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Search: Posts Made By: anna4969
Forum: her2group 01-22-2018, 06:40 PM
Replies: 3
Views: 388
Posted By anna4969
Re: Follow up after breast cancer treatment

Silver Granny,

Much like you, a lot of cancer in my family. Mother had breast, Father died of prostate, my brother just diagnosed with prostate and many aunts and uncles on both sides died of...
Forum: her2group 07-20-2017, 12:36 PM
Replies: 13
Views: 5,239
Posted By anna4969
Re: when did you 'break up' with your onco?

I am 7 years out and see my onc every 6 months. He has asked me during the past several appointments if I would like to move to annual appointments. We have a wonderful doctor/patient relationship...
Forum: Clinical Trials 11-25-2014, 09:18 PM
Replies: 7
Views: 6,846
Posted By anna4969
Smile Re: 5 years of GP2 trial completed!

Lizbeth

Super congratulations!!! I am a couple of years behind you in the GP2. I got GP2 with Herceptin. Oh boy, I sure hope I get that shout out at 5 years too! Like you, I just can't say...
Forum: her2group 09-05-2014, 07:22 PM
Replies: 6
Views: 1,917
Posted By anna4969
Smile Re: ASCO Breast Symposium- GP2 her2 vaccine reduces recurrence rates by 57%

Lani,

Thank you, thank you!!! Have been waiting for this information for 3 years!!! I was in the phase 1 trial with Dr. Mittendorf in 2011. This has made my day, my year, my life. I am beyond...
Forum: her2group 06-18-2014, 08:43 PM
Replies: 58
Views: 7,008
Posted By anna4969
Re: Significant Progression-Going On Doxil

Hi Karen

I don't post very often but read often. I am very sorry to read about this. I am praying for you too. I haven't any experience with Doxil but I did have 5-FU, and that too, can cause...
Forum: Articles of Interest 03-05-2014, 11:33 AM
Replies: 3
Views: 3,227
Posted By anna4969
Re: Fighting fire's GP2 info request

Lizbeth,

Thanks for this. I believe, based on the phase 1 in 2010, they then expanded and included the Herceptin factor as well, as I participated in the GP2 + GM-CSF + Herceptin in Jan. of 2011....
Forum: Articles of Interest 03-04-2014, 07:14 PM
Replies: 3
Views: 3,227
Posted By anna4969
Re: Fighting fire's GP2 info request

Lizbeth,

Thank you for posting. I did the GP2 and GM-CSF with my last 6 Herceptins in a Phase 1 trail(I did not get the boosters as that was not a part of the trial). These results must be good...
Forum: her2group 10-14-2013, 06:34 PM
Replies: 36
Views: 5,195
Posted By anna4969
Re: ER/PR negative survivors

Me too, ER/PR - Her2 + stage 3a, 9 cm. tumor and close to 8 lymph nodes involved. Near complete response after neoadjuvant chemo and lymph nodes all clear. It will be 4 years this coming January. ...
Forum: Articles of Interest 07-15-2013, 08:13 PM
Replies: 14
Views: 3,383
Posted By anna4969
Smile Re: Increased risk for endometrial cancer

Lizbeth,

Once again, thank you for such reasonable and reassuring words. I was so delighted to see a response from you.

Onc did call me early evening and he agrees fully with the GYN's plan. ...
Forum: Articles of Interest 07-15-2013, 03:21 PM
Replies: 14
Views: 3,383
Posted By anna4969
Re: Increased risk for endometrial cancer

jackie and lizbeth,

what settling emails you have sent. I appreciate your taking the time to answer. Yes, I spoke with the nurse this morning and the thickness is 2mm more than what they...
Forum: Articles of Interest 07-14-2013, 08:57 PM
Replies: 14
Views: 3,383
Posted By anna4969
Re: Increased risk for endometrial cancer

Hi Jackie, Nlkoeble and Lizbeth,

This topic resurfacing really came at a good time for me. Thank you so much for addressing this. I wonder if anyone has some advice on my situation.

