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Search: Posts Made By: StephN
Forum: her2group 09-28-2017, 10:58 PM
Replies: 7
Views: 2,150
Posted By StephN
Wink Re: ONT-380/Tucatinib trial? Anybody has contact with Cascadian Therapeutics?

Dear Michka,

Any news to share on the trial you are working toward? Sending my best healing thoughts your way!

No trip to France in my immediate future, but I think of you often and remember...
Forum: her2group 09-28-2017, 10:54 PM
Replies: 4
Views: 1,226
Posted By StephN
Wink Re: Northwest MBC conference

Great to see you this week Joan, and hear about the conference and other things. Sounds like the conference had a good balance of complimentry and trials presented.
Forum: her2group 09-19-2017, 06:42 PM
Replies: 13
Views: 930
Posted By StephN
Wink Re: Forgot my anniversary

That is a good thing to forget! Shows that you feel confident in life and your body and are moving on. Wish we could track Tippy down.
Forum: her2group 09-13-2017, 11:09 PM
Replies: 25
Views: 2,311
Posted By StephN
Unhappy Re: Our Waterdreamer is Gone

My heart hurts with this news. Fern also reached out to me a few times, but contact was sporadic. She was serious about life and helping others as well. RIP sweet lady.
Forum: Profiles In Courage 08-28-2017, 10:07 PM
Replies: 40
Views: 18,179
Posted By StephN
Wink Re: How many years NED? Give others hope

Nice to see this thread revived.

I am now close to 15 years stage IV. I surprise myself when I see that number!!! I am going to my high school 50-year reunion in about 3 weeks!

NED I would...
Forum: Herceptin / Tykerb 08-15-2017, 02:40 PM
Replies: 18
Views: 1,801
Posted By StephN
Thumbs up Re: Back on Tykerb--Still Rough

Hey Laurel! Great information, but Amy announced that she has "given up" on tykerb. However, that might be a good thing to try if she ever does take it again.

Can you start another thread about...
Forum: her2group 08-15-2017, 02:34 PM
Replies: 4
Views: 1,226
Posted By StephN
Wink Re: Northwest MBC conference

Thanks, Joan!
I very much look forward to seeing you again!
Forum: her2group 07-15-2017, 11:30 AM
Replies: 42
Views: 5,108
Posted By StephN
Unhappy Re: Phooey--Brain Mets

Sorry to hear that you are not now NED in your head, but you will be soon again. By "resectable" I hope the doctor means that you can get after those three spots with something like cyberknife or...
Forum: her2group 07-14-2017, 10:51 PM
Replies: 7
Views: 2,150
Posted By StephN
Wink Re: ONT-380/Tucatinib trial? Anybody has contact with Cascadian Therapeutics?

Wonderful news! You are such a great researcher for your own good! Let us know how it goes and when they plan to open those sites. Sometimes it takes a while.
Forum: Articles of Interest 07-12-2017, 06:52 PM
Replies: 2
Views: 2,349
Posted By StephN
Wink Re: Adjuvant Pertuzumab and Trastuzumab in Early HER2-Positive Breast Cancer

Thanks, Robin.
Nice to see you here.

I trust all is well with you.
Forum: her2group 07-06-2017, 10:33 PM
Replies: 18
Views: 3,471
Posted By StephN
Wink Re: 12 years, but who is counting?

Good news, and we never do stop counting!
I have been somewhat "otherwise occupied" myself so missed your post. Very glad to hear that things have moved along basically well for you and Bella. I can...
Forum: her2group 07-03-2017, 10:05 PM
Replies: 7
Views: 2,808
Posted By StephN
Re: High dose Vitamin C

I had a friend who was Her2 positive and tried high-dose vitamin C treatments, which got her nowhere except tumor spread and brain mets. This is prior to most of these new targeted options.
Forum: her2group 07-03-2017, 10:02 PM
Replies: 9
Views: 2,425
Posted By StephN
Wink Re: Really Scared - Pet Scan Ordered

Ariana - sorry for that bedside manner you had to endure!

