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Forum: her2group 06-04-2010, 09:26 PM
Replies: 66
Views: 9,946
Posted By Connie Jean
Re: Five years out???

So excited to see this poll. I am 5 years cancer-free. Had adjuvant Herceptin and Tykerb. Such miracle drugs! Love my life.
Forum: Herceptin / Tykerb 11-11-2007, 08:58 PM
Replies: 26
Views: 5,103
Posted By Connie Jean
tykerb only

I have been on Tykerb only since August, 5 pills a day. I had some minor diarhea in the beginning. I had a small outbreak of the rash last week but it is gone now. I have had a general feeling of...
Forum: her2group 10-28-2007, 10:04 PM
Replies: 15
Views: 1,749
Posted By Connie Jean
Hi I was on Herceptin for 18 months. It was...

Hi
I was on Herceptin for 18 months. It was such a security blanket for me and I felt fearful of ever ending it. My onc was going to continue it until the 2 year mark. But he suggested trying...
Forum: Herceptin / Tykerb 10-08-2007, 10:13 AM
Replies: 689
Views: 293,023
Posted By Connie Jean
herceptin side effects

I was on herceptin for almost 2 years, every 3 weeks. I began taking it with Gemzar and Taxotere right after my mastectomy. I gained 10 lbs as my appetite increased. I deveoped a mass in sinus...
Forum: her2group 10-08-2007, 09:12 AM
Replies: 21
Views: 3,815
Posted By Connie Jean
herceptin vs tykerb

Hi Esther,

I, too, gained weight on Herceptin. I was on it for almost 2 years and am now on Tykerb.

Why did you go back on Herceptin? I was hesitant to go off herceptin, because it seemed...
Forum: her2group 10-05-2007, 09:12 PM
Replies: 32
Views: 3,071
Posted By Connie Jean
remedy for low white count

Hi Kate,
Several times my counts dropped low like yours during chemo. I got Neulasta shots. Also, my husband would bake a whole chicken, take the meat off the bones, crack the bones and boil them...
Forum: her2group 07-22-2007, 07:53 PM
Replies: 19
Views: 2,692
Posted By Connie Jean
20 positive nodes

I had 20 positive nodes and like you it scares me, as I rarely see anyone that has had that many positive nodes. Like you I have faith in Him for each day He gives me. I was diagnosed 2 years ago,...
Forum: Herceptin / Tykerb 07-10-2007, 09:59 PM
Replies: 10
Views: 2,300
Posted By Connie Jean
Hi Rupali, I'm definitely checking with my...

Hi Rupali,
I'm definitely checking with my oncologist about the discrepancy in numbers. I also will followup with Tykerb cares. Thanks SO MUCH for your help and information. My husband and I...
Forum: Herceptin / Tykerb 07-06-2007, 08:55 PM
Replies: 10
Views: 2,300
Posted By Connie Jean
Hi Rupali, My oncologist quoted my the $9000...

Hi Rupali,

My oncologist quoted my the $9000 as price per month. I emailed GSK, and they replied saying they couldn't help me. I will call them next week.

Connie
Forum: Herceptin / Tykerb 07-06-2007, 02:13 PM
Replies: 10
Views: 2,300
Posted By Connie Jean
Hi Rupal, Thanks for your reply. It gives me...

Hi Rupal,
Thanks for your reply. It gives me some encouragement. I have written GSK and they have no options for me. I plan on calling them also.
What is the preclinical data you are referring...
Forum: Herceptin / Tykerb 07-05-2007, 09:31 PM
Replies: 10
Views: 2,300
Posted By Connie Jean
Tykerb for Stage IIIc?

My onc told me this week that he would recommend Tykerb for me now, in place of the Herceptin I have been on for the past 18 months. My onc says it inhibits the crosstalk between HER1 and Her2. But...
Forum: her2group 04-29-2007, 08:35 PM
Replies: 23
Views: 4,149
Posted By Connie Jean
I am stage IIIc, have been on herceptin every...

I am stage IIIc, have been on herceptin every three weeks for 18 months. I have been NED since my surgery Aug. 2005. I have had few side effects from the herceptin, just some increase in sinus...
Forum: her2group 04-28-2007, 08:19 PM
Replies: 56
Views: 6,588
Posted By Connie Jean
Thank you so much for typing this up and sharing!...

Thank you so much for typing this up and sharing! It was so helpful. I, too, saw Dr. Peagram and he very kindly consulted with my oncologist about my treatment.
I'm NED two years from...
Forum: her2group 01-28-2007, 09:45 PM
Replies: 32
Views: 3,411
Posted By Connie Jean
Joe, I am new to joining a discussion, just been...

Joe, I am new to joining a discussion, just been lurking here for awhile. I have found this website so valuable to understanding my diagnosis and also for feeling like I am not alone. Thank you so...
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