I am...
Forum: her2group 03-10-2013, 07:54 PM
Replies: 19
Views: 1,928
Posted By anna4969
Re: 5 Years NED

Lizbeth

Hooray for you. Such blessings to report!!! You have wonderful news and I am listening to your words " that if you had known you would have these 5 years, you wouldn't have worried so...
Forum: her2group 03-04-2013, 06:56 PM
Replies: 9
Views: 1,049
Posted By anna4969
Re: Seeking advice from Vaccine trial participants

Hi JillaryJill

Yeah for you to be considering a vaccine!!! :)

I did the GP2 with Herceptin trial. I am thrilled that I did. Very little side effects from the GM-CSF which was given in tandem...
Forum: her2group 02-04-2013, 07:51 PM
Replies: 3
Views: 442
Posted By anna4969
Smile Re: Vaccine and HLA Typing

Hi Europa

I participated in a version of the Walter Reed whereby I got the GP2 along with my Herceptin. I tested HLA positive. I believe that HLA positive is more common than HLA negative.
...
Forum: her2group 11-07-2012, 08:26 PM
Replies: 1
Views: 826
Posted By anna4969
Re: ?hope for effective treatment/cure for lymphedema

Lani

Thank you so much for this exciting article. I will certainly be keeping my eye on this one.

Thank you for all of your research. You certainly give all of us hope on every front.
...
Forum: her2group 10-19-2012, 06:08 PM
Replies: 7
Views: 1,016
Posted By anna4969
Re: muga scan question

Hi Valleygirl,

By chance, is your echo a "Trans-Thoracic Echo with Echocardiogram"? I ask because I have been a regular with Mugas for 2 1/2 years and then this last heart test was changed to...
Forum: her2group 07-19-2012, 08:06 PM
Replies: 10
Views: 909
Posted By anna4969
Re: Same vaccine as Lani posted? If not, is anyone getting this?

I absolutely agree with Lizbeth to encourage any low expressors to enroll or at least investigate the neuvax. It has has wonderful results thus far. My doctor is the principal investigator for this...
Forum: her2group 07-19-2012, 10:58 AM
Replies: 14
Views: 1,510
Posted By anna4969
Re: don't remember if I posted this during ASCO--good results for her2 vaccine

Yeah for the GP2, the E-75 and AE37!!!

Funny how everyone's body is so different in reacting. I had minimal side effects that maybe lasted 6 hours, if that. And I absolutely got the GP2 with...
Forum: Breast Cancer Newsfeed 07-19-2012, 08:41 AM
Replies: 8
Views: 1,105
Posted By anna4969
Re: Risk For Breast Cancer Increased By Giving Birth To Large Infants

Yes, there was only one option with that size of a baby, that is forsure!!
Forum: Breast Cancer Newsfeed 07-18-2012, 08:59 PM
Replies: 8
Views: 1,105
Posted By anna4969
Re: Risk For Breast Cancer Increased By Giving Birth To Large Infants

Karen, me too 11.1 lbs. I thought I was the only one!!! She is a sweet healthy 12 year old and thin!!

I do wonder how er/pr- and her2 might or might not fit into the equation.
Forum: her2group 07-18-2012, 08:43 PM
Replies: 14
Views: 1,510
Posted By anna4969
Re: don't remember if I posted this during ASCO--good results for her2 vaccine

One more vote for vaccines!! I was also in a similar trial whereby I had the gp2 vaccine 30 minutes after my Herceptin infusion. Dr. Mittendorf is my doctor. She is brilliant and is working...
Forum: her2group 05-22-2012, 05:22 AM
Replies: 5
Views: 881
Posted By anna4969
Re: trial results to look out for

Thanks Lani

Just saw onc yesterday and we were discussing it again and when we thought those results were going to be reported on.

I appreciate your diligence.
Forum: her2group 05-21-2012, 08:34 PM
Replies: 5
Views: 881
Posted By anna4969
Re: trial results to look out for

Lani

thank you for keeping us so very informed. Have you heard anything about the Hera trial, whether 2 years is better than on year of Herceptin?

thank you :)
Forum: Keeping Your Mind Off of BC 03-24-2012, 07:47 PM
Replies: 3
Views: 3,863
Posted By anna4969
Re: Ways to express gratitude and thanks

Paty and Marlys

Thank you so very much for the ideas. I am grateful. What I did do was send an all staff email with my heartfelt thanks and then put together a basket full of different kind of...
Forum: Keeping Your Mind Off of BC 03-15-2012, 04:27 PM
Replies: 3
Views: 3,863
Posted By anna4969
Smile Ways to express gratitude and thanks

Hi

Wonderful sisters. I am wondering about special ways to say thank you to those who have given us prayers, kindness, gifts of money. I know that once it is known we are battling this ugly...
Showing results 1 to 25 of 64

 
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