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Search: Posts Made By: annmask
Forum: her2group 06-04-2013, 02:31 PM
Replies: 64
Views: 17,431
Posted By annmask
Re: kadcyla side effects

Cat, I too have an adopted child- age 16 now from China. She was 11 months old when I adopted her, and 2 when I had the DCIS and mastectomy. I had my second miracle with the biological birth of my...
Forum: her2group 06-03-2013, 07:19 AM
Replies: 64
Views: 17,431
Posted By annmask
Re: kadcyla side effects

Do you know if those drugs are effective for us HER2 ladies? Trials have focused on triple neg or basel cell bc.....

Thanks for your warm and encouraging words!

Ann
Forum: her2group 06-02-2013, 06:56 PM
Replies: 64
Views: 17,431
Posted By annmask
Re: kadcyla side effects

Tykerb quit working for me quite some time ago have had it in various combos over the years, and usually get 3-5 months out of it. On to the next BBB busting targeted drug (I hope!). Kadcyla does...
Forum: her2group 05-31-2013, 09:09 PM
Replies: 64
Views: 17,431
Posted By annmask
Re: kadcyla side effects

I am going a bit non-conventional as I am not interested at all in WBR. I will have partial brain radiation to my cerebellum and brain stem. The largest and most active mets are in that area, and...
Forum: her2group 05-31-2013, 08:17 PM
Replies: 64
Views: 17,431
Posted By annmask
Re: kadcyla side effects

It seems like s/e are different for many of us. I have had 3 doses of Kadcyla, and have headache and fluish symptoms on and of the first week. I feel fatigued the first 2 weeks, well the 3rd. All...
Forum: her2group 04-20-2013, 05:46 PM
Replies: 5
Views: 1,376
Posted By annmask
Re: synergism of herceptin+pertuzumab and their effect on bc stem cells IDd

It was only approved as a first line of treatment, and many of us needing it have had many lines of treatment. Basically, the FDA is only approving drugs under the narrow parameters of the trial,...
Forum: her2group 04-11-2013, 03:54 PM
Replies: 20
Views: 4,894
Posted By annmask
Re: Tdm1/kadcyla and Tykerb

Just wondering what dose of Tykerb you take with Kadcyla, and how it is going?
Forum: General Cancer News 04-10-2013, 04:59 AM
Replies: 5
Views: 2,153
Posted By annmask
Re: Genentech’s T-DM1 Phase III study on HER2-positive mBC meets primary endpoint

The problem of crossing bbb continues to be problematic, but Kadcyla is a wonderful new life extender, and QOA improver for us. We are all very grateful to have this option, and angry that it took...
Forum: her2group 04-05-2013, 06:33 PM
Replies: 19
Views: 7,213
Posted By annmask
Re: TDM1/Kadcyla Experiences

Well I am an Ann as well, and I really need to get my profile up to date on here! I have had noticeable regression in my lymph node size on TDM. Unfortunately my brain scan this week went poorly. ...
Forum: her2group 03-22-2013, 09:54 AM
Replies: 20
Views: 4,894
Posted By annmask
Re: Tdm1/kadcyla and Tykerb

This is very exciting! Kudos to your ins. co., and to your creative oncologist! I had a great response in my brain to Avastin, and wish there was a way to combine that with Kadcyla. The diarrhea...
Forum: her2group 03-17-2013, 05:01 PM
Replies: 2
Views: 2,251
Posted By annmask
Re: TDM-1 Kadcyla anyone?

Thanks- I have a hard time using this site and did not see that. I see that many others experience s/e as well, but not as bad as the other chemos....It can be amazingly effective, and I say go for...
Forum: her2group 03-17-2013, 11:57 AM
Replies: 2
Views: 2,251
Posted By annmask
TDM-1 Kadcyla anyone?

