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Search: Posts Made By: Ceesun
Forum: her2group 03-27-2017, 09:01 AM
Replies: 12
Views: 5,165
Posted By Ceesun
Exclamation Re: Recent news

Greeting to all, Thank you all for the well wishes and encouragement. It is nice to have eyelashes,. brows and hair again but I am aware it could be just a reprieve. As far as the papilloma goes the...
Forum: her2group 03-25-2017, 01:28 PM
Replies: 10
Views: 5,709
Posted By Ceesun
Re: Heart Issues with Long Term Herceptin Use

hmmm.....recently learned I have a heart murmur and wondering if its due to the radiation I had to lung or chest. So far no recommendation to cardiologist just adjustment of BP meds. Any thoughts?...
Forum: her2group 03-20-2017, 08:39 AM
Replies: 12
Views: 5,165
Posted By Ceesun
Smile Recent news

Hello Everyone, Just here to provide a little update and wish you all well...Happy Spring! I completed 28 radiation treatments to the right lung area also chest back in Dec-Jan. It went well...
Forum: her2group 02-20-2017, 04:55 PM
Replies: 23
Views: 10,570
Posted By Ceesun
Re: Looking for michka

My heart went in my throat...thanks for your persistence ABB! Thinking of her. Cathy
Forum: her2group 01-01-2017, 06:04 PM
Replies: 12
Views: 4,567
Posted By Ceesun
Thumbs up Re: One Simple Improvement

Amy, you are such a lovely and giving person! Cathy
Forum: her2group 01-01-2017, 05:27 PM
Replies: 12
Views: 4,567
Posted By Ceesun
Smile Re: One Simple Improvement

My improvement started in Feb 2014 and lasts until now. I switched to a plant based diet and eat fish once a week and very low amounts of cheese. I am Armenian and LOVE cheese! I lost 36 pounds, very...
Forum: her2group 12-17-2016, 11:26 AM
Replies: 40
Views: 16,290
Posted By Ceesun
Re: 15 years stage IV - no drugs in 8yrs - still NED

Steph, You are a rockstar and absolutely the heartbeat of Her2 here! Congrats on a wonderful track record. Merry Christmas! Cathy
Forum: her2group 12-10-2016, 01:38 PM
Replies: 5
Views: 3,781
Posted By Ceesun
Re: 4 years ago today..

Jen...Thought of Sheila yesterday and wondered how many years it has been...you just reminded me...miss her. Cathy
Forum: her2group 11-30-2016, 02:30 PM
Replies: 39
Views: 11,431
Posted By Ceesun
Re: Update on my lung

Amy, You are so generous in spirit and way too kind. Love and good wishes to you...I think we all do the best we can with what we've got, so to speak. I have my disappointments and discouragements...
Forum: her2group 11-26-2016, 05:32 PM
Replies: 39
Views: 11,431
Posted By Ceesun
Thumbs up Re: Update on my lung

Hang in there Amy! I am getting a clean up radiation on my right lung even though the chemo cleared things up. I have had seven treatments and twenty one to go. I have that achy feeling sort of...
Forum: her2group 10-25-2016, 04:46 PM
Replies: 36
Views: 17,088
Posted By Ceesun
Smile Re: Add me to the 10 Years Out Club!

And here you are!!!! Superbe! xo Cathy
Forum: her2group 10-16-2016, 07:53 AM
Replies: 18
Views: 5,823
Posted By Ceesun
Re: Stage IV and totally stressed

Valley Girl, I share your stress...believe me....but I try to live the best life I can and just pray for guidance a long the way. I also see many people with health situations worse than mine and...
Forum: her2group 10-16-2016, 07:33 AM
Replies: 13
Views: 5,513
Posted By Ceesun
Smile Re: My Husband calls it my onc's victory lap...

Good Morning Friends, just to clarify a bit the radiation according to the oncologist and radiation oncologist is to "clean things up" as I am told. My oncologist took me off herceptin with plans to...
Forum: her2group 10-09-2016, 02:49 PM
Replies: 13
Views: 5,513
Posted By Ceesun
Smile My Husband calls it my onc's victory lap...

Hi dear ones, It has been awhile and I just want to update. After six rounds of Ixempra with no herceptin my right lung looks resolved and nodes in chest resolved or markedly improved. My onc still...
Forum: her2group 08-09-2016, 09:12 AM
Replies: 18
Views: 10,289
Posted By Ceesun
Thumbs up CEA: How low can you go?!

Quick update from Ceesun. Recent bloodwork shows cea down from 78 in April to 2.7 now! So the plan is one more treatment with Xempra and then a Pet scan. If that looks good to my oncologist he is...
Forum: her2group 08-06-2016, 02:09 PM
Replies: 28
Views: 12,339
Posted By Ceesun
Re: Local treatment in lungs?

Fern, Praying for you. Amy I have been dealing with lung mets for ten years. Had cyberknife but it did not maintain ....doing chemo now with one more to go and then the plan is cyberknife again to...
Forum: her2group 08-06-2016, 02:03 PM
Replies: 19
Views: 6,138
Posted By Ceesun
Thumbs up Re: 11 years

Love you and your great news Pink....always remember how you guided me through surgery! xo from Ceese aka Cathy
Forum: her2group 07-10-2016, 02:48 PM
Replies: 18
Views: 5,412
Posted By Ceesun
Smile Progress Report from Ceesun!

Hello to all, Just want to give you the update after my first three treatments of Xempra. Recent ct scan of chest showed marked improvement and good deal of shrinkage on right lung tumor. Left lung...
Forum: her2group 04-24-2016, 09:45 AM
Replies: 7
Views: 5,481
Posted By Ceesun
Re: Checking In: Bad News (Hello Kadcyla) and Good New!

Kim Sounds good all in all! Kadcyla can be good for sure! Take that MBC love it!! Cathy
Forum: her2group 04-22-2016, 01:28 PM
Replies: 11
Views: 4,927
Posted By Ceesun
Thumbs up Re: Ceesun... Here😎

Sisters and Brothers, Thank you for responding to me after so many months away. I feel like an old timer here now with many new faces and sadness at the ones we lost, but over the many years you have...
Forum: her2group 04-17-2016, 08:21 AM
Replies: 11
Views: 4,927
Posted By Ceesun
Ceesun... Here😎

Hi all. Not been on lately but need help my lung mass has progressed this year and now have many lymph nodes in chest area involved. Will start new chemo Thurs. has anyone had lymph nodes in chest...
Forum: her2group 07-20-2015, 03:06 PM
Replies: 32
Views: 6,656
Posted By Ceesun
Re: Going back on Abraxane

Amy, My apologies....I believe it was a few years back, I wrote that I took a Habitat trip to Armenia and visited France again. Dear Adriana told me she had a "best friend" who was Armenian in Cali...
Forum: her2group 07-18-2015, 06:08 PM
Replies: 32
Views: 6,656
Posted By Ceesun
Cool Re: Going back on Abraxane

Hey Amy, I am in your corner, too! xo Cathy Armos are tough!!!!!!!!!
Forum: her2group 06-14-2015, 08:48 AM
Replies: 19
Views: 2,932
Posted By Ceesun
Thumbs up Re: A decade

Yay! to our ten year gals!! Cathy
Forum: her2group 06-10-2015, 12:13 PM
Replies: 27
Views: 5,796
Posted By Ceesun
Re: Penny Has Her Wings

Thank you Penny for demonstrating your faith to all of us. Cathy
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