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Search: Posts Made By: Nancy L
Forum: Herceptin / Tykerb 09-15-2013, 08:03 PM
Replies: 6
Views: 13,308
Posted By Nancy L
Re: A newly diagnosed family member-- with a few questions

Please read the post "You'll love to read this" by Lani for helpful info.
Forum: her2group 09-13-2013, 02:31 PM
Replies: 11
Views: 3,601
Posted By Nancy L
Re: How do you boost your platelets on Kadcyla

Yanyan,

Kadcyla is shrinking the tumor but i am not NED. Can you share the name of the maintenance drug and dosage your onc has planned? Thanks
Forum: her2group 09-13-2013, 12:05 PM
Replies: 11
Views: 3,601
Posted By Nancy L
Re: How do you boost your platelets on Kadcyla

I highly recommend that you print the Genentech Kadcyla dosing and administration guide available on the internet. It gives the company's guidance about what should be done when various tests are...
Forum: her2group 08-08-2013, 02:47 PM
Replies: 37
Views: 5,677
Posted By Nancy L
Re: metronomic chemo

Kathy,

I have had 14 does at 3.6. I haven't felt good right frm the start and have had all the symptoms they talk about-- fatigue, weight loss, constipation, itching/rash, nausea, vomiting,...
Forum: her2group 08-08-2013, 11:50 AM
Replies: 37
Views: 5,677
Posted By Nancy L
Re: metronomic chemo

Thank you for introducing me to a treatment I did not know about. For those of us who will be on treatment for the remainder of our lives, I like the approach of low dose frequently rather than a...
Forum: Herceptin / Tykerb 08-06-2013, 08:21 PM
Replies: 689
Views: 290,262
Posted By Nancy L
Forum: Herceptin / Tykerb 08-06-2013, 07:38 AM
Replies: 689
Views: 290,262
Posted By Nancy L
Re: Please post your two cents on Herceptin "side effects" real or perceived!

I never had a reaction to Herceptin but I did to Tykerb. Dr. Slamon was directing my treatment at that time. I broke out in hives all over my body after taking 1000 mg (4 pills) Tykerb for four...
Forum: her2group 07-29-2013, 08:45 AM
Replies: 29
Views: 3,264
Posted By Nancy L
Re: Nervous beyond

Karen,

Do you believe TDM-1 brought you down to 55%? I have had 14 doses and I feel that is what has happened to me. How high did your T. Bili run before you stopped and where is it now? ...
Forum: her2group 05-29-2013, 07:07 AM
Replies: 6
Views: 1,072
Posted By Nancy L
Re: FOB not well. Needs ideas.

FOB

Can they do a tumor sensitivity test on your last biopsied tumor to see if there is any chemo or combination of chemos your tumor is sensitive to. You haven't had a lot of the combos they...
Forum: her2group 05-09-2013, 02:11 PM
Replies: 27
Views: 4,633
Posted By Nancy L
Re: One year of TDM1. NED!

I am very happy for you. How many months did it take before they used the word Ned? I have had 11 treatments and it has not been easy. I have a lot of collateral damage issues I am dealing with so...
Forum: Articles of Interest 04-21-2013, 05:01 PM
Replies: 6
Views: 5,086
Posted By Nancy L
Re: The Conspiracy To End Cancer

Good article but doesn't give credit to all the women involved in founding this effort. See others at http://www.standup2cancer.org/su2c_leadership#lz. Noreen Fraser is fighting Stage 4 disease. ...
Forum: her2group 04-09-2013, 09:35 AM
Replies: 11
Views: 1,726
Posted By Nancy L
New study findings re alcohol and breast cancer

http://seattletimes.com/html/localnews/2020737250_breastcancerxml.html
Forum: her2group 03-02-2013, 02:26 PM
Replies: 30
Views: 5,349
Posted By Nancy L
Re: Kadcyla/TDM1 CELEBRATION @ Genentech:)

