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Search took 0.01 seconds. Search: Posts Made By: dberg
Forum: her2group 10-10-2012, 06:35 PM
Replies: 8
Views: 2,672
Posted By dberg
Re: Post Femara and hair loss

I think there are a few of us asking about post AIs, femara, or otherwise. I recently finished my 5 years of arimidex and wonder about side effects or even positive effects. So far I haven't heard...
Forum: her2group 10-05-2012, 07:08 PM
Replies: 4
Views: 1,591
Posted By dberg
Re: End of Arimidex -- Side Effects???

Wondering the same thing myself! I was on tamoxifen for 2 years, then switched to arimidex for 5. My last pill was 10 days ago. I didn't even think about side effects from withdrawl. Hmm, maybe that...
Forum: her2group 09-08-2011, 07:30 PM
Replies: 21
Views: 3,302
Posted By dberg
Re: Any other stage iii er pr positives?

Rare? I have NEVER heard that before! I was dx in 2004, triple positive, 2/13 nodes+. I got herceptin after chemo and rads because that was when they closed the clinical trial and it became standard...
Forum: her2group 08-18-2011, 08:01 PM
Replies: 6
Views: 2,050
Posted By dberg
Re: vitamin D supplementation prevents AI-treatment related bone loss

Becky,
You and I have been in this game for about 7 years now. Summer 2004 for me.

I'm on Zometa every 6 months. I've probably had 5 infusion by now and my last one was just like the first...all...
Forum: her2group 05-22-2011, 09:24 AM
Replies: 39
Views: 7,175
Posted By dberg
Re: Reconstruction

I see the tx in your user name and can't help but think you might be in Texas. I live in San Antonio and want you to know there is a plastic surgery group here (PRMA) that deals extensively with...
Forum: her2group 05-09-2011, 04:22 PM
Replies: 3
Views: 1,107
Posted By dberg
generic arimidex

It's been a very long time since I have posted, but I knew exactly where to ask this question because this site was a godsend for me 6 years ago.
After 2 years on Tamoxifen I have been on Arimidex...
Forum: her2group 04-09-2009, 07:41 PM
Replies: 6
Views: 1,716
Posted By dberg
zometa infusion

Can you fill me in on the benefits of zometa please? I'm not very compliant with my fosamax and every morning as I run in the dark I promise I'll do better. My onc briefly mentioned it as a...
Forum: her2group 03-23-2009, 07:50 PM
Replies: 1
Views: 1,140
Posted By dberg
wow

It took me a couple of runs through to understand it all. It caught my eye because I had her2+ in 2004, and melanoma in situ in 2007.
Forum: her2group 01-14-2009, 09:03 PM
Replies: 2
Views: 1,356
Posted By dberg
fosamax vs zometa

I have the opportunity to go from once weekly fosamax to zometa every 6 months. I'm not very compliant with the fosamax and my onc has said this is an option. Has anyone made this switch? I've read a...
Forum: her2group 09-05-2008, 08:07 PM
Replies: 4
Views: 1,182
Posted By dberg
vaginal atrophy good news

I decided to see a GYN oncologist for my annual checkups. He is a godsend. He is upbeat and very positive about using estrogen creams for atrophy. He did admit my onc probably wouldn't like it, but...
Forum: her2group 07-29-2008, 08:22 PM
Replies: 1
Views: 903
Posted By dberg
oophorecotomy after DIEP/TRAM

Has anyone had DIEP or TRAM and then had their ovaries out at a different time? I know laparoscopic surgery for ovary removal goes through the navel and mine is not really "my navel " after DIEP.
Forum: her2group 07-08-2008, 08:11 PM
Replies: 9
Views: 1,016
Posted By dberg
4 years...shouldn't I be doing something?

OK, I'm at 4 years since dx. I'm doing fine, but every once in awhile I feel like I should be doing something, taking something, more involved in research. I don't hover nearly as much over ASCO,...
Forum: her2group 06-23-2008, 04:58 PM
Replies: 5
Views: 1,456
Posted By dberg
after 4 years...then what?

