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Forum: Inflammatory Breast Cancer 06-23-2010, 11:01 PM
Replies: 27
Views: 15,922
Posted By charlotte
Re: just placed on hospice

Went back to the Onc. today .total waste of time. He speaks of not wanting to take the port out now... So it looks like like I'll keep this sucker for a while now.. I wish he would make up his mind...
Forum: Inflammatory Breast Cancer 06-17-2010, 10:48 PM
Replies: 27
Views: 15,922
Posted By charlotte
Re: just placed on hospice

Well, I went back to the Onc. office to tell my favorite nurses goodbye.. I have really made some good friends there...
My Onc. Dr. came out of one room as I was telling my friend goodbye and I'll...
Forum: Inflammatory Breast Cancer 06-13-2010, 04:29 AM
Replies: 27
Views: 15,922
Posted By charlotte
Re: just placed on hospice

Lani/others.... it is Panama City, Fla.could the next angel who helps me , send it in a private email? I would appreciate it. I will explain later... thanks , for the help and suggestion.
This has...
Forum: Inflammatory Breast Cancer 06-11-2010, 02:50 PM
Replies: 27
Views: 15,922
Posted By charlotte
Re: just placed on hospice

Hi again... I forgot to mention that I have been to Shands in Gainsville.My husband was there for one reason and I was there for a second opinion of how we were going to suceed the protocal , that my...
Forum: Inflammatory Breast Cancer 06-10-2010, 09:48 PM
Replies: 27
Views: 15,922
Posted By charlotte
Re: just placed on hospice

Hi Gang: first thanks for the replys. to answer the TDM-1 I tried for it and its a no go. I sent them another email this week , still waiting for a response.
have tried the 5fu cream.. no sucess,...
Forum: Inflammatory Breast Cