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Search took 0.01 seconds. Search: Posts Made By: abitjaded
Forum: Herceptin / Tykerb 03-23-2009, 01:03 PM
Replies: 8
Views: 3,793
Posted By abitjaded
Oh, oh Maureen, I'm thrilled your tumor has...

Oh, oh Maureen,

I'm thrilled your tumor has shrunk. I started Tykerb alone in February after flunking all the standard therapies including whole brain radiation therapy 101.

Now I'm waiting...
Forum: Herceptin / Tykerb 03-23-2009, 12:56 PM
Replies: 1
Views: 1,514
Posted By abitjaded
Thank you, thank you Joe. I sent them an email. I...

Thank you, thank you Joe. I sent them an email. I have a science background and felt pretty prepared to start Tykerb. I know how to comb the med literature. I pity those who don't have my resources....
Forum: her2group 02-23-2009, 01:14 PM
Replies: 38
Views: 4,319
Posted By abitjaded
Stay busy

My therapy has been to stay busy.

Stripped some wallpaper I hated. Destroyed the walls. Learned how to wall compound, learning how to mitre corners of baseboard and next how to repair the sheet...
Forum: her2group 02-23-2009, 01:07 PM
Replies: 1
Views: 1,810
Posted By abitjaded
Thanks

Thanks for the reference.

I know I read an abstract somewhere before I started lapatinib to the effect that patients who did have the acne skin reaction did better than those who had no skin...
Forum: her2group 02-20-2009, 01:59 PM
Replies: 40
Views: 5,343
Posted By abitjaded
Yeah!!! Sent you a PM. Carla

Yeah!!! Sent you a PM.

Carla
Forum: her2group 02-19-2009, 08:16 AM
Replies: 33
Views: 5,129
Posted By abitjaded
I'm back with baggage

Hey all,

I have a single brain met that refuses to clean up after two craniotomies.

I am now on my second week of lapatinib monotherapy. I seem to be a rarity in the journals and am looking for...
Forum: her2group 06-20-2008, 10:44 AM
Replies: 32
Views: 3,285
Posted By abitjaded
Gemma, Bless your heart. Actually...

Gemma,

Bless your heart.

Actually seeing a surgeon is a good sign. Neurosurgeons don't want to see you if they feel they cannot help.

I was sent for surgery first because the tumor was...
Forum: her2group 06-17-2008, 08:44 AM
Replies: 31
Views: 3,696
Posted By abitjaded
Good luck Krista, the lack of sleep is my biggest...

Good luck Krista, the lack of sleep is my biggest on-going-bug-a-boo. There is just nothing more stressful.

Try shifting anything else you must take to a different time, if possible. If you are...
Forum: her2group 06-11-2008, 08:03 AM
Replies: 7
Views: 1,697
Posted By abitjaded
Becky, We always second guess ourselves,...

Becky,

We always second guess ourselves, don't we?

Don't know any soap science here, but the titanium dioxide in sun screen is usually in a petrolatum base to get it to stick. It is the same...
Forum: her2group 06-11-2008, 07:46 AM
Replies: 25
Views: 2,443
Posted By abitjaded
Congrats! Enjoy! Carla

Congrats! Enjoy!

Carla
Forum: her2group 06-11-2008, 07:44 AM
Replies: 20
Views: 2,348
Posted By abitjaded
Oh Stephanie's oil pastels are lovely. I think I...

Oh Stephanie's oil pastels are lovely. I think I found the pink ribbons. Bless her and her family, and you. Thank you for sharing her legacy with us.

Carla
Forum: her2group 06-11-2008, 07:34 AM
Replies: 27
Views: 3,232
Posted By abitjaded
Terri, No idea what the ear-hive thing was....

Terri,

No idea what the ear-hive thing was. But loved your piggy image. The Dilantin rash I got was sooooo itchy. Even my ear drums itched.