My onc doesn't seem to be all that interested in me. I'm doing fine, with no problems, which may be the problem! He seems to pooh-pooh any questions I have about recent developments.

I'm...
Forum: her2group 06-23-2008, 04:48 PM
Replies: 10
Views: 2,004
Posted By dberg
I had a very benign looking thing removed on my...

I had a very benign looking thing removed on my leg earlier this year, by my choice, and it ended up being melanoma. My dermatologist was not impressed, but I followed the "ABCD" and insisted it be...
Forum: her2group 05-02-2008, 08:22 PM
Replies: 2
Views: 1,129
Posted By dberg
switch from fosamax?

I'm not a compliant patient when it comes to fosamax...terrible constipation and a pain in the butt to take before I even get my morning coffee.

I'm seeing my onc next month and want to know...
Forum: her2group 03-10-2008, 05:04 PM
Replies: 20
Views: 3,933
Posted By dberg
creams

I am ER+/PR+ and posted a similar question several months ago. I was on tamoxifen and the gyn onc I visited was gung ho for me to give premarin cream a try. I was very, very happy because it helped...
Forum: her2group 02-23-2008, 09:33 PM
Replies: 14
Views: 2,009
Posted By dberg
Wow, I can't help but be a little down. I was...

Wow, I can't help but be a little down. I was treated with "just" AC/T and then Herceptin, 2 months after the trial data was released. I'm very happy for trials the new girls will be offered though.
Forum: her2group 01-25-2008, 08:59 PM
Replies: 18
Views: 3,511
Posted By dberg
breast cancer and melanoma

I had a very benign looking freckle removed on my leg, at my insistence because it grew so quickly. I just got the message from my PCM that it is melanoma in situ. I was completely dumbfounded...
Forum: her2group 10-14-2007, 04:01 PM
Replies: 27
Views: 3,551
Posted By dberg
I spent the better part of my 20s, 30s and 40s...

I spent the better part of my 20s, 30s and 40s taking really good care of myself. I ran marathons, watched what I ate, didn't smoke, breast fed my three kids, etc. It was a lifestyle that was easy...
Forum: her2group 09-08-2007, 07:44 PM
Replies: 38
Views: 6,165
Posted By dberg
It's been several weeks since I posted, but...

It's been several weeks since I posted, but wanted you all to know what happened after my onc referred me to a GYN oncologist. This guy told me I have the vagina of a 60-70 year old. I'm 48. He...
Forum: her2group 09-08-2007, 07:29 PM
Replies: 13
Views: 3,988
Posted By dberg
I had pain in my tailbone for about 6 months...

I had pain in my tailbone for about 6 months before I finally mentioned it to my onc. I figured it had something to do with chemo. He was horrified that I didn't mention it sooner. Turned out to be...
Forum: her2group 08-10-2007, 05:40 PM
Replies: 29
Views: 4,887
Posted By dberg
Oh yes! I understand that feeling. I told my...

Oh yes! I understand that feeling. I told my husband I was no longer contributing to my teacher retirement account until further notice! I was ready to spend my IRA for reconstruction too. Somehow,...
Forum: her2group 07-15-2007, 07:57 PM
Replies: 15
Views: 2,063
Posted By dberg
Like Hopeful I spent many summer nights in the...

Like Hopeful I spent many summer nights in the 60s chasing the mosquito trucks in Florida! All the kids in the neighborhood joined in. What were our parents thinking?
Forum: her2group 07-07-2007, 07:40 PM
Replies: 38
Views: 6,165
Posted By dberg
OK, the latest. I spoke to my onc today and he...

OK, the latest. I spoke to my onc today and he said he prescribed estrogen cream ONLY for those who had tried EVERYTHING else because we just don't know how much is absorbed. He also said if I wanted...
Forum: her2group 06-30-2007, 09:19 AM
Replies: 38
Views: 6,165
Posted By dberg
estrogen creams

I was dx three years ago at age 45. I have tried every lubricant under the sun and and am suffering with vaginal atrophy. I finally mentioned it to my onc at my last visit and he really surprised me...
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