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Forum: her2group 12-14-2011, 11:58 AM
Replies: 36
Views: 4,614
Posted By TSund
Re: trends that weight management is going to be important in treating HER2-positive

I'd like to know people's thoughts about this study vs weight gain with the estrogen fighting drugs (particularly arimidex, femara, aromasin). I seem to be seeing some pretty strong anecdotal...
Forum: her2group 02-16-2011, 07:32 PM
Replies: 14
Views: 2,298
Posted By TSund
Re: Question: saliva

subscribe thread
Forum: her2group 09-06-2010, 12:59 PM
Replies: 139
Views: 19,534
Posted By TSund
Re: Joe passed on this evening

blessings to a truly wonderful angel. My sympathy to Christine and all of her family. Thank-you for sharing so much with all of us.
Terri
Forum: her2group 07-21-2010, 11:54 AM
Replies: 44
Views: 5,083
Posted By TSund
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

Kathy's post about her swimming being limited above brings back the issue of a) excercize being a proven benefit for bc, with an added benefit for er+ cancers! and b) better statistics for thin women...
Forum: her2group 07-06-2010, 09:14 PM
Replies: 44
Views: 5,083
Posted By TSund
Re: Half of breast cancer patients treated with antihormonals are noncompliant ie, do

I am interested in this thread. I am very concerned about the suffering that women have while on these drugs. Ruth has only been on Armidex for a short time, (after a couple years on Tamoxifen,...
Forum: her2group 05-11-2010, 04:38 PM
Replies: 10
Views: 2,209
Posted By TSund
Re: new trial proposed--diuretics for AI induced arthralgias (aches and pains)

Caya,

Are you having trouble with aches and pains from the AI even with your old diuretic? I guess if you've been on it for a long time you don't know if they would be worse without it...
Forum: her2group 05-10-2010, 06:43 AM
Replies: 12
Views: 2,014
Posted By TSund
Re: Recurrence vs. Metastatic

However, there have been a few cases right here on this board who have had extremely long remissions and still to date have no cancer...perhaps this points towards the possibility that a few...
Forum: her2group 05-10-2010, 06:38 AM
Replies: 10
Views: 2,209
Posted By TSund
Re: new trial proposed--diuretics for AI induced arthralgias (aches and pains)

Sassy,

I am happy to see your reply! How did you get going early on this...was your onc on top of this?

Also, what dosage of lasix do you take and are there any side effects from the...
Forum: her2group 05-03-2010, 04:11 PM
Replies: 12
Views: 2,014
Posted By TSund
Re: Recurrence vs. Metastatic

Hi Shonda,

Dr. O is Ruth's oncologist; perhaps we have sat in the same waiting room at Baylor?

Wishing you the best...

Terri
Forum: her2group 05-03-2010, 04:03 PM
Replies: 10
Views: 2,209
Posted By TSund
Re: new trial proposed--diuretics for AI induced arthralgias (aches and pains)

Interesting Lani, considering the misery that AI's have caused some women. Ruth's doing pretty well so far save some stiffness in her knees.
Forum: her2group 01-10-2010, 04:31 AM
Replies: 6
Views: 1,095
Posted By TSund
Re: AI's, etc effect on estradiol

Thanks for your kind reply Becky. :)

I suspect that the efficacy of Femara and Arimidex are very similar as their mechanism is very similar. It is interesting, tho, that there is a distinction...
Forum: her2group 01-09-2010, 11:02 AM
Replies: 6
Views: 1,095
Posted By TSund
Re: AI's, etc effect on estradiol

I am interested in the sustained side effects vs efficacy also. I know you've been doing very well, but it seems so many are really suffering with these AI drugs. We met a woman on our recent cruise...
Forum: Clinical Trials 01-09-2010, 10:57 AM
Replies: 104
Views: 38,134
Posted By TSund
Re: Neratinib Clinical Trial

