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Search: Posts Made By: Mandamoo
Forum: Caregivers Corner 09-29-2013, 03:26 PM
Replies: 18
Views: 9,226
Posted By Mandamoo
Re: Mother has passed at 90 Sept. 21

My condolences to you Jackie.
Forum: her2group 09-24-2013, 11:45 PM
Replies: 40
Views: 10,602
Posted By Mandamoo
Re: A simple formula for changing the future

Andi
So many of those words in your prayer have been said by me over the past 2-3 years. I have always known I would get better.
Today the doctors told me there is nothing more that can be done by...
Forum: her2group 09-22-2013, 09:32 PM
Replies: 40
Views: 10,602
Posted By Mandamoo
Re: A simple formula for changing the future

Thank you Denise - I very much need prayers.

The neflinavir thing Lani posted is not new - it came out last year. I have not seen any trials or reports when I've searched. My onc says no...
Forum: her2group 09-22-2013, 05:02 PM
Replies: 40
Views: 10,602
Posted By Mandamoo
Re: A simple formula for changing the future

Thank you Andi. I have read many of those books. I have always seen myself as someone with a long life ahead of me and I am definitely a Doer.

I have had a horrible weekend with pain, feeling...
Forum: her2group 09-12-2013, 08:34 PM
Replies: 13
Views: 1,916
Posted By Mandamoo
Re: KDR thinking of you today

I cant even begin to imagine the horror. I was heavily pregnant with my first daughter when the phone range waking us and telling us to turn on the television - a world away in Australia I watched...
Forum: her2group 09-10-2013, 07:39 PM
Replies: 40
Views: 10,602
Posted By Mandamoo
Re: A simple formula for changing the future

Thank you Andi - when you are in the midst of very frightening symptoms and feel death is if not imminent it is close - it is incredibly hard to project thoughts of living to see my 6year old son's...
Forum: her2group 09-10-2013, 07:35 PM
Replies: 58
Views: 4,569
Posted By Mandamoo
Re: Brain MRI Today!! ??

Adding my love and prayers too my friend.
A xx
Forum: her2group 09-06-2013, 06:18 PM
Replies: 2
Views: 890
Posted By Mandamoo
Re: FoundationOne?

I looked into it but decided against as I have already had similar genetic profiling done. I was more interested in Rational Therapeutics but the cost from Australia is prohibitive as is the benefit...
Forum: her2group 09-04-2013, 08:38 PM
Replies: 37
Views: 4,183
Posted By Mandamoo
Re: metronomic chemo

Thank you - I've had one dose of Halaven - I do believe the palpable nodes in my neck are smaller however, my coughing is problematic and I believe I amy have now fractured a rib :-(. I have just...
Forum: her2group 09-04-2013, 08:25 PM
Replies: 13
Views: 1,243
Posted By Mandamoo
Forum: her2group 09-04-2013, 08:24 PM
Replies: 20
Views: 1,715
Posted By Mandamoo
Re: Andi BB is the Birthday Girl!!

Happy Birthday to one of the most beautiful women I have never "met". May you be filled with joy and good health.
Amanda x
Forum: her2group 08-31-2013, 08:25 PM
Replies: 37
Views: 4,183
Posted By Mandamoo
Re: metronomic chemo

Thanks for the articles Lani - there are no trials I can access here now. In considered too heavily pretreated. It does sounds like there is some
Promise with metronomic chemo though. Our plan at...
Forum: her2group 08-31-2013, 12:12 AM
Replies: 37
Views: 4,183
Posted By Mandamoo
Re: metronomic chemo

Hi Dawny
Scans were not good. Progression in my lungs. Symptoms - cough primarily almost impossible to manage and very distressing.
Started eribulin on Thursday (halaven) - costing us $1500 per...
Forum: her2group 08-30-2013, 01:05 AM
Replies: 42
Views: 4,011
Posted By Mandamoo
Re: Good News / "Bad" News

Always guaranteed a smile reading your updates - probably to be honest a real laugh out loud followed by one of my coughing fits and if really lucky some reflux but hey - theme the breaks!
Glad of...
Forum: her2group 08-09-2013, 07:49 PM
Replies: 37
Views: 4,183
Posted By Mandamoo
Re: metronomic chemo

Thank you lizbeth.
The p53 agent interesting me the most at the moment but it may all be pre-trial market hype is Kevetrin - phase1 trial Dana Faber. MDM2 inhibition is also thought to play a role...
Forum: her2group 08-08-2013, 09:19 PM
Replies: 37
Views: 4,183
Posted By Mandamoo
Re: metronomic chemo

Thank you for the articles. I remember attending a presentation and hearing it discussed last year - it is apparently a old fashioned treatment coming back into "vogue" again but some of the reports...
Forum: Keeping Your Mind Off of BC 08-07-2013, 02:32 PM
Replies: 2
Views: 5,271
Posted By Mandamoo
Re: Australian Football Rocks!!

It's so fantastic that you guys got so much out of the bottom two teams playing!
Yes AFL does rock!
Forum: her2group 08-06-2013, 04:00 PM
Replies: 37
Views: 4,183
Posted By Mandamoo
metronomic chemo

Hi there my friends
I wanted to ask if anyone has tried metronomic chemo? I seem to remember Jessica maybe trying this?

I am having scans next week to see what is happening to the disease both...
Forum: her2group 07-31-2013, 04:42 PM
Replies: 17
Views: 2,237
Posted By Mandamoo
Re: Neupogen Shots? Standard With Navelbine?

Glad you are going home! I had neutrophil issues on navelbine - the trial I was on had navelbine weekly - no breaks. I assume you are doing the regular regime with a break? I ended up in hospital...
Forum: her2group 07-28-2013, 01:33 PM
Replies: 29
Views: 2,964
Posted By Mandamoo
Forum: her2group 07-24-2013, 11:44 PM
Replies: 22
Views: 1,938
Posted By Mandamoo
Forum: her2group 07-10-2013, 07:56 PM
Replies: 31
Views: 1,954
Posted By Mandamoo
Re: I love being unique... Usually :-)

So the plan so far is keep going with what I am doing - It seems about 70% of the disease is responding so we will keep going. My Onc is still consulting with others but we are considering adding...
Forum: her2group 07-10-2013, 07:54 PM
Replies: 13
Views: 1,482
Posted By Mandamoo
Re: Stable

We always want better than a stable result but stable is good - lets hope for a long steady response to TDM1. xx
Forum: Articles of Interest 07-10-2013, 07:52 PM
Replies: 7
Views: 1,767
Posted By Mandamoo
Re: Searching for new direction

I think that Stage 4 success stories are so varied it shows how individual we all are in how we respond to all kinds of treatments. I have supported my treatments with various complementary...
Forum: her2group 07-10-2013, 07:46 PM
Replies: 21
Views: 3,539
Posted By Mandamoo
Re: SBRT/Liver mets?

Cancer be gone! You go girl.
Showing results 1 to 25 of 418

 
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