met ??? Anyone have advice

Hi all
I have not need to post for a while we have been doing so well for my wife from stage iv at diagnosis inApril 2016 to NED last June 2018. Then scans last week showed “possible” brain met. Now...
Forum: her2group 05-29-2017, 11:29 PM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Hi all just a quick update we had scans around Easter just past and they are encouraging at this stage their is no progression or new metastasis areas , bones still showing signs of healing and lungs...
Forum: her2group 03-03-2017, 03:26 AM
Replies: 71
Views: 22,262
Posted By Benk
Re: Back Pain

Hi Tiffany my wife suffers lower back pain usually at night which makes it difficult to sleep and in the morning once she gets moving it seems to get better , she was diagnosed with mets to lower...
Forum: her2group 03-03-2017, 03:17 AM
Replies: 4
Views: 4,430
Posted By Benk
Re: Is late afternoon and evening tiredness a side effect ?

Thanks all for the advice we do have an apointment next week so we will mention it as suggested.
Forum: her2group 02-23-2017, 04:19 AM
Replies: 4
Views: 4,430
Posted By Benk
Is late afternoon and evening tiredness a side effect ?

Hi all just wondering if late afternoon and evening tiredness can be a side effect of all the drugs including H&p ?
My wife seems tired lately in a similar way to right before diagnosis last year...
Forum: her2group 01-19-2017, 12:49 PM
Replies: 15
Views: 4,543
Posted By Benk
Re: Update on My Lungs, Part Two

Yes tiffanys it was "good news" but as all of you know it's 2 steps forward 1 step back as my wife is currently in hospital on an Iv of antibiotics after a sudden overnight attack of cellulitis in...
Forum: her2group 01-19-2017, 06:01 AM
Replies: 15
Views: 4,543
Posted By Benk
Re: Update on My Lungs, Part Two

At this stage no steroids as onc doesn't feel it's at a stage requiring treatment as the steroids can be hard on your heart they want to avoid that as long as possible considering the effects...
Forum: her2group 01-19-2017, 01:16 AM
Replies: 15
Views: 4,543
Posted By Benk
Re: Update on My Lungs, Part Two

Hi Amy I haven't updated my wife's situation in a little while but we had scans at the 3 month mark after chemo and the pet showed activity in the lungs had increased along with some chest nodes....
Forum: her2group 11-28-2016, 04:12 AM
Replies: 2
Views: 3,804
Posted By Benk
Re: Good response to treatment no mastectomy

Hi mtngrl
Thanks for that info once again you have been a great help to me ,that now makes sense you have filled in the blanks that the oncologist didn't elaborate on.
We are in Australia but it...
Forum: her2group 11-21-2016, 05:40 AM
Replies: 2
Views: 3,804
Posted By Benk
Good response to treatment no mastectomy

Just wondering if anybody has any advice or the same experience , my wife has her2 positive which has metastasis she has had great response to her treatments with the recent scans showing no "sign"...
Forum: her2group 11-06-2016, 04:14 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Thanks to all of you for the support and well wishes, I'm hoping the response is a sign of the future!!
I'm always thinking of all of you and the support through this forum has meant a lot.
❤️
Forum: her2group 11-03-2016, 04:33 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Hi all sorry I haven't updated for a little while just thought I would fill you all in on we're we are at.
We have finished chemo about a month and a half ago with resulting pet ct scans showing...
Forum: her2group 09-12-2016, 04:39 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Hi cereisez thankyou for posting , yes I do still come to this blog often. Thankyou also for your words of encouragement it means a great deal when I hear from all if you amazing lady's on here in...
Forum: her2group 07-22-2016, 04:07 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Thank you all for the hugs and best wishes and the same back to you.
Pam she is handling them well good days and bad you know how it goes.
Colleen I haven't the chance to look up " complete...
Forum: her2group 07-19-2016, 05:12 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Hi all just wanted to update you we are having 4th chemo session tommorow the ct scans just done after 3rd session showed reduction in lung Mets and bones healing so currently on the right track (...
Forum: her2group 06-02-2016, 03:07 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Hi Pam
Thanks for your post , we are marching towards next chemo appointment Wednesday next week, it certainly makes me feel better about the situation when I read the responses of the incredible...
Forum: her2group 06-01-2016, 02:50 PM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Thanks Colleen that's what I was hoping, my wife's strength like yours is amazing I keep having weak moments but responses like yours give me a huge lift thank you.
Forum: her2group 06-01-2016, 07:23 AM
Replies: 45
Views: 26,527
Posted By Benk
Re: Looking for hope

Thanks Ariana the tinkling started whist still hooked up to iv,
I'm a bit concerned a out the metastasis areas.
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