...and, is this something causing acidity like chemo does? Ruth would have been lost without her Omprazole during chemo, I wonder if something like this would help.
Forum: Clinical Trials 01-09-2010, 10:53 AM
Replies: 104
Views: 38,134
Posted By TSund
Re: Neratinib Clinical Trial

I also wonder if L-Glutamine would help; it is good for the stomach lining. Ruth took bentonite (clay?) at the early stages of her chemo. It held off the diarreha longer than others however she...
Forum: her2group 01-09-2010, 08:04 AM
Replies: 6
Views: 1,095
Posted By TSund
Re: AI's, etc effect on estradiol

Haven't seen it Margerie. This whole scene shocked me...but it also shocked me how much information we DON'T seem to have regarding the more specific details of these drugs.

Has there been a...
Forum: Clinical Trials 01-09-2010, 07:41 AM
Replies: 104
Views: 38,134
Posted By TSund
Re: Neratinib Clinical Trial

Are (file://\\Are) you allowed to take supplements during this trial? Perhaps a regimine of really good probiotics would help some. I'm not certain of the mechanism of this diarreha, but usually it...
Forum: her2group 01-05-2010, 09:27 AM
Replies: 6
Views: 1,095
Posted By TSund
AI's, etc effect on estradiol

Question,

Has there been clear differentiation made on how the various AI's and tamoxifen target the various kinds of estrogen? In particular, targeting estradiol, which I believe is the most...
Forum: her2group 01-05-2010, 09:16 AM
Replies: 24
Views: 2,716
Posted By TSund
Re: getting her2+ER- bc to reexpress ER & consequences more complicated than thought

Has there been any studies for fulvestrant or exemestane (Aromasin) vs the non-steroidal AI's for non-metastatic HER2 breast cancer?

I"m also not clear on where fulvestrant fits into the picure...
Forum: her2group 01-03-2010, 09:23 PM
Replies: 24
Views: 2,716
Posted By TSund
Re: getting her2+ER- bc to reexpress ER & consequences more complicated than thought

Rich,

Could you send me to the studies or articles ( or a thread here?) that reference what you said about fulvestrant being possibly better for HER2 cancer?

THanks much!

Terri
Forum: Clinical Trials 01-03-2010, 09:05 PM
Replies: 104
Views: 38,134
Posted By TSund
Re: Neratinib Clinical Trial

Kriss,

Ugh. Hang in there!

Kind of an odd "blind" trial when the side effects are so evident. Did you react upon the very first dose? How many doses did you take?

Wishing you luck,
...
Forum: her2group 11-06-2009, 07:55 PM
Replies: 2
Views: 1,813
Posted By TSund
Re: Bone mets, osteoporosis and strontium

This is interesting. I have a friend that is trying to help a woman with osteoperosis in Kosovo and cannot afford the usual bone building drugs. I will foward to her.

THanks

TRS
Forum: her2group 10-27-2009, 09:17 PM
Replies: 21
Views: 2,702
Posted By TSund
Re: for all you ER+ her2+s--some GOOD news

hmm...would love to know which chemo those that did not receive anthracyclines received. Wonder if it was TCH or similar.
Forum: her2group 10-27-2009, 09:58 AM
Replies: 18
Views: 2,468
Posted By TSund
Re: Stage 4/NED-how long did it last for you?

What a great thread. Encouraging.... You go girls!!!

It would be interesting to track the similarities if any are obvious for those with such good fortune.

TRS
Forum: her2group 10-26-2009, 10:48 PM
Replies: 26
Views: 2,883
Posted By TSund
Re: Here's the latest on TriciaK

Tricia,

Such a special soul you are. I've been keeping track of you since the 1st day I was on this board. (Maybe it's my Swedish roots!)
I wish you the very, very best.

Hugs

Terri
Forum: her2group 10-26-2009, 10:45 PM
Replies: 21
Views: 2,702
Posted By TSund
Re: for all you ER+ her2+s--some GOOD news

Lani,

Was any distinction made between ER+/PR- and ER?PR+?

THX

TRS
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