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Search took 0.02 seconds. Search: Posts Made By: msmanuf
Forum: her2group 06-03-2014, 10:36 AM
Replies: 5
Views: 1,625
Posted By msmanuf
Re: Research on Vaginal Dryness drug

Hi,

I just responded to the survey. I can't wait to get the call. Yippee, what a wonderful project.
Forum: her2group 10-27-2013, 08:33 AM
Replies: 33
Views: 2,549
Posted By msmanuf
Re: 7 Years Out Today!

Wonderful !!! Gives me hope
Forum: her2group 10-27-2013, 08:21 AM
Replies: 20
Views: 3,826
Posted By msmanuf
Re: Power Port...No blood return

My port would get clogged quite a bit. I had to move my arms (the Chicken Dance) worked the best. lol It was not unusual for me to put my arms in multiple positions to get the port to work. Good...
Forum: her2group 09-12-2013, 11:46 AM
Replies: 7
Views: 4,569
Posted By msmanuf
Re: Vaginal dryness without Estrogen therapy

My gyno called a pharmacist that mixes up a salve that stimulates the blood vessels in and around the vaginal area as well as the clitoris. You do need a prescription and it is a bit pricy $70 for...
Forum: her2group 08-05-2013, 08:19 AM
Replies: 29
Views: 3,786
Posted By msmanuf
Re: Avastin approved!!

That is wonderful !!! Good luck !!!
Forum: her2group 07-10-2013, 01:37 PM
Replies: 29
Views: 3,002
Posted By msmanuf
Re: Not any kinds of scans will be done!

I requested scan and my oncologist did them. I haven't had a bone scan yet so, I am going to ask him when I see him on the 19th. My left knee and leg is very painful. Will let you know
Forum: her2group 07-10-2013, 01:09 PM
Replies: 43
Views: 6,295
Posted By msmanuf
Re: My Wife Rachel Was Just Diagnosed With HER-2+ Breast Cancer (Please Help ...)

My question is I had 6 mo. of TCH and 6 mo. of Herpecin. My oncologist said the two totaled would count as having Herpecin 1 yr. total. Is this correct?
Forum: her2group 07-08-2013, 01:55 PM
Replies: 25
Views: 3,096
Posted By msmanuf
Wink Re: So Sick of Anxiety

I know how you feel about anxiety, but on April 9th 2013 while have a CT Scan I turned all that over to God. Although I still have anxiety and cry; this is normal.

My stats are not posted,...
Forum: her2group 04-27-2013, 04:52 PM
Replies: 31
Views: 3,980
Posted By msmanuf
Re: No tests scheduled after chemo is finished.

Hi,

I did have a brain and Pet scan both came back normal. It gave a sense of comfort knowing I was ok. Of course no one knows why a stage 1 will metastasize or why a stage 3 never goes any...
Forum: her2group 04-08-2013, 01:34 PM
Replies: 31
Views: 3,980
Posted By msmanuf
Re: No tests scheduled after chemo is finished.

I called my Dr. today and he agreed to a brain scan and a pet scan. I will continue to ask for them every 3-6 mo. like you I will make up symptoms. This whole lack of procedures makes me feel like...
Forum: her2group 04-08-2013, 10:28 AM
Replies: 31
Views: 3,980
Posted By msmanuf
Unhappy No tests scheduled after chemo is finished.

Hi,

I finished all my treatment and was told by my oncologist that they do not do Cat. Pet or Brain scans until some symptoms appear. I told him that is ridiculous. How am I suppose to know if...
Forum: her2group 01-16-2013, 12:37 PM
Replies: 25
Views: 2,975
Posted By msmanuf
Re: Did you lose or gain weight while on chemo?

I gained about 30 pounds. I was always hungry.
Forum: her2group 01-16-2013, 12:32 PM
Replies: 15
Views: 1,867
Posted By msmanuf
Re: Any Interest in a Her2 Group Meet-Up in Fl in 2013?

