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Forum: My Healthcare Team 03-31-2011, 08:02 AM
Replies: 0
Views: 7,210
Posted By islandgirl
Seattle - Health care team

I just want to say how heartily I recommend my oncologist, Kristine Rinn, M.D., of Swedish Hospital Cancer Institute. Also, her nurse, Betsy and her administrative staff, Paulette. I had done prior...
Forum: her2group 09-27-2010, 08:29 AM
Replies: 16
Views: 3,510
Posted By islandgirl
Re: Neuropathy Study

Dear Karen: Thanks for responding to my neuropathy concerns. I shall look in to the B6 supplement. I'm sure it can't hurt! Hope you're doing well.

Jude - islandgirl
Forum: her2group 07-21-2010, 08:39 AM
Replies: 16
Views: 3,510
Posted By islandgirl
Re: Neuropathy Study

Thanks for your post regarding neuropathy. I hadn't heard of the alpha lipoic acid supplement and shall ask my naturopath about it. I continue to have nerve issues in my feet, though am finally...
Forum: her2group 05-24-2010, 09:15 PM
Replies: 9
Views: 1,692
Posted By islandgirl
Re: Life after treatment

I just finished herceptin treatment last week. I am unexpectedly nervous about this, though reassured by my amazing oncologist at Swedish Hospital in Seattle that I've done a thorough course of...
Forum: her2group 05-03-2010, 12:32 AM
Replies: 12
Views: 2,255
Posted By islandgirl
Re: Reconstruction question

Hi there: I'm just finishing Herceptin (next month) and have consulted with a plastic surgeon (again!). While I feel our family needs a rest after this intense year of surgeries, chemo, I'm feeling...
Forum: her2group 05-03-2010, 12:22 AM
Replies: 16
Views: 3,510
Posted By islandgirl
Re: Neuropathy Study

Hi there: I had bad neuropathy during chemo (taxol). I tried glutamine (a supplement) with some positive results, but then it got quite bad and I resorted to other drugs. This included gabapentem...
Forum: her2group 02-25-2010, 07:20 PM
Replies: 46
Views: 10,146
Posted By islandgirl
Re: Positive stories, please come out of the woods

Hi Marcia: I can so appreciate your wanting some 'postive stories' amidst all the intensity of peoples' journeys. You can see I've been through two cancers, multiple surgeries, and chemo. I have...
Forum: Keeping Your Mind Off of BC 02-25-2010, 07:13 PM
Replies: 14
Views: 3,467
Posted By islandgirl
Re: It's Chinese (lunar) New Year!

Gung Hay Fat Choy! My daughters (age 10 and 15) are adopted from China. We celebrate every year. It's been a rough year for all of us, and we're finally seeing the 'other side' (I finish herceptin...
Forum: Herceptin / Tykerb 01-26-2010, 07:17 PM
Replies: 689
Views: 291,038
Posted By islandgirl
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Hi Cheezy: Just got your comments regarding your herceptin side effects. It IS difficult, isn't it, to discern what is what. I'm told I have fibromyalgia now (which, frankly, I don't even like to...
Forum: her2group 01-22-2010, 10:53 AM
Replies: 5
Views: 1,084
Posted By islandgirl
Re: last chemo tomorrow!

Hi there: It is an odd 'graduation', isn't it? When I finished 3 months of taxol in August, I'd anticipated a euphoric, celebratory moment. Instead, I was fraught with anxiety and grief. I...
Forum: General Cancer News 01-22-2010, 09:43 AM
Replies: 1
Views: 978
Posted By islandgirl
Re: More than half of women with DCIS are spared a mastectomy

Hi there: It's an interesting article. I had an initial lumpectomy (DCIS non-invasive dx) with very poor margins. While I was offered a repeat of a lumpetctomy, I opted for a mastectomy. I had...
Forum: her2group 01-22-2010, 09:37 AM
Replies: 19
Views: 4,188
Posted By islandgirl
Re: what to do about nosebleeds?

Greetings: I appreciate your concern about nosebleeds. Mine were daily on Taxol and Herceptin, now, with just Herceptin, it is very dry, but with bleeds. I have used non-pertroleum based vaseline...
Forum: her2group 01-14-2010, 09:45 PM
Replies: 30
Views: 3,105
Posted By islandgirl
Re: Kvetching

Dear StephN:
Thanks for your post. It sounds like you know about those ferry rides..... being in Seattle. I had my surgeries done through SCCA and University of Washington (Ben Anderson, M.D. and a...
Forum: her2group 01-14-2010, 09:23 AM
Replies: 30
Views: 3,105
Posted By islandgirl
Re: Kvetching

Hi all: I joined this group a week ago - I have never done this before, however, it is good timing. I'm on my way for Herceptin treatment today in Seattle (I live on an island in Puget Sound, so...
Forum: her2group 01-08-2010, 07:34 PM
Replies: 9
Views: 2,984
Posted By islandgirl
Re: Test Inconclusive

Hi Ceesun: Interesting that you got an update about your BRAC 2 testing after several years. (And good news, too). I am told genetic testing will get so specific in the future, there may be...
Forum: her2group 01-07-2010, 09:32 PM
Replies: 9
Views: 2,984
Posted By islandgirl
Re: Test Inconclusive

Hi, you posted your BRAC 1, BRAC 2 experience a while ago. I'm new to this, however, I did have genetic testing recently. My BRAC 2 came back as a 'variance of non-significance', i.e., it was...
Forum: Herceptin / Tykerb 01-07-2010, 07:24 PM
Replies: 689
Views: 291,038
Posted By islandgirl
Re: Please post your two cents on Herceptin "side effects" real or perceived!

Hi: I am in the middle of year-long herceptin treatment. compared to taxol, there are much fewer side affects, however, as I progress, I have found myself to have increased muscle and joint...
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