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Search: Posts Made By: Belinda
Forum: Herceptin / Tykerb 10-24-2014, 04:35 AM
Replies: 21
Views: 10,729
Posted By Belinda
Re: Severe breathlessness - heart/herc. or lungs?

Sorry to take so long to reply back. Well, having tried abraxane again with little success, we finally decided to go down the tdm1 route. My mets kept trying to close my airways, so far thi year...
Forum: her2group 08-22-2014, 10:53 PM
Replies: 11
Views: 1,845
Posted By Belinda
Re: Pls help Aussies get TDM1 Kadcyla

Thank you all so much.bxxxxxx
Forum: her2group 08-21-2014, 08:06 PM
Replies: 11
Views: 1,845
Posted By Belinda
Pls help Aussies get TDM1 Kadcyla

We Aussie Her2 women need your help. TDM1 -Kadcyla- is only available to us if ws pay in full, abt $170,000, or through Roche's compassionate access program. This means paying an average of abt...
Forum: Herceptin / Tykerb 08-16-2014, 02:21 AM
Replies: 21
Views: 10,729
Posted By Belinda
Re: Severe breathlessness - heart/herc. or lungs?

Hello wonderful women. I am so sorrynot to have logged in and posted an update. It's been a challenging few months. The collapsed lung in May had me in hospital for a week, then home with O2,...
Forum: Herceptin / Tykerb 05-05-2014, 07:16 AM
Replies: 21
Views: 10,729
Posted By Belinda
Re: Severe breathlessness - heart/herc. or lungs?

Update...I had my onc appointment today, and was scheduled for Herc and Carboplatin. They took one look at me and hooked up every available measuring device...O2, pulse, bp, ecg, ...the curtains were...
Forum: Herceptin / Tykerb 05-04-2014, 03:19 PM
Replies: 21
Views: 10,729
Posted By Belinda
Re: Severe breathlessness - heart/herc. or lungs?

Thanks Cat for your response. I only have very basic meditation skills - which helped I think when hubby (Mike) was with me, just focussing on his calm, regular breathing helped. I have been thinking...
Forum: Herceptin / Tykerb 05-04-2014, 07:28 AM
Replies: 21
Views: 10,729
Posted By Belinda
Severe breathlessness - heart/herc. or lungs?

Hi

I haven't posted for ages - but do check in and lurk a bit. Thanks so much for all the info I have gleaned from this site when I have needed it.

This time I have a direct issue that I am...
Forum: Keeping Your Mind Off of BC 12-20-2012, 10:04 PM
Replies: 2,096
Views: 164,444
Posted By Belinda
Re: SCRABBLE anyone?

basking....masking
Forum: her2group 01-05-2009, 01:29 PM
Replies: 4
Views: 833
Posted By Belinda
Wow Lani - thank you - this is very exciting news...

Wow Lani - thank you - this is very exciting news - Bx
Forum: her2group 01-03-2009, 09:14 PM
Replies: 49
Views: 2,342
Posted By Belinda
Such wondeful news! I am so pleased for you and...

Such wondeful news! I am so pleased for you and your family! BX
Forum: her2group 10-17-2008, 02:20 PM
Replies: 17
Views: 1,897
Posted By Belinda
Lani - thank you

For being our eyes and ears and diligently going where some of would be totally lost, and bringing us your regular - and wonderful - dispaches from the frontiers of science. This news is exciting, it...
Forum: her2group 06-22-2008, 06:54 AM
Replies: 7
Views: 4,669
Posted By Belinda
Sad News-Jane McGrath

Jane McGrath was well known here in Australia, especially to Australian women with BC. She was an extraordinary young English woman who fell in love with and married an Australian Cricket legend,...
Forum: her2group 06-17-2008, 04:34 AM
Replies: 110
Views: 8,426
Posted By Belinda
Oh, this is too too sad. To Lolly's family - my...

Oh, this is too too sad. To Lolly's family - my condolences. I haven't logged in for a long time but when I have been here Lolly has been such a gentle, wise and generous soul...like others, I didn't...
Forum: her2group 05-17-2008, 02:34 PM
Replies: 2
Views: 680
Posted By Belinda
Hmmm...thanks Lani for your vigilance...this is...

Hmmm...thanks Lani for your vigilance...this is disturbing news....lets hope that the follow-up studies find that this is not as much of a problem as it might first seem...B
Forum: her2group 05-17-2008, 04:03 AM
Replies: 8
Views: 861
Posted By Belinda
Lump

Hi there

About 6 months ago I felt a lump a little above my scar, on my chest wall, about half the size of a pea. My onc said "see the surgeon - could be a small tumour nodule" and surgeon said...
Forum: her2group 03-15-2008, 07:25 PM
Replies: 44
Views: 2,271
Posted By Belinda
Lolly - my thoughts and best wishes are with you....

Lolly - my thoughts and best wishes are with you. Lets hope those big guns do the job for you. Belindaxxx
Forum: her2group 03-15-2008, 02:09 PM
Replies: 1
Views: 821
Posted By Belinda
Thanks Lani - I have been looking for friendly...

Thanks Lani - I have been looking for friendly information on this - this is a very very exciting breakthrough indeed. Bx
Forum: her2group 01-25-2008, 07:51 PM
Replies: 19
Views: 1,383
Posted By Belinda
Thumbs up Congratulations FOB!

I am so so pleased for you - let this thie the first of a long lifetime of clear scans - Bx
Forum: her2group 01-14-2008, 05:50 AM
Replies: 55
Views: 4,903
Posted By Belinda
I was smack on 40 when I experienced unilateral...

I was smack on 40 when I experienced unilateral bleeding from my left nipple which prompted a mirco-dutectomy to remove the bleeding duct - six months later I was dx'd with a largish tumour and 6...
Forum: her2group 01-04-2008, 08:42 PM
Replies: 34
Views: 1,286
Posted By Belinda
Caya - conratulations! I remember when we were...

Caya - conratulations! I remember when we were both newbies and I was so pleased to be in touch with you, and to have found this site.

My cancerversary was 2 days ago. I am glad it is done.
...
Forum: her2group 01-04-2008, 08:33 PM
Replies: 13
Views: 1,170
Posted By Belinda
Wonderful news - congratulations! BX

Wonderful news - congratulations! BX
Forum: her2group 01-04-2008, 08:19 PM
Replies: 4
Views: 778
Posted By Belinda
I think it works this way. Chemo drugs (ac's etc...

I think it works this way. Chemo drugs (ac's etc - not herceptin) are basically very powerful oxidants - they kill growing cells. The concern is that by taking powerful anti-oxidants (to try and help...
Forum: her2group 11-29-2007, 01:40 AM
Replies: 14
Views: 1,111
Posted By Belinda
Lani - I am very glad you post here. I know you...

Lani - I am very glad you post here. I know you have shared some information on your personal motivation and interests, over time. And, with the volume of information your provide us, were I in your...
Forum: her2group 11-29-2007, 01:27 AM
Replies: 10
Views: 997
Posted By Belinda
Carol - all the best to you.It's must be...

Carol - all the best to you.It's must be frightening to have to deal with this, and it just isn't fair that Tykerb is not available. I wish you well.. Belindax
Forum: her2group 11-27-2007, 03:39 AM
Replies: 18
Views: 1,212
Posted By Belinda
Kate was one of the first people to say hi to me...

Kate was one of the first people to say hi to me on this forum and she has been such a wonderful communicator and always responded when I needed some guidance and support. Would you pls send my love...
Showing results 1 to 25 of 136

 
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