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Forum: her2group 12-20-2008, 11:16 AM
Replies: 6
Views: 1,389
Posted By Joannie
Just in complete shock........

Hi All:
I feel like I just need to post to get this off my chest. My husband was admitted to the hospital this week for diverticulitis. He is all good and well now. When I drove the car up to...
Forum: her2group 09-17-2008, 05:54 PM
Replies: 91
Views: 12,394
Posted By Joannie
Smile What a great idea to start this thread. I am...

What a great idea to start this thread. I am officially 5 years on August 27, 2008 NED. Each day is a gift and one of the greatest gifts I have been fortunate enough to experience are the folks on...
Forum: Herceptin / Tykerb 08-30-2008, 02:20 PM
Replies: 6
Views: 1,740
Posted By Joannie
Georgia Girl: I had the same issue on Tykerb. ...

Georgia Girl:
I had the same issue on Tykerb. In fact, the soreness of my nostrils was probably one of the worst side effects I encountered. I used vasline.....several times a day I would line the...
Forum: Herceptin / Tykerb 05-20-2008, 04:51 PM
Replies: 7
Views: 1,585
Posted By Joannie
D.W. I was on the teach trial for one year. ...

D.W.
I was on the teach trial for one year. Just finished. It was Tykerb alone. The diarhea was pretty consistant for the first three months. After that it tapered off and it seemed like I would...
Forum: Herceptin / Tykerb 04-21-2008, 06:19 PM
Replies: 5
Views: 1,446
Posted By Joannie
Pat: When did you finish the TEACH trial? I am...

Pat:
When did you finish the TEACH trial? I am done around May 8. I am fairly certain that I got the real thing. I have had quite a few symptoms. Did you notice any difference in anything when...
Forum: Herceptin / Tykerb 04-21-2008, 05:55 PM
Replies: 5
Views: 1,446
Posted By Joannie
A crusty nose is a good way to describe it! I...

A crusty nose is a good way to describe it! I had bloody nose in the beginning of Tykerb. But my nose hasn't stopped being crusty from about 9 months to present. It scabs, crusts, runs, etc. I...
Forum: her2group 03-21-2008, 12:04 PM
Replies: 5
Views: 1,286
Posted By Joannie
Lung Concerns

Hi All:
I posted last week about shortness of breath and chest pains which I thought was due to taking Tykerb. I'm currently enrolled in the TEACH trial. I went and had an echo and CT scan of the...
Forum: Herceptin / Tykerb 03-18-2008, 01:22 PM
Replies: 2
Views: 1,878
Posted By Joannie
Chest Pains on Tykerb

Hi all:
As some of you have been reading, I enrolled in the TEACH trial in May of 2006. I'm on the last 3 months of Tykerb. I went in for my 3 month trial check up early Feb. They took blood as...
Forum: her2group 03-16-2008, 05:56 PM
Replies: 18
Views: 2,456
Posted By Joannie
Liz: I had my left breast taken off in April...

Liz:
I had my left breast taken off in April 2003 when they found a lump. At the time, my husband really wanted me to take the other breast. I just could not make that decision at the time. After...
Forum: her2group 03-09-2008, 06:04 AM
Replies: 16
Views: 1,974
Posted By Joannie
Wink Michele: I too feel that stress played a huge...

Michele:
I too feel that stress played a huge part in me getting breast cancer. I have always been active with exercise and ate a pretty good diet. Love raw veggies and all fruits. However,...
Forum: Herceptin / Tykerb 03-07-2008, 04:49 PM
Replies: 31
Views: 4,526
Posted By Joannie
SheryG: I have been on the TEACH Trial since...

SheryG:
I have been on the TEACH Trial since May of 2007. The diarrhea was pretty constant in the beginning, but never so bad that I had to take any meds to stop it. It was on and off over a 3...
Forum: Herceptin / Tykerb 02-29-2008, 06:24 AM
Replies: 31
Views: 4,526
Posted By Joannie
SherryG: I too was nervous taking Tykerb. The...

SherryG:
I too was nervous taking Tykerb. The unknown of what the drug can do is sometimes overwhelming. Since I never received Herceptin, I really was greatful to get the opportunity to try...
Forum: her2group 01-27-2008, 08:50 AM
Replies: 11
Views: 1,648
Posted By Joannie
Bonnie: My eye doctor recommended I wait 6...

