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Search: Posts Made By: MaineRottweilers
Forum: her2group Yesterday, 04:51 PM
Replies: 9
Views: 178
Posted By MaineRottweilers
Re: Need input, KADCYLA or TAS116?

Flori, in a million years I would not attempt to sway you one way or another over treatment. You've been there and done that a number of times and I can only imagine what it is like to agonize over...
Forum: her2group 01-17-2018, 06:04 PM
Replies: 31
Views: 3,029
Posted By MaineRottweilers
Re: Amy? (Mtngrl)

My heart hurts for Amy's family. She was an inspiration and a valuable resource to many on this board. She was my virtual friend but a friend no less. She will be missed. I'd be lying if I didn't...
Forum: her2group 01-12-2018, 03:56 PM
Replies: 128
Views: 38,697
Posted By MaineRottweilers
Re: Need input!

Olive Oil, YUM! Salt and a little red pepper ground over the top, dip bread and you're in Heaven and lowering bilirubin. A few tablespoons will not be enough. :)

I'm still flying under the...
Forum: her2group 01-11-2018, 04:39 PM
Replies: 128
Views: 38,697
Posted By MaineRottweilers
Re: Need input!

Bummer, Juls. I can hear your frustration. Are you doing anything to support your liver so you can get back on Kadcyla post haste?

Beets, milk thistle, radishes and barley are things I have...
Forum: her2group 01-11-2018, 04:32 PM
Replies: 10
Views: 328
Posted By MaineRottweilers
Re: Recurrence in Neck Lymph Nodes?

Sorry you have to even think about this. Waiting for results and stewing over the possibilities and what if is sooooo stressful. Offering you prayers and positive energy is all I can do, they are...
Forum: her2group 01-10-2018, 05:34 PM
Replies: 25
Views: 1,431
Posted By MaineRottweilers
Re: Senior Member Check-In!

Flori, you are seriously me hero and inspiration. Happy New Year, everyone!
Forum: her2group 01-10-2018, 05:28 PM
Replies: 128
Views: 38,697
Posted By MaineRottweilers
Re: Need input!

Juls, that's the way of trials, you never really know if it's the right thing. However, your willingness to contribute to the body of evidence (good, bad or indifferent) is pretty heroic, in my...
Forum: her2group 01-10-2018, 05:24 PM
Replies: 9
Views: 425
Posted By MaineRottweilers
Re: Preventing re-occurance & new BC question

Hey, Jessica, do you have a link to the Thrive products you spoke of?
Forum: her2group 01-10-2018, 05:22 PM
Replies: 31
Views: 3,029
Posted By MaineRottweilers
Re: Amy? (Mtngrl)

Happy New Year, everyone! Amy, I'm thinking of you.
Forum: her2group 11-30-2017, 01:31 PM
Replies: 12
Views: 726
Posted By MaineRottweilers
Re: Thunderclap headaches anybody?

Fabuuuuulous!!!!!!!!!!!!
Forum: her2group 11-26-2017, 05:30 AM
Replies: 6
Views: 583
Posted By MaineRottweilers
Re: 6 Years Out

I'm glad you are out there living your beautiful, orgasmic life! Congratulations on reaching six years, congratulations on your brand new miracle and THANK YOU for coming back on your Cancerversary...
Forum: her2group 11-26-2017, 05:26 AM
Replies: 12
Views: 726
Posted By MaineRottweilers
Re: Thunderclap headaches anybody?

Brenda, I have no experience at all with the headaches but plenty of experience with worry. I know exactly where you are and how you are feeling and while the posts above bring great relief, there's...
Forum: her2group 11-26-2017, 05:18 AM
Replies: 25
Views: 1,431
Posted By MaineRottweilers
Re: Senior Member Check-In!

Jessica, happy Thanksgiving to you and everyone else too. This group has been a life line and sounding board. I feel very blessed to have been a part of it through the years.
Forum: Herceptin / Tykerb 11-08-2017, 12:44 PM
Replies: 2
Views: 592
Posted By MaineRottweilers
Re: Perjeta with Herceptin and taxol second time round

At my first Dx, I had TCH only. When I was re-Dx'd in 2015, I was put on THP. Mets reduced so T was dropped and I have been on HP ever since. Things are still looking stable for me.

As far as I...
Forum: her2group 11-03-2017, 06:05 PM
Replies: 14
Views: 1,462
Posted By MaineRottweilers
Re: Another year

Super happy to hear you are doing so well! Continued health for you.
Forum: Herceptin / Tykerb 10-30-2017, 04:37 PM
Replies: 686
Views: 173,174
Posted By MaineRottweilers
Re: Please post your two cents on Herceptin "side effects" real or perceived!

My experience is similar. I have been on it for two years and have wicked horrible muscle cramping, particularly feet and legs. My feet, tingle and burn. My nose drips continually, I sneeze a lot...
Forum: her2group 10-30-2017, 04:32 PM
Replies: 31
Views: 3,029
Posted By MaineRottweilers
Re: Amy? (Mtngrl)

Glad you were able to check in. I think of you daily. I hope you find something that works and doesn't make you feel to terrible.
Forum: her2group 10-30-2017, 04:30 PM
Replies: 13
Views: 1,530
Posted By MaineRottweilers
Re: Any good chemos I could try?

Amy,

I don't have anything to add, I just wanted to let you know that I really hope you find something. <3
Forum: her2group 10-25-2017, 12:23 PM
Replies: 18
Views: 1,494
Posted By MaineRottweilers
Re: 11 years out!

Congratulations, Caya!
Forum: her2group 10-25-2017, 12:21 PM
Replies: 3
Views: 1,065
Posted By MaineRottweilers
Re: Navelbine

Katherine,

I have no input on Navelbine but I did want to wish you well. Praying this treatment will be your miracle, many years of happy living.
Forum: her2group 10-19-2017, 02:52 PM
Replies: 12
Views: 5,078
Posted By MaineRottweilers
Re: Panicking/Wimping out

I'm sorry you've had such poor service and reassurances from your medical team. I imagine it must be very frustrating. I'm not sure there is any way to verify metastasis without a biopsy.
Forum: her2group 10-11-2017, 06:20 AM
Replies: 6
Views: 1,580
Posted By MaineRottweilers
Re: Anyone switch from Arimidex to tamoxifen?

Dee, I have not made that switch but I do have some experience with SEs from Arimidex. It was darn near crippling the first time I took it. I went off it for a month and restarted it and things...
Forum: her2group 10-10-2017, 09:42 AM
Replies: 128
Views: 38,697
Posted By MaineRottweilers
Re: Need input!

Pretty smoothly for the most part. GI issues and the itch they say is not related to Perjeta and is not a neuropathy...even though it follows a nerve up my left arm and across my collar bone. I'll...
Forum: her2group 10-10-2017, 09:37 AM
Replies: 13
Views: 2,047
Posted By MaineRottweilers
Re: Decisions, decisions

Hi, Joan.

Ten years using the same arm, ten years! You give me hope.

I got my second port placed, more or less in the exact same spot as my first port. My surgeon was a little squeamish...
Forum: her2group 10-10-2017, 09:31 AM
Replies: 42
Views: 8,302
Posted By MaineRottweilers
Re: Phooey--Brain Mets

Amy! Amy! Amy! I was so worried for you. I am thrilled you have checked in. R&R, lady, R&R! Stay strong. Much love.
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