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Forum: her2group 02-14-2014, 07:45 PM
Replies: 18
Views: 4,171
Posted By Linda
Re: Neoadjuvant Roll Call

I had neo adjuvant chemo in '05! Stage 3, disappointing response to chemo…but
still healthy almost 9 years late!
her+, er/pr-, stage 3a after chemo, 2005. Alive and thriving, 2014.
Forum: her2group 02-02-2011, 01:37 PM
Replies: 9
Views: 1,752
Posted By Linda
Re: Surgery Stories

Hi Ginny:
I had the same sequence of treatment, so you go into surgery already being tired from chemo, and then you head into rads. I can tell you though, surgery and rads are really easy compared...
Forum: her2group 09-17-2010, 10:21 PM
Replies: 8
Views: 1,506
Posted By Linda
Re: Referral to breast specialist/surgeon--So CA area...

Hi Chelee:
I LOVE the surgeons at the Joyce Keefer Breast Center, St, John's, Santa Monica. Dr. Armando Giuliano and Dr. Chung. I know that's not as close as you'd like...also they are surgeons,...
Forum: her2group 08-14-2010, 04:49 PM
Replies: 139
Views: 19,741
Posted By Linda
Re: Joe passed on this evening

Dear Danielle:
I am sending my sympathies as well. I never met your dad and yet he did such a generous service to me and to so many of us. I am very grateful to him.
Love to Christine and the...
Forum: her2group 06-03-2010, 07:42 PM
Replies: 66
Views: 9,929
Posted By Linda
Re: Five years out???

I'm another almost 5 year-er. I'm over 5 from dx, but just under 5 from surgery (I had neo adjuvant chemo.) Stage 3a. er/pr-. Large tumor. NED!
Linda
Forum: her2group 02-04-2010, 12:07 AM
Replies: 46
Views: 10,202
Posted By Linda
Re: Positive stories, please come out of the woods

Hi Sweet Marcia:
I was dx locally advanced in April, 2005. I'll never know how large my tumor was (huge I suspect) or how many pos nodes I had, because I had 6 months of neo adjuvant chemo. Unlike...
Forum: her2group 01-11-2010, 06:06 PM
Replies: 12
Views: 1,917
Posted By Linda
Re: Tumor Markers & Update

Hi Vicki:
I was stage 3a, hormone neg and am almost 5 years out (!). No recurrence.
My onc has done tumor markers all along, as well as Vit D level and a physical exam.
After treatment, I...
Forum: her2group 10-16-2009, 08:15 AM
Replies: 4
Views: 962
Posted By Linda
Re: Should I consider taking Zometa?

Marcia:
My doc did not want to give me Zometa, stating that the study had been too small and the risk for kidney damage, etc, didn't make it worth it. Just her opinion -- since many docs are on...
Forum: her2group 10-13-2009, 11:14 PM
Replies: 23
Views: 2,803
Posted By Linda
Re: PET scan....scared...

Maureen:
So sorry you are going through this. It is SO stressful.
There's a lot of good advice from our sisters on this thread. The only thing I have to add is to suugest having other...
Forum: her2group 09-24-2009, 06:24 PM
Replies: 84
Views: 9,837
Posted By Linda
Re: Cancer is back...I just knew it.

Chelee:
I'm so so sorry to hear about your recurrence.
I wanted to pass on the name of an LA bc expert that I consulted when I was dx. I know she's a heavy hitter, although I don't know if she's...
Forum: her2group 08-20-2009, 09:42 AM
Replies: 9
Views: 1,723
Posted By Linda
Re: My preliminary pathology report

Dear Bejuce:
I just wanted you to know -- I had neo adjuvant chemo and was still stage 3 after all my chemo. Then I had surgery, rads, herceptin. That was four and half years ago and I'm doing...
Forum: her2group 07-28-2009, 03:07 PM
Replies: 16
Views: 4,651
Posted By Linda
Brca