For years my left ear has itched then hurt,...
Forum: her2group 06-07-2008, 01:00 PM
Replies: 27
Views: 3,232
Posted By abitjaded
Terri, Feel for you. I actually lost a lot...

Terri,

Feel for you. I actually lost a lot of weight, but had rad and AC first before the Taxol and Herceptin. No matter whether you gain or lose, the whole experience does not promote mirror...
Forum: her2group 06-07-2008, 12:51 PM
Replies: 12
Views: 2,189
Posted By abitjaded
Yikes, thanks for the links. But as...

Yikes, thanks for the links.

But as everyone knows, we have to take it with a grain of salt. If we knew what to avoid, we'd probably avoid everything.

Carla
Forum: her2group 06-05-2008, 01:02 PM
Replies: 12
Views: 2,189
Posted By abitjaded
Here, here Robin, Makes me crazy all the...

Here, here Robin,

Makes me crazy all the magazine articles that say do this, do that and you will/will not get cancer.

Yet when something has at least a suspicious link we need to take...
Forum: her2group 06-05-2008, 11:13 AM
Replies: 12
Views: 2,189
Posted By abitjaded
I heard about this paper last year. I am a...

I heard about this paper last year. I am a lavender addict, and had just started using tea tree oil on my nails. I had tried to find the original paper, and had told my onc about it. The paper talks...
Forum: her2group 06-05-2008, 11:02 AM
Replies: 64
Views: 5,587
Posted By abitjaded
Yeah Chrisy! Spray Chocolate!!! Carla

Yeah Chrisy!

Spray Chocolate!!!

Carla
Forum: her2group 06-03-2008, 12:36 PM
Replies: 46
Views: 4,321
Posted By abitjaded
Hey Terri, Decadron can be fun. Made me...

Hey Terri,

Decadron can be fun. Made me understand what my 14 yo son may be experiencing.

The good, the bad and the ugly.

Carla
Forum: her2group 06-03-2008, 12:34 PM
Replies: 64
Views: 5,587
Posted By abitjaded
Oh Chrisy, So sorry. Have you all...

Oh Chrisy,

So sorry.

Have you all ever seen the Goofy Movie. Funny , uplifting and a very good spray cheese sub-plot.

Thinking of you.

Carla
Forum: her2group 06-02-2008, 11:11 AM
Replies: 9
Views: 1,440
Posted By abitjaded
Terri, Is Ruth totally menopausal now?...

Terri,

Is Ruth totally menopausal now? Perhaps she is having a reaction like I did.

During the chemo, and even now, I get itching attacks. Not like normal, getting into the shower just makes...
Forum: her2group 06-02-2008, 10:24 AM
Replies: 46
Views: 4,321
Posted By abitjaded
Oh yeah, prilosec or famotidine rock. Carla

Oh yeah, prilosec or famotidine rock.

Carla
Forum: her2group 06-02-2008, 10:21 AM
Replies: 33
Views: 5,129
Posted By abitjaded
Thanks all. Her nurse is supposed to call...

Thanks all.

Her nurse is supposed to call me today. Time to move on.

Carla
Forum: her2group 05-31-2008, 10:37 AM
Replies: 33
Views: 5,129
Posted By abitjaded
Oh PattyZ, thank you, thank you. I figure it will...

Oh PattyZ, thank you, thank you. I figure it will be back, but I hope. You are hope.

Yes, Maryanne. Got up this morning wondering how stupid am I to put up with this. She is by far the most...
Forum: her2group 05-31-2008, 10:20 AM
Replies: 64
Views: 5,587
Posted By abitjaded
Red face I love "we are greedy for life" Chrisy. ...

I love "we are greedy for life" Chrisy.

Amen.

Carla
Forum: her2group 05-30-2008, 01:59 PM
Replies: 33
Views: 5,129
Posted By abitjaded
Angry Rant, rant, rant

Thank you all.

Going for a consult Monday at University Hospital in Denver to get a second opinion about Cyberknifing the area, too, mentioned by the Neurosugeon who took out the tumor. Hopefully...
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