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Forum: her2group 09-14-2014, 11:24 AM
Replies: 2
Views: 1,506
Posted By jkdowl
Re: Is it time to switch from Herceptin? So confused

Thanks for the reply, my oncologist spoke to colleagues, they felt with tumor out with mastectomy, I could stay on Herceptin bc still controlling bones and rest of body. They will be watching...
Forum: her2group 09-12-2014, 04:45 AM
Replies: 2
Views: 1,506
Posted By jkdowl
Is it time to switch from Herceptin? So confused

I was dx stage 4 to bones in 2010, have been stable since then. I never had a mastectomy until 2 months ago, the left breast started increasing in size. After a biopsy that confirmed IDC ER PR neg,...
Forum: her2group 06-18-2014, 03:29 AM
Replies: 1
Views: 1,421
Posted By jkdowl
How long is it safe to stay on Zometa with bone mets

In Feb 2015, I will be on Zometa for 4 years. I have seen Friends develop femoral stress fx after being on Zometa for a long time (7 years). I have spaced the dosing out to every 12 weeks now, but...
Forum: her2group 06-27-2013, 09:36 PM
Replies: 12
Views: 1,741
Posted By jkdowl
Re: Ablation of Liver Met

Hi Karen,
Never had surgery either. I had two tumors of left breast and multiple positive lymph nodes. Mets to spine. After Taxol, herceptin and zometa for 9 months, Mammograms show some...
Forum: her2group 09-18-2012, 03:02 AM
Replies: 389
Views: 154,488
Posted By jkdowl
Re: Calling all stage iv sisters

Dx 12/10 stage4 to spine Er/Pr neg her2pos Ned since 10/11
Forum: her2group 09-18-2012, 02:49 AM
Replies: 25
Views: 3,606
Posted By jkdowl
Re: Is there benefit in surgery for stage iv's

I have a very similar story as your daughter. Diagnosed 12/10 with mets to spine (multiple vertebrae) from start. 9 months of taxol/herceptin/zometa. Stopped taxol 10/11, have been on taxol and...
Forum: Clinical Trials 05-17-2012, 07:03 PM
Replies: 22
Views: 13,186
Posted By jkdowl
Re: Johns Hopkins Her2 Vaccine Trial

Started my second cycle on vaccine trial and tolerating it well.
The doctor seems happy with my response so far. Will keep you all updated.
Forum: Herceptin / Tykerb 05-03-2012, 05:20 AM
Replies: 9
Views: 5,087
Posted By jkdowl
Re: Stable...do I stop taxol and stay on just herceptin/zometa

Kristin, I have been off Taxol and on just Herceptin with No active disease since October 2011, but I am interested in retesting pathology. Did your doc retest the previosly obtained pathology...
Forum: Clinical Trials 01-27-2012, 06:01 AM
Replies: 22
Views: 13,186
Posted By jkdowl
Re: Johns Hopkins Her2 Vaccine Trial

I had my consultation at John Hopkins last week, I am still waiting to hear about insurance approval. They are doing all the legwork for approval, I should hear by Monday. Will keep you all updated.
Forum: Clinical Trials 01-06-2012, 03:35 AM
Replies: 22
Views: 13,186
Posted By jkdowl
Re: Johns Hopkins Her2 Vaccine Trial

http://clinicaltrials.gov/ct2/show/NCT00847171?term=Emens&rank=5

This is the link to the trial. You do have to be NED. I have my first consultation in 2weeks.
Forum: Clinical Trials 12-05-2011, 04:22 AM
Replies: 22
Views: 13,186
Posted By jkdowl
Re: Johns Hopkins Her2 Vaccine Trial

How are you doing after trial? I am thinking about doing it but concerned about time commitment. I would have to fly there, spoke to Dr. Emens today about it.
Forum: Herceptin / Tykerb 08-30-2011, 02:48 PM
Replies: 9
Views: 5,087
Posted By jkdowl
Stable...do I stop taxol and stay on just herceptin/zometa

It is a good problem to have but wanted advice from people with more experience than me. My oncologist mentioned today at my visit, the option to stop taxol since my last scans were stablle. I have...
Forum: her2group 02-19-2011, 06:07 AM
Replies: 8
Views: 1,986
Posted By jkdowl
Newly diagnosed mets to spine

I just finished my 8th weekly taxol/herceptin treatment and my BS ordered a ct scan before my planned surgery. It showed multiple sclerotic areas in the thoracic and lumbar spine. I had a new bone...
Showing results 1 to 13 of 13

 
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