I have had a problem with my right side pelvic area. Not AT my hip joint but closer to my waist. After several docs and tests the PT...
Forum: her2group 06-27-2017, 02:32 PM
Replies: 30
Views: 6,698
Posted By StephN
Re: Good and Bad News

Amy, I know you are here with good intentions like the rest of us! And if my longevity is helpful to others, I will stay as long as possible. I guess I was really saying that other than longevity,...
Forum: her2group 06-26-2017, 09:45 PM
Replies: 13
Views: 3,217
Posted By StephN
Re: Did you have surgery w/o doing chemo?

First thing to learn and keep in mind about cancer is that it is SNEAKY and hard to control. (You know this.) And HER2 positive tumors can spread like wildfire (as mind did), and there is nothing our...
Forum: her2group 06-26-2017, 09:25 PM
Replies: 30
Views: 6,698
Posted By StephN
Unhappy Re: Good and Bad News

Amy, thanks for mentioning me. I did not have nearly the complicated decision facing our dear Michka. Mine was a simple "let's get them with gamma knife," and we did.

Michka and I met in Paris...
Forum: her2group 04-26-2017, 09:43 PM
Replies: 20
Views: 5,831
Posted By StephN
Wink Re: New Plan

Amy -

I threw my hat in the ring for a brand new trial and look where I ended up. I don't think my case involved a TK problem, but it was sure that adriamycin did not touch my cancer, so...
Forum: her2group 04-26-2017, 09:31 PM
Replies: 5
Views: 3,726
Posted By StephN
Wink Re: cancer sniffing dogs

My cat was acting weird when I would pick her up just prior to my finding my lump. She wanted to be in my lap and not at my chest which was different than before. I know she was very smart!
Forum: her2group 04-06-2017, 03:02 PM
Replies: 36
Views: 13,328
Posted By StephN
Wink Re: Add me to the 10 Years Out Club!

Hello Caya!

Glad to hear that all is well in your world, and that your cancer episode seems to be behind you.
So many have chimed in who have also reached their 10-year and higher marks. Joe...
Forum: her2group 04-05-2017, 09:19 PM
Replies: 12
Views: 3,792
Posted By StephN
Wink Re: Recent news

Hello Cathy!

Thanks for the good news updates. Most of us "long-haulers" do have some issues as side effects from the piled up treatments. But those do not prevent us from doing mostly what we...
Forum: her2group 02-22-2017, 07:42 PM
Replies: 23
Views: 8,146
Posted By StephN
Wink Re: Looking for michka

Glad to hear Michka has surfaced. She has learned a lot about navigating the French medical system to get what she wants. Sure hope she can get back on something anti-HER2.

She lives in the...
Forum: her2group 02-07-2017, 05:14 PM
Replies: 229
Views: 102,549
Posted By StephN
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

You and Carol fought for each other in such a way as to give so many others hope and a new way to hang on in spite of such negative news.

You have my sincere admiration and prayers that you...
Forum: her2group 01-25-2017, 10:36 PM
Replies: 45
Views: 11,309
Posted By StephN
Re: Port or No Port?

Hi Tiffany,

For my nine years plus with a port there were two. I had to have the first one replaced after a few years due to it becoming clotted up. Could flush but not get blood return. The...
Forum: her2group 01-24-2017, 10:58 PM
Replies: 45
Views: 11,309
Posted By StephN
Wink Re: Port or No Port?

I had no choice about getting a port as my first drug was slated to be Adriamycin/Red Devil. Then got Navelbine for mets that occurred early. I also had the "one arm" issue due to lower axilla...
Forum: her2group 01-19-2017, 10:38 PM
Replies: 40
Views: 11,526
Posted By StephN
Wink Re: 15 years stage IV - no drugs in 8yrs - still NED

Hello everyone!

SoCalGal, NO there is no news from the U of W to the vaccine subjects. I have not heard a thing for three years since I completed the last blood draw.

Lauriesh also...
Showing results 1 to 25 of 500

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