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Search: Posts Made By: Darlene Denise
Forum: her2group 03-22-2011, 11:08 AM
Replies: 22
Views: 3,035
Posted By Darlene Denise
Re: Brenda and Denver?

Brenda! Whoop Whoop!!!!!! Way to score a good ticker number! Glad to hear you are Denver bound and becoming another TDM-1 member on Friday. Looking forward to hearing all the details.

Have a...
Forum: her2group 03-22-2011, 07:19 AM
Replies: 5
Views: 1,824
Posted By Darlene Denise
Re: Need help for necrosis of the brain from WBR

Joyce: Any surgical options? Inquire about Hyperbaric Therapy.

Darlene
Forum: her2group 03-20-2011, 08:26 AM
Replies: 22
Views: 3,035
Posted By Darlene Denise
Re: Brenda and Denver?

Whew! I am having a hard time keeping up with our medical and trial schedules. Thought I was off study due to low platelets. I did not get TDM1 on Feb 23 as scheduled (a wasted trip). I was getting...
Forum: her2group 03-19-2011, 07:37 AM
Replies: 22
Views: 3,035
Posted By Darlene Denise
Brenda and Denver?

Just having some coffee, doing some donuts and wondering if our friend, Brenda was able to start TDM1 on Friday as planned? Hoping all is going well.

Darlene
Forum: her2group 03-18-2011, 07:45 AM
Replies: 26
Views: 2,976
Posted By Darlene Denise
Re: dizzy and scared

Hopeful, I do have brain mets, however, before they were dx I experienced sudden bouts of positional vertigo. It was determined that it was caused by vestibular damage. I have a slight loss of...
Forum: her2group 03-04-2011, 04:01 PM
Replies: 81
Views: 10,312
Posted By Darlene Denise
Re: Just a quick update...

Brenda:
Damn it! If it's not this, it's that! That's how cancer likes to roll. I hate this setback for you after having so much invested in getting into the TDM1 trial.

I will keep a vigil of...
Forum: her2group 03-04-2011, 03:44 PM
Replies: 12
Views: 2,060
Posted By Darlene Denise
Re: sudden allergy to herceptin????

I had to do Benedryl with mine when I changed from weekly doses to three week dosing. Did it for a few months and then was able to eliminate the Benedryl. Maybe a change in dosing schedule might...
Forum: her2group 02-21-2011, 04:13 PM
Replies: 14
Views: 2,784
Posted By Darlene Denise
Re: Severe Symptoms: Brain Mets & Decadron

Sorry for what your Mom is going through. These are very concerning symptoms. I would request a spinal fluid tap ASAP. Your mom needs immediate intervention and should not have to feel this type of...
Forum: her2group 02-12-2011, 08:49 AM
Replies: 20
Views: 5,872
Posted By Darlene Denise
Re: Cyberknife for liver mets?

I have had brain mets treated with Cyberknife and have consulted about my liver. Although Cyberknife can treat some liver lesions, I'm not a fan of using radiation on the liver. I would lean...
Forum: her2group 02-04-2011, 12:51 PM
Replies: 4
Views: 1,499
Posted By Darlene Denise
Re: CyberKnife Help

Angela: I have had Cyberknife at UNC in Chappel Hill. I had 8 treated in 09/08 and three more in 06/09. Cyberknife is focalized, laser guided radiation and does minimal damage to surrounding...
Forum: her2group 01-01-2011, 09:35 AM
Replies: 70
Views: 10,629
Posted By Darlene Denise
Re: Help! Brain mets besides lung mets

Courtney is treated by Dr Penny Sneed at USFC. Dr Sneed is from Stanford and is very aggressive using focalized treatment.

I have had 11 lesions treated with Cyberknife. The first "batch" was 8...
Forum: her2group 10-29-2010, 06:02 PM
Replies: 12
Views: 2,048
Posted By Darlene Denise
Re: long run with TDM1 is over

Kim: I love the Cyberknife, but not a fan of it's use in the liver. Lesion total volume has to be less than 6 cm. Primary reason, is the liver does not regenerate from radiation. I have consulted...
Forum: her2group 10-14-2010, 02:10 PM
Replies: 6
Views: 1,677
Posted By Darlene Denise
Re: SRS instead of WBR as initial treatment for bc brain mets, even when not solitary

Good to see this type of info FINALLY making it's way to women who often times aren't offered anything other than WBR by their community medical resources.

