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Search: Posts Made By: Pamelamary
Forum: her2group 07-20-2016, 02:38 AM
Replies: 29
Views: 3,537
Posted By Pamelamary
Re: Looking for hope

Great news, Benk - hope the side effects are bearable and that reduction continues.
Best wishes.... Pam
Forum: her2group 07-11-2016, 12:31 AM
Replies: 14
Views: 721
Posted By Pamelamary
Re: Progress Report from Ceesun!

So glad to hear you are responding well to this new treatment, and hope the side-effects are bearable.
Best wishes.... Pam
Forum: her2group 06-17-2016, 12:36 AM
Replies: 12
Views: 1,042
Posted By Pamelamary
Re: Subcutaneous Herceptin

Hi Marie, that is good news - glad to hear it was straightforward as I had heard it is a very big injection. My oncologist said to wait a bit - not entirely sure why.
Regards..... Pam
Forum: her2group 06-17-2016, 12:33 AM
Replies: 22
Views: 1,364
Posted By Pamelamary
Re: Happy News!

Great news about your scan, Tracy! Dancing here in Melbourne, Australia..... Pam
Forum: her2group 06-02-2016, 12:05 AM
Replies: 29
Views: 3,537
Posted By Pamelamary
Re: Looking for hope

Hi Benk,
I am another living well with stage IV, over 4 years since diagnosis with mets to bones and liver. The Taxotere did well for me and now I am stable on Herceptin (and Tamoxifen). I haven't...
Forum: her2group 05-26-2016, 06:23 PM
Replies: 33
Views: 3,192
Posted By Pamelamary
Re: 12 years Stage 4 - Still A-OK

Well done, Kim! We're doing the happy dance with you.
Best wishes..... Pam
Forum: her2group 05-17-2016, 08:53 PM
Replies: 4
Views: 1,327
Posted By Pamelamary
Re: tamoxifen side effects?

Hi Patrice,
I have been stable on Herceptin and tamoxifen for a long time now. The Tamoxifen doesn't worry me too much - if you discount the fact that I am having the world's longest menopause! Hot...
Forum: her2group 05-17-2016, 08:49 PM
Replies: 10
Views: 1,917
Posted By Pamelamary
Re: What next?

No advice, Amy, but sorry to hear your news and will be thinking of you. Sometimes scans seem to bring up stuff that perhaps we wish we didn't know... so hard when you are feeling well.
Best...
Forum: her2group 05-15-2016, 12:55 AM
Replies: 9
Views: 1,812
Posted By Pamelamary
Re: New person to site

Welcome to the site, though of course I am sorry you have had to join us. I don't have lung mets, but there are others here who should be able to chime in with some support. Have you spoken to your...
Forum: her2group 05-10-2016, 12:49 AM
Replies: 10
Views: 2,185
Posted By Pamelamary
Re: Stage 4 after 2 yrs being stage 2

Kathy, sorry to hear you have joined the metster club. The first shock of rediagnosis is terrible, but we are a resilient bunch and hope to continue living as best we can. There is hope in the...
Forum: her2group 04-21-2016, 02:03 AM
Replies: 22
Views: 3,756
Posted By Pamelamary
Re: Five Years Stage IV

Thanks Amy! and congratulations on reaching this cancerversary. May there be many more.
Best wishes.... Pam
Forum: her2group 04-21-2016, 02:00 AM
Replies: 17
Views: 2,821
Posted By Pamelamary
Re: Today marks 9 years living with cancer; stage 4

Flori, you have made me cry - but that is a good thing!
Congratulations on making 9 years and best wishes..... Pam
Forum: her2group 03-31-2016, 11:35 PM
Replies: 13
Views: 3,237
Posted By Pamelamary
Re: Thinking of SoCalGal

Great news Flori!
Forum: her2group 03-03-2016, 12:13 AM
Replies: 15
Views: 4,271
Posted By Pamelamary
Re: The metastatic breast cancer alliance

Flori,
I think de novo means stage IV right from the start? I'm with you on the bitchy gene - only the good.......
Regards... Pam
Forum: her2group 03-01-2016, 11:23 PM
Replies: 2
Views: 2,318
Posted By Pamelamary
Re: trial of exercise2 inhibit metastases in Stage IV bc pat-

I doubt an answer will be coming soon. Meanwhile, I continue with my at least 30 minutes of "vigorous" exercise daily - though it didn't prevent recurrence 4 years ago Makes me feel good though....
Forum: her2group 03-01-2016, 11:15 PM
Replies: 15
Views: 4,271
Posted By Pamelamary
Re: The metastatic breast cancer alliance

Thanks Andi. This came up on an Aussie based Facebook group today and I am interested. Need to see whether they are interested in us, the down under metsters.... Could be problematic too, in that I...
Forum: her2group 02-24-2016, 10:24 PM
Replies: 36
Views: 6,180
Posted By Pamelamary
Re: SoCalGal feeling So-so

Flori,
Sorry to hear your news. Just seconding Laurel's comments - the pain management must be your priority at the moment. I hope things turn around for you; you certainly deserve a break!...
Forum: her2group 02-19-2016, 07:05 PM
Replies: 20
Views: 4,967
Posted By Pamelamary
Re: 7 years today!!!

Wonderful news! We do need to hear these reports....Pam
Forum: her2group 02-19-2016, 07:01 PM
Replies: 1
Views: 2,374
Posted By Pamelamary
Re: Herceptin/Perjeta only

Dear PMK,
There are many of us stage IV women who remain stable on just the anti-Her2 drugs. As the side effects are more tolerable, relax and enjoy the break. May it last a very long time....
Forum: her2group 02-18-2016, 07:47 PM
Replies: 17
Views: 3,994
Posted By Pamelamary
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

Hi Tracy,
I am still on herceptin, with no immediate plans for stopping _ it's only been 4 years. However, StephN is one of the true "exceptional responders", off herceptin since 2008. I hope you...
Forum: her2group 02-16-2016, 10:50 PM
Replies: 17
Views: 3,994
Posted By Pamelamary
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

Thanks Lani! My ambition is to be an exceptional responder.
Forum: her2group 02-13-2016, 10:31 PM
Replies: 9
Views: 2,548
Posted By Pamelamary
4 years at Stage IV.

Another cancerversary.... Hard to believe it has been so long. After a bad first year in 2012, I have been stable on Herceptin and Tamoxifen. I have been living well, with only the irritating...
Forum: her2group 02-02-2016, 11:22 PM
Replies: 380
Views: 77,592
Posted By Pamelamary
Re: Calling all stage iv sisters

Sorry to hear this Jackie! However, as someone living well after 4 years with bone and liver mets, I am sure you can deal with what is in store. After so many health related problems, you certainly...
Forum: her2group 02-02-2016, 11:16 PM
Replies: 12
Views: 4,095
Posted By Pamelamary
Re: Small lumps found between neck and shoulders...

Diane, try not to panic. Your lymph nodes can and do enlarge due to infection, so don't assume the worst. However, I believe in seeing my doctor with any concerns I have. Your peace of mind is...
Forum: her2group 01-16-2016, 12:55 AM
Replies: 24
Views: 6,905
Posted By Pamelamary
Re: Weekly Taxol for Stage IV

Hi Tracy,
What about Abraxane? - I believe that it is the most tolerable taxane. I sympathise with your dread of weekly treatments, but have heard taxol is easier than taxotere (which I hated,...
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