CoolBreeze,

I think I read that you live in Sacramento. I have been researching oncologists in the Roseville area in anticipation of a move back north. The T-DM1 trial coordinator in Stockton...
Forum: her2group 02-17-2013, 04:45 PM
Replies: 26
Views: 3,447
Posted By Nancy L
Re: T DM-1 Activism

Would be great to have 60 Minutes expose the FDA and how clinical trials really work. They are friendly to the Obama administration so they might not be interesting in exposing Kathleen Sibelius.
...
Forum: her2group 02-17-2013, 10:47 AM
Replies: 23
Views: 3,695
Posted By Nancy L
Re: CHRISTINE ~ New Issue ~ Please Input

I lost 25 lbs during my recent recurrence and am having difficulty consuming enough extra calories to gain it back. You need to consume 7500 calories/wk over and above what it takes to maintain your...
Forum: her2group 02-17-2013, 09:45 AM
Replies: 3
Views: 1,728
Posted By Nancy L
Re: Finally!!!!! a paper showing which tumor markers (and serum her2ECD test) are bes

Every breast cancer patient has heard of Dr. Susan Love but many may not know she is also now a cancer patient---not breast cancer but her current treatment for leukemia has changed her attitude...
Forum: her2group 12-07-2012, 07:21 AM
Replies: 2
Views: 985
Posted By Nancy L
Re: Help!! Need to shrink lymph node fast

They will first need to do a biopsy to determine if this is breast cancer or colon cancer. Ask them to run the molecular assay and chemo sensitivity test when they do the biopsy so you know what...
Forum: Clinical Trials 12-01-2012, 05:25 PM
Replies: 22
Views: 12,765
Posted By Nancy L
Re: Latest T-DM1 site openings - updated as we get them

My extended access site told me they have from reliable sources that T-DM1 will be approved before the end of the year. They must be wrong or why would Genentech add three sites at this late date?
Forum: her2group 11-27-2012, 08:39 AM
Replies: 14
Views: 1,763
Posted By Nancy L
Re: Got any questions for some cutting-edge researchers?

T-DM1 is close to being product. What is the next her2 drug that looks promising in clinical trial? I haven't heard of any.
Forum: her2group 11-24-2012, 09:55 AM
Replies: 6
Views: 943
Posted By Nancy L
What to do with expensive drugs like Tykerb when they stop working

I have several unopened bottles. Each bottle costs about $3k. It seems like a sin to throw in the garage. Is there any organization that collects and makes use of these drugs for those in need?
Forum: her2group 11-21-2012, 02:18 AM
Replies: 12
Views: 1,644
Posted By Nancy L
Re: arbiraterone for ER negative?

So sorry T-DM1 1did not work for you. Did you have any response at all? Just as an FYI, dr Slamon recommended navel give/herceptin for me if I was ubable to get in T-DM1 trial. I saw an 8 yr Stage...
Forum: her2group 11-14-2012, 08:34 PM
Replies: 18
Views: 2,166
Posted By Nancy L
Re: Brain met shrining too!

Very happy for you. I am beginning to think we need a separate Good News Forum on this site so none of these posts get lost and all of us going through difficult times can go to the forum for...
Forum: her2group 11-14-2012, 08:19 PM
Replies: 10
Views: 6,174
Posted By Nancy L
Re: Brain Mets--what do they feel like?

Thank you everyone. Very helpful suggestions. I should know more in a week or so but I am definitely going to try Elizabeth's self care tips tomorrow. I know I am tense about upcoming scans but...
Forum: her2group 11-13-2012, 06:48 PM
Replies: 10
Views: 6,174
Posted By Nancy L
Brain Mets--what do they feel like?

Would like to know what brain mets feel like. What did you notice before being diagnosed with brain mets? If headaches, what did they feel like and were they constant, intermittent?.

I have...
Forum: her2group 11-09-2012, 06:36 AM
Replies: 4
Views: 1,335
Posted By Nancy L
Two types of her2 tumors

I found the last paragraph most interesting. Maybe this helps explain why some respond to the Her2 drugs and some don't. If this is the case and identified before women are put into trials for her2...
Showing results 1 to 25 of 243

 
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