I'm right behind you Brenda on this...
Forum: her2group 10-14-2010, 07:13 AM
Replies: 19
Views: 1,277
Posted By Darlene Denise
Re: hucklebuck's birthday

From your fellow Libra Cyber Friend and soon to be TDM1 Buddy,

Happy Birthday Brenda!!!

Darlene
Forum: her2group 10-11-2010, 01:41 PM
Replies: 33
Views: 3,290
Posted By Darlene Denise
Re: Courtney, how are you?

Hey, you incredible shrinking woman!! YEAH & WOO HOO!!! on this incredible news.

I be so happy for you!!!!

Stay strong....Darlene
Forum: her2group 10-04-2010, 06:26 AM
Replies: 4
Views: 1,408
Posted By Darlene Denise
Re: COBRA running out--what's next?

There is an 11 month extension available if you are on SSDI. There are some specific time lines that must be followed in regard to notification of the plan administrator.

Also check with them...
Forum: her2group 10-01-2010, 11:49 AM
Replies: 6
Views: 2,572
Posted By Darlene Denise
Tdm1 expanded access protocol closing

I just read an announcement from Genetech that ONLY the Expanded Access Protocol will close on 10/31/10. Those currently enrolled and those enrolled by 10/31 will be continued in the program. The...
Forum: her2group 09-30-2010, 09:28 AM
Replies: 48
Views: 4,251
Posted By Darlene Denise
Re: I'm in the tdm-1 eap!!!!!!

Shelia: Welcome to the TDM1 club!!! Hope we get outstanding results for a loooooooooooooong time!!!

Congrats.......Darlene
Forum: her2group 09-28-2010, 08:29 AM
Replies: 38
Views: 3,476
Posted By Darlene Denise
Re: Keep Me in your Prayers

Sweet Shelia: May the TDM1 Gods smile on you! I hope things line up in your favor on this. I just started TDM1 on the 8th and go for my second infusion tomorrow. A blessing indeed that it is...
Forum: her2group 09-12-2010, 08:28 AM
Replies: 33
Views: 3,849
Posted By Darlene Denise
Re: brain mets have arrived

Jackie: This is just really shitty news. A complication that you didn't need or deserve!! I will remain hopeful you can attack the bastards with Gamma or Cyberknife. Keep us informed and we will...
Forum: Herceptin / Tykerb 09-11-2010, 10:58 AM
Replies: 31
Views: 12,213
Posted By Darlene Denise
Re: Watery eyes and red eyelids-Herceptin?

I'm not so sure it's the Herceptin causing the eye/nose thingy. I think it is a type of allergic reaction to the higher dose. Happens to me too. I take a children's dose of Benedryl or Alevert so it...
Forum: her2group 09-05-2010, 04:55 PM
Replies: 82
Views: 17,661
Posted By Darlene Denise
Re: What can we do about the delay of TDM-1

Lilly Tartikoff lives in Beverly Hills. Could our Dear Flori get us any scoop about how to reach her?
Forum: her2group 09-05-2010, 04:11 PM
Replies: 82
Views: 17,661
Posted By Darlene Denise
Re: What can we do about the delay of TDM-1

Anyone have an in with Lilly Tartikoff? She is friends with Dr Slamon, helped him raise money with Revlon for Herceptin and has partnered with Catie Coruic (there is our news connection) on cancer...
Forum: her2group 08-29-2010, 07:51 PM
Replies: 14
Views: 2,352
Posted By Darlene Denise
Re: New Mets to brain/WBR

Patricia: It might be that you need an additional onc to consult and advise with your local onc. Find one at a facility that does a lot of clinical trials for bc brain mets. You need someone who...
Forum: her2group 08-29-2010, 05:10 PM
Replies: 14
Views: 2,352
Posted By Darlene Denise
Re: New Mets to brain/WBR

Patricia: I think your onc is out of date on this issue. Go to an NCI facility for an opinion on this.

Good luck!
Showing results 1 to 25 of 145

 
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