Bonnie:
My eye doctor recommended I wait 6 months after chemo. My vision was quite blurry but did get some better in 6 months.
Forum: her2group 12-28-2007, 07:12 PM
Replies: 11
Views: 1,672
Posted By Joannie
Patty: I had a mastectomy on the left breast...

Patty:
I had a mastectomy on the left breast when I found the lump. The plastic surgeon immediately inserted an expander and I had weekly fills. This was in May when I had the first mastectomy. ...
Forum: Herceptin / Tykerb 12-05-2007, 05:56 PM
Replies: 26
Views: 5,062
Posted By Joannie
I am on the TEACH trial since May. It is Tykerb...

I am on the TEACH trial since May. It is Tykerb alone. I believe that I have the real thing vs placebo. I have had the following side effects:

diarrhea first 3 months
mouth sores in first...
Forum: her2group 12-04-2007, 03:00 PM
Replies: 28
Views: 3,538
Posted By Joannie
Thanks for all of your responses. I too did great...

Thanks for all of your responses. I too did great on the Celexa and then Lexapro. I was very reluctant to wean myself off of it but because I kept asking my doc about it, she thought I owed it to...
Forum: her2group 12-03-2007, 02:35 PM
Replies: 28
Views: 3,538
Posted By Joannie
Unhappy Anti-depressants

Good Afternoon:
Just wanted to see if I get could some thoughts from those of you who have been on anti-depressants.

In short, here is my story:
After I finished my last chemo treatment, I...
Forum: Herceptin / Tykerb 12-02-2007, 05:39 AM
Replies: 2
Views: 1,691
Posted By Joannie
I'm on the TEACH trial for Tykerb and I'm taking...

I'm on the TEACH trial for Tykerb and I'm taking it for one year.
Joannie
Forum: her2group 11-26-2007, 05:15 AM
Replies: 10
Views: 1,578
Posted By Joannie
Michelle: I'll be on the trial one year. ...

Michelle:
I'll be on the trial one year.
Joannie
Forum: her2group 11-25-2007, 06:53 PM
Replies: 10
Views: 1,578
Posted By Joannie
Michelle: I'm on the TEACH trial since May. I...

Michelle:
I'm on the TEACH trial since May. I believe that I got the real thing vs placebo. I too had diarrhea, but it has since subsided. Most of the side affects that I had in the beginning,...
Forum: Herceptin / Tykerb 11-20-2007, 02:05 PM
Replies: 16
Views: 2,867
Posted By Joannie
Toenail

Ladies:
Thanks for all of your advice. I tried all of them and combinations of them, to no avail. The toe is just not going to heal! I went to my dr. yesterday and she did a partial removal. ...
Forum: Herceptin / Tykerb 11-15-2007, 06:20 PM
Replies: 16
Views: 2,867
Posted By Joannie
Unhappy Thanks Becka: I'll give that a try. My husband...

Thanks Becka:
I'll give that a try. My husband was kidding around a few minutes ago and stepped on my toe, very hard! It sent me to tears. It's now oozing puss and it hurts like *()*)&*&^*^^%!!!...
Forum: Herceptin / Tykerb 11-14-2007, 06:52 PM
Replies: 16
Views: 2,867
Posted By Joannie
Toenail still not healing

Well, after taking antibiotics off and on since the end of August, the skin around my toenail is really not healing. It still remains very sore and red. I went in for my 3 months check-in with the...
Forum: Herceptin / Tykerb 10-29-2007, 12:31 PM
Replies: 16
Views: 2,867
Posted By Joannie
Toenail issues while on Tykerb

Just wondering if anyone on Tykerb is having any toenail issues....Since August, I've been battling what my dr. thinks is an "ingrown" toenail. I've been on and off antibiotics to try to keep the...
Forum: Herceptin / Tykerb 10-01-2007, 06:17 PM
Replies: 7
Views: 2,800
Posted By Joannie
Here is the link for the TEACH trial. ...

Here is the link for the TEACH trial.

http://www.clinicaltrials.gov/ct/show/NCT00374322

You cannot have had Herceptin.
Hope this helps.
Joannie
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