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Search: Posts Made By: rhondalea
Forum: Clinical Trials 12-01-2014, 10:46 AM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

I have not promoted 23 and me as a place for patients to get medical information. I specifically refer you to your comment in post #6:



To which I replied in post #8:



I have tried to...
Forum: Clinical Trials 11-30-2014, 08:40 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

What's weird is that you would think heterozygotes would have some protection from low iron, but at least in my case, that's not the case at all. I've had intermittent anemia for most of my life, and...
Forum: Clinical Trials 11-30-2014, 02:40 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Well, yeah, there are pages and pages of blog posts--including many about breast cancer genetic research--but here's one about someone who dodge a bullet:
...
Forum: Clinical Trials 11-30-2014, 10:18 AM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Management screwed up, Lizbeth. They didn't keep up with the paperwork, and the FDA got tired of waiting.

I think part of the problem is that in spite of all the disclaimers, some of those who...
Forum: Clinical Trials 11-29-2014, 06:39 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

To the extent that I'm a customer of 23andMe, I have a personal interest in the company. If you asked other 23andMe'ers, you might find that many of them feel the same. I don't own stock, though. I'm...
Forum: Clinical Trials 11-28-2014, 05:29 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Oh, and what a nuisance that was.

23andMe got whacked by the FDA for the health reports, so anyone who orders the test after November 2013 only receives the ancestry component. Everyone who had...
Forum: Clinical Trials 11-26-2014, 01:25 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

I don't think either 23andMe or the Personal Genome Project is appropriate for the purpose, Lizbeth. 23andMe is genotyping, not genome sequencing, so all you get are SNPs. For cancer, that's not...
Forum: Clinical Trials 11-26-2014, 12:19 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Well, I paid for the genotyping, so I have 900k individual results. That's how I know that Provigil won't work for me and that I shouldn't take Ritalin while I'm taking tamoxifen.

For the same...
Forum: Clinical Trials 11-26-2014, 11:34 AM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

Do read about the KRAS-variant first. She's chasing her tail. She got that patent, and even though the research has not borne out, she won't let go.

My 23andMe DNA genotyping profile is uploaded...
Forum: Clinical Trials 11-25-2014, 09:27 PM
Replies: 20
Views: 25,343
Posted By rhondalea
Re: No Travel Required - KRAS-Variant Mutation and Breast Cancer

I'm very unhappy with Joanne Weidhaas.

I participated in the original study (all related correspondence available upon request) for which she recruited through the Army of Women. At the end, she...
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