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Search: Posts Made By: Kathy T
Forum: her2group 05-28-2018, 05:03 AM
Replies: 8
Views: 2,122
Posted By Kathy T
Re: Long time, no see!

Hi Ann, I have been stage 4 for 15 years. I received TDM1 for a little over 4 years. It remained successful in treating the cancer, but I developed nodular regenerative hyperplasia of the liver,...
Forum: her2group 07-27-2017, 02:17 PM
Replies: 26
Views: 10,994
Posted By Kathy T
Re: Insurance Frustrations

Hi Tracy, I have Aetna and they have been covering Herceptin and Perjeta for me the past 4 years. I hope this is not a new policy.
Kathy T
Forum: her2group 03-20-2017, 07:09 AM
Replies: 17
Views: 4,320
Posted By Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...

Tiffany, I am not sure why that policy is in place. Perjeta and Herceptin have been helpful to me.
Forum: her2group 03-18-2017, 02:01 PM
Replies: 17
Views: 4,320
Posted By Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...

My neuropathy is mainly numbness in both hands and feet. I have been receiving Perjeta and Herceptin since stopping TDM-1
Forum: her2group 03-18-2017, 07:35 AM
Replies: 17
Views: 4,320
Posted By Kathy T
Re: How long for T-Dm1 induced neuropathy to go away ...

I still have neuropathy after being off Kadcyla for 4 years. I am assuming it is permanent.
Forum: her2group 12-29-2016, 06:17 PM
Replies: 4
Views: 2,779
Posted By Kathy T
Re: MBC Project

Also done!
Kathy T
Forum: her2group 09-08-2016, 10:11 AM
Replies: 1
Views: 3,190
Posted By Kathy T
Re: Pertuzumab for treated metastatic patients in Europe

Hi ! I am stage 4 and have been stable with Herceptin and Pertuzumab for 2 1/2 years. I was previously on TDM1 for 4 1/2 years,stopping because of liver issues. I hope you can get this combo. ...
Forum: her2group 09-04-2015, 10:26 AM
Replies: 5
Views: 2,254
Posted By Kathy T
Re: On Herceptin for 5 years or more

I have been on Herceptin for over 12 years, since dx. Of stage 4. Now stable with Herceptin and Perjeta.
Kathy T.
Forum: her2group 03-28-2015, 10:52 AM
Replies: 45
Views: 17,987
Posted By Kathy T
Re: In Praise of Perjeta

Amy, I've been receiving Perjeta and Heceptin alone for the past 14 months and have remained stable. 12 years at stage 4 for me! I am so grateful.
Kathy
Forum: her2group 03-24-2015, 01:25 PM
Replies: 5
Views: 1,120
Posted By Kathy T
Re: Anyone had Tachycardia during or just after Herceptin?

Jessica, I had one episode,requiring an ED visit. Troponin levels were not checked. I was on a low dose beta blocker and would have occasional bouts of tachycardia which were controlled with an...
Forum: her2group 03-23-2015, 05:20 PM
Replies: 5
Views: 1,120
Posted By Kathy T
Re: Anyone had Tachycardia during or just after Herceptin?

I developed extreme tachycardia while taking Herceptin. It was Dx. As supra ventricular tachycardia and is controlled with beta blockers. My onc. Did not think it was from Herceptin.
Kathy T
Forum: her2group 11-26-2014, 07:56 AM
Replies: 25
Views: 3,341
Posted By Kathy T
Re: Is it okay to cuss on here?? Cuz this is a Bitch

Linn, I remember feeling just as you do now. I have been stage 4 for 12 years and on continuous tx. It has become normalcy for me and I truly am thankful for the time I've received with relatively...
Forum: her2group 07-23-2014, 06:13 PM
Replies: 44
Views: 61,612
Posted By Kathy T
Re: Kadcyla Side Effects

Amy, I received TDM 1 for 4 1/2 years. My liver enzymes were elevated and platelets low. I also developed nodular regenerative hyperplasia in the liver, subsequent portal hypertension resulting in...
Forum: her2group 07-19-2014, 02:11 PM
Replies: 10
Views: 1,951
Posted By Kathy T
Re: Drug Induced Interstitial Lung Disease

Amy, I have been off Kadcyla since Dec. and my liver enzymes remain elevated and platelets low. I'm wondering how many are experiencing the same.
Kathy T
Forum: her2group 06-20-2014, 08:20 PM
Replies: 52
Views: 5,967
Posted By Kathy T
Re: I'm NED

Wonderful news, Ann. I am now on Herceptin and Perjeta after experiencing difficulties with TDM-1. I hope for the same results!
Kathy T
Forum: her2group 06-07-2014, 06:21 PM
Replies: 1
Views: 1,162
Posted By Kathy T
Forum: her2group 04-24-2014, 07:24 PM
Replies: 24
Views: 1,988
Posted By Kathy T
Re: Afraid

I did develop nodular regenerative hyperplasia. It seemed stable so we continued with the drug. I later developed portal hypertension, unaware, and finally esophageal varices which ruptured. It...
Forum: her2group 03-01-2014, 06:22 AM
Replies: 6
Views: 1,674
Posted By Kathy T
Re: Herceptin and Perjeta

Amy,
I had my first dose of P and H last week and had the same flu like symptoms-- fever ,chills etc. I'm hoping it's a one time thing.
Kathy t
Forum: her2group 02-21-2014, 02:16 PM
Replies: 21
Views: 4,281
Posted By Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?

For those with varices be careful. I developed esophageal varices which subsequently ruptured,causing a major bleed,requiring endoscopies with banding, A very frightening and dangerous situation....
Forum: her2group 02-21-2014, 11:04 AM
Replies: 18
Views: 1,456
Posted By Kathy T
Re: On to next combo--H,P and ???

Hi Amy! I just had my first dose of Herceptin and Perjeta after 41/2 years of TDM1. I stopped because of liver issues, not progression. I'm hoping it keeps me stable. Good luck to you.
Kathy T
Forum: her2group 09-29-2013, 03:42 PM
Replies: 8
Views: 2,651
Posted By Kathy T
Re: how long did kadcyla (tdm1) work for you?

Mainly bone met, possibly lung, but not bx. And no issues in the last 10 years since I became stage 4. The side effects are typical, low platelets, elevated liver functions, etc. it has been a great...
Forum: her2group 09-27-2013, 07:40 PM
Replies: 8
Views: 2,651
Posted By Kathy T
Re: how long did kadcyla (tdm1) work for you?

Stable for 4 years and counting.....with TDM1.
Kathy T
Forum: her2group 09-02-2013, 03:23 PM
Replies: 21
Views: 4,281
Posted By Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?

Michka, by stable, I mean my bone mets have not improved, buts have not worsened either.
Kathy T
Forum: her2group 09-01-2013, 05:50 AM
Replies: 21
Views: 4,281
Posted By Kathy T
Re: Has anyone been on TDM-1 for more than 2 years?

I've been on TDM 1 for 4 years. I have problems with low platelets and liver issues. I am not NED, but stable.
Kathy T
Forum: her2group 08-27-2013, 09:56 AM
Replies: 9
Views: 1,650
Posted By Kathy T
Re: Come On, Waterdreamer

4 years for me. I've tolerated it well for the most part, but more problems with platelets and liver issues. I'm thinking I won' t be on it much longer. Then what?
Kathy T
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