I started this awesome long awaited drug on Monday. Now, after a week, the lymph node under my arm is noticeably smaller, and my lungs feel better. It has not been without side effects, but I...
Forum: her2group 02-16-2013, 08:17 PM
Replies: 389
Views: 154,041
Posted By annmask
Re: Calling all stage iv sisters

Thanks Jackie! I will work on it tomorrow. Thanks so much for keeping track of all this!
Forum: her2group 02-11-2013, 08:51 AM
Replies: 389
Views: 154,041
Posted By annmask
Re: Calling all stage iv sisters

OK, I updated it, but it seems to not appear anywhere. I like the way many on this site seem to have their hx automatically appear with posts. Sorry I am a bit lame regarding this site. Thanks for...
Forum: her2group 02-11-2013, 08:43 AM
Replies: 389
Views: 154,041
Posted By annmask
Re: Calling all stage iv sisters

Thanks! I was thinking of it as my profile, and did not look for signature. I updated it, and will work on the format, then try to attach it to my profile.
Forum: her2group 02-10-2013, 12:22 PM
Replies: 389
Views: 154,041
Posted By annmask
Re: Calling all stage iv sisters

I would like to update my profile, but can not figure out how...I find this site very difficult to navigate. Could someone please point me in the right direction? I like the way many members have...
Forum: Clinical Trials 12-13-2011, 07:54 PM
Replies: 22
Views: 13,158
Posted By annmask
Re: Johns Hopkins Her2 Vaccine Trial

Do you have to be NED to qualify for this trial? What is the name of the trial, then we could look it up to scan for the details. I am so happy to hear that you are doing so well!
Forum: her2group 12-13-2011, 07:26 PM
Replies: 18
Views: 2,977
Posted By annmask
Re: Update on Me/New trial

Hi Kim in DC. I hope that you are well n your way to NED on your new trial. I wonder what the drugs are, what pathways they intercept etc. I am considering a trial of 2 drugs together called...
Forum: her2group 12-07-2011, 03:29 PM
Replies: 22
Views: 3,979
Posted By annmask
Re: FDA Blocks Life-Saving Cancer Drug Rally

I agree that the lack of support from advocacy groups for us stage 4 folks is really upsetting. Their explanation refers to the problem of women in the late 90's being given radical stem cell...
Forum: her2group 11-29-2011, 08:38 AM
Replies: 19
Views: 3,019
Posted By annmask
Re: Two important things for HER2+ people to sign

Thanks KDR! I am lame at electronics unfortunately, so thanks for the post. I hope the way I started the thread here was the best way to reach the most people on this site......please feel free to...
Forum: her2group 11-28-2011, 08:44 AM
Replies: 19
Views: 3,019
Posted By annmask
Re: Two important things for HER2+ people to sign

I am not sure what is the best way/place to start a thread on this site to get it to the most people.....can nyone help me with this?
Forum: her2group 11-27-2011, 02:31 PM
Replies: 19
Views: 3,019
Posted By annmask
Exclamation Two important things for HER2+ people to sign

We in Boston, with the inspiration and hard work of Phil, are staging a rally in front of City Hall in Boston on December 6 at 11:30 AM. We will have a petition there regarding access to TDM-1. ...
Forum: Herceptin / Tykerb 11-17-2011, 08:47 AM
Replies: 23
Views: 7,153
Posted By annmask
Re: ? about Tykerb Duration

Once TDM-1 is made available, you could try a lower dose, or a diferent scheule. I am so frustrated by how long this drug is taking to reach us! May you continue to be ned until there is a real...
Forum: her2group 11-14-2011, 05:16 PM
Replies: 5
Views: 1,273
Posted By annmask
Re: Focus group study for metastatic gals

Great! Thanks for the info. There is a MBC site called Team Inspire that may be interested as well. I will post there.
Forum: Herceptin / Tykerb 11-06-2011, 07:15 PM
Replies: 23
Views: 7,153
Posted By annmask
Re: ? about Tykerb Duration

I wonder why Barbara went from TDM1 to Tykerb and Herceptin? You say that youremain NED, which is awesome, but I wonder why the change?
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