Hi, I am basically a stranger to everyone, but I would love to meet women with this terrible disease. I am available anytime. I live in NE PA in case anyone from the area would like to talk, get...
Forum: her2group 08-11-2012, 07:27 AM
Replies: 8
Views: 1,484
Posted By msmanuf
Re: Is Radiation Needed?

Hi,

Looks like Rad for me. The battle rages on. My Onc. said I have a 90& survival rate. Makes me very hopeful. Has anyones Onc. give any info on the cure?

Thanks,

Mary Jo
Forum: her2group 08-09-2012, 08:02 PM
Replies: 8
Views: 1,484
Posted By msmanuf
Re: Is Radiation Needed?

Hi,

Thanks for all the input it was very informative. I have read different opinions on Rad., but listening to everyone makes me retink my decision.
Forum: her2group 08-06-2012, 05:15 PM
Replies: 8
Views: 1,484
Posted By msmanuf
Question Is Radiation Needed?

I am currently taking TCH chemo for HER+. My tumor was 1 cm with no node involvement. I had a lumpectomy and the surgeon assured me that all the cancer was removed.
After reading a lot of articles...
Forum: her2group 06-28-2012, 09:21 AM
Replies: 60
Views: 7,893
Posted By msmanuf
Re: INFUSING Perjeta as we speak!!! I am blessed

Congratulations. You give me hope.
Forum: her2group 06-28-2012, 09:20 AM
Replies: 60
Views: 7,893
Posted By msmanuf
Re: INFUSING Perjeta as we speak!!! I am blessed

Can someone please tell me does all HER2+ matastisize? I am so scared.
Forum: her2group 06-26-2012, 02:37 PM
Replies: 11
Views: 2,570
Posted By msmanuf
Question Re: I strongly recommend you read this article (even if you have to struggle a bit)

Hi,

I just want to cry this disease has me confused. Right now I have 6 rounds of TCH with Herceptin as well as Herceptin every week between the TCH. Triple Positive, 1 cm tumor no node...
Forum: her2group 06-07-2012, 01:27 PM
Replies: 34
Views: 4,408
Posted By msmanuf
Re: !!! Pertuzumab may be approved by FDA as early as Friday !!!!

wooo hoooo congrats

Mary Jo
Forum: her2group 06-07-2012, 01:25 PM
Replies: 34
Views: 4,408
Posted By msmanuf
Re: !!! Pertuzumab may be approved by FDA as early as Friday !!!!

Hi, not sure what I am, but first line with mets does that mean it has moved somewhere else in the body? Mine hasn't moved anywhere else. Suppose to start tch tomorrow.
Forum: her2group 06-07-2012, 10:49 AM
Replies: 34
Views: 4,408
Posted By msmanuf
Re: !!! Pertuzumab may be approved by FDA as early as Friday !!!!

Will this be a first or second line med?

Thanks,

Mary Jo
Forum: her2group 06-07-2012, 10:05 AM
Replies: 34
Views: 4,408
Posted By msmanuf
Re: !!! Pertuzumab may be approved by FDA as early as Friday !!!!

Wow !! What exciting news. I haven't started Herpecin yet, called my onco to see if I would be eligible if it is approved tomorrow. Praying for everyone. I am very early stage so, hopefully I...
Forum: her2group 05-29-2012, 02:54 PM
Replies: 5
Views: 1,581
Posted By msmanuf
Re: Mary Jo NE PA/BiPolar

Thanks for your responses. My oncologist said I will continue my meds..Phew that was good news. Also I am her2+ ER+ PR+
0 node involvement, 1 cm tumor. I am so happy that new therapies are...
Forum: her2group 05-29-2012, 11:06 AM
Replies: 5
Views: 1,581
Posted By msmanuf
Re: Mary Jo NE PA/BiPolar

Thank you for your response. All of this is happening so fast it's a world wind that keeps me busy. Which is good.
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