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Search took 0.01 seconds. Search: Posts Made By: romo9
Forum: her2group 06-27-2008, 11:33 PM
Replies: 91
Views: 12,373
Posted By romo9
18 positive nodes - now 3.8 years NED . Great to...

18 positive nodes - now 3.8 years NED . Great to be here ! Romo9
Forum: Profiles In Courage 04-19-2008, 11:24 PM
Replies: 6
Views: 8,795
Posted By romo9
Dear Barb do you think you should post your...

Dear Barb do you think you should post your question in the her2 group forum for a reply? Personally I would not come off if I was coping with the treatment! Greetings from Melbourne! Romo
Forum: her2group 03-06-2008, 11:07 PM
Replies: 3
Views: 1,846
Posted By romo9
Thumbs up Many thanks!

I had 18 positive nodes and always felt i was not on a good wicket - now i can think more positively thanks to you Lani! Romo
Forum: her2group 12-28-2007, 11:02 AM
Replies: 198
Views: 30,146
Posted By romo9
Diagnosed oct 2004 her+++ 3cm tumour 18 positive...

Diagnosed oct 2004 her+++ 3cm tumour 18 positive nodes. Chemo,radiotherapy. herceptin 2 years. 3 years NED. Romo9
Forum: her2group 07-24-2007, 05:14 PM
Replies: 19
Views: 2,679
Posted By romo9
18 nodes too

Hi ! I am also in the same situation as you with 18 positive nodes. Its now 2 years and nine months since my diagnosis.
Pehaps this may help.
There are persons who shape their lives by the fear of...
Forum: her2group 06-23-2007, 07:52 PM
Replies: 6
Views: 1,267
Posted By romo9
Thanks

Dear allthanks for your imput i will see the doctor in 6 weeks to check! Romo
Forum: her2group 06-21-2007, 07:27 PM
Replies: 6
Views: 1,267
Posted By romo9
local recurrence after radiotherapy?

Dear all, I could really do with some advice. I was diagnosed in oct 04 with a 3cm her+++ tumour and 18 positive nodes. Prior to diagnosis I had cording in my axilla and a red flush on my breast. The...
Forum: her2group 06-05-2007, 08:53 PM
Replies: 1
Views: 957
Posted By romo9
Help!

When I was diagagnosed with BC in oct 2004 I had cording in my axilla and a red flush on my breast for 3 months preceeding diagnosis( I was told it was Mondors disease and / or hormonal changes and...
Forum: her2group 05-31-2007, 07:33 PM
Replies: 18
Views: 2,463
Posted By romo9
starting late

Hi! I started herceptin after finishing chemo and radiotherapy. I have actually been on it for 2 years now finishing this month. I was diagnosed in oct 2004 with a 3mm tumour and 18 positive nodes....
Forum: her2group 05-14-2007, 05:50 PM
Replies: 5
Views: 1,268
Posted By romo9
exercise

Dear Erin everyone is different of course -but I continued my cadio workout (for shorter duration) throughout my chemo and radiotherapy and went back to full time when I had finished treatment. I had...
Forum: her2group 04-29-2007, 08:08 PM
Replies: 5
Views: 1,107
Posted By romo9
Mythbusters!

Thet showed on Mythbusters that there is no problem!! Regards Romo
Forum: her2group 02-12-2007, 08:34 PM
Replies: 15
Views: 2,032
Posted By romo9
Dear Joe since change over of server I can no...

Dear Joe since change over of server I can no fully longer accesss the site on Safari . The Home page loads but the forum pages etc will not?
I am currently using firefox - is this permanent? Many...
Forum: her2group 02-03-2007, 08:37 PM
Replies: 15
Views: 2,105
Posted By romo9
My 73 year old mother has better bones than...

My 73 year old mother has better bones than me(I'm 49)!! She and I had DEXA scans around the same time she is fine I have osteopenia. I use a cross trainer 5 times a week,walk once a week and do...
Forum: her2group 11-15-2006, 07:26 PM
Replies: 18
Views: 1,957
Posted By romo9
Diagnosed Oct 2004 Stage 2/3 18/25 positive...

Diagnosed Oct 2004 Stage 2/3 18/25 positive nodes. No mets. Still on herceptin which I started in June 2005. NED.Will finish herceptin august 2007. Romo
Forum: her2group 11-06-2006, 01:44 AM
Replies: 37
Views: 4,172
Posted By romo9
I have never had problems with blood pressure...

I have never had problems with blood pressure 110/70 at the most. When I have it taken at the beginning of the Hercetin infusion it is fine but if the nurse waits til the end its 130/80 and stays...
Forum: her2group 10-25-2006, 03:36 PM
Replies: 5
Views: 930
Posted By romo9
Dear Tammy I had alot of pain after my port was...

Dear Tammy I had alot of pain after my port was inserted and was told that it was ok and it would settle in time. The symptoms were more aggrevating than the chemo!After just one treatment they could...
Forum: her2group 08-31-2006, 02:33 AM
Replies: 7
Views: 1,516
Posted By romo9
Thanks Its just that a friend said that there was...

Thanks Its just that a friend said that there was now a new one on trial that is ok for women that have had BC? ROMO
Forum: her2group 08-30-2006, 09:42 PM
Replies: 7
Views: 1,516
Posted By romo9
HRT and HER!

Just found out that I have osteopenia in my back despite having "normal" Hip density. As I exercise ALOT and have sufficient calcium etc I am wondering about HRT if you are purely HER+++? Does...
Forum: her2group 08-09-2006, 07:57 PM
Replies: 5
Views: 2,231
Posted By romo9
Thanks Guys. Yes I do mean LVEF and no not on any...

Thanks Guys. Yes I do mean LVEF and no not on any other drugs. But my glomerular filtration rate is also showing changes that could "suggest" chronic renal disease?! Never had that problem before...
Forum: her2group 08-09-2006, 03:37 PM
Replies: 5
Views: 2,231
Posted By romo9
High Cholesterol and Herceptin - need advice

Dear All - I have been on Herceptin for a year now for treatment of a primary, and have decided to go on for a second year. Foolishly I thought I would go for a "normal" check of Blood pressure and...
Forum: her2group 08-04-2006, 04:56 PM
Replies: 14
Views: 2,548
Posted By romo9
I am on my second year of herceptin for primary...

I am on my second year of herceptin for primary B.C. Cant say I have noticed any changes at all. If anything my cryptic crossword skills have improved - time spent waiting in doctors surgeries put to...
Forum: her2group 07-02-2006, 10:33 PM
Replies: 20
Views: 3,012
Posted By romo9
Am just about to start 2nd year of Herceptin on...

Am just about to start 2nd year of Herceptin on my insistence ( and my money as no funding in Australia unless you have secondaries). I had 3mm tumour 18/25 postive nodes Her+++. A/C + Taxol + rads...
Forum: her2group 06-14-2006, 04:08 PM
Replies: 6
Views: 1,574
Posted By romo9
Dear Lani I am a bit confused as we are always...

Dear Lani I am a bit confused as we are always led to believe the more lymph nodes positve the worse the prognosis? can anyone shed some light on this? thanks RO
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