I'm another that was BRCA tested because of Jewish descent. I was also negative for BRCA 1 and 2, even though both of my grandmothers had bc, and 2 uncles had colon cancer, which is related. There...
Forum: her2group 06-17-2009, 09:28 AM
Replies: 22
Views: 2,358
Posted By Linda
Angela

Welcome:
This is a great place to come for support and questions. We've all been where you are now. Her2 bc is scary, but the prognosis has really changed since herceptin. Much info is really...
Forum: her2group 05-13-2009, 07:59 AM
Replies: 31
Views: 3,609
Posted By Linda
4 years

Dear Karen, Marejo and other 4 year anniverarios:
It's my four year marker this month, too. Just had a check up and mammo and all is well. Sometimes it seems like a miracle.
My doc congratulated...
Forum: her2group 04-15-2009, 10:43 AM
Replies: 37
Views: 4,527
Posted By Linda
Oh...I misunderstood

Oh, now I understand your herceptin question, Maureen. I'd assumed that H was also part of your six mo neoadjuvant treatment, adding up to a year. Sorry about that.
I'd agree with others about...
Forum: her2group 04-14-2009, 07:28 PM
Replies: 37
Views: 4,527
Posted By Linda
Maureen: You are in a really rough patch on...

Maureen:
You are in a really rough patch on this journey. I also did 6 mos of neoadjuvant chemo and near the end I felt pretty crazy. The combo of the waiting, the drugs, the nervousness about what...
Forum: her2group 03-01-2009, 05:22 PM
Replies: 25
Views: 3,668
Posted By Linda
Vit D

My onc has been testing Vit D levels for some time. She believes that women who've had bc should be on the high end of normal, and most of us are low. I took supplements for a while and ended up...
Forum: her2group 09-21-2008, 05:58 PM
Replies: 13
Views: 1,698
Posted By Linda
Getting back to your old self

Hi:
Forgive me if I'm repeating what's already been listed, but some other suggestions of things that could be keeping you from full recovery:
Have you checked your thyroid levels?
Could you be...
Forum: her2group 08-15-2008, 04:42 PM
Replies: 9
Views: 7,624
Posted By Linda
Vit D

Hi Debbie:
My onc has been checking my Vit D level for almost 2 years. She says she wants my level on the high end of normal (there's a big range) and that is thought to be protective against...
Forum: her2group 06-26-2008, 08:14 PM
Replies: 91
Views: 12,469
Posted By Linda
I agree. I know how much I clung to positive...

I agree. I know how much I clung to positive stories when I was first dx, and there are a lot of us out there.
I'm over three years from a really knarly diagnosis - very large tumor, a pos node...
Forum: her2group 06-19-2008, 11:57 PM
Replies: 24
Views: 3,254
Posted By Linda
Thank you

Thanks for posting that. As another Oregonian, I always thought maybe I'd meet Lolly. She will be missed here.
Linda
Forum: her2group 06-12-2008, 11:43 PM
Replies: 31
Views: 3,681
Posted By Linda
Dear Krista: I went through the same thing,...

Dear Krista:
I went through the same thing, after taking a very small (.5) dose of Ativan nightly during my six months of chemo. It's really addictive and it will take a little time to sleep well...
Forum: her2group 06-10-2008, 07:20 PM
Replies: 110
Views: 12,557
Posted By Linda
So sad

I am sad to lose our sister in Oregon. My thoughts and love to Lolly's husband and family.
Linda in Oregon
Forum: her2group 06-03-2008, 09:59 AM
Replies: 25
Views: 4,425
Posted By Linda
Hi Tonya

Tonya:
Like others, I think it's a balance between technical expertise and bedside manner, and with oncology I think the skill and personality of the nursing staff is hugely important, since they...
Forum: her2group 02-21-2008, 06:50 PM
Replies: 15
Views: 1,943
Posted By Linda
Breast center near Bev Hills

I had my surgery at the Joyce Eisenberg Keefer Breast Center at St. John's hospital in Santa Monica (right next to Bev Hills.) I can't say enough good things about this practice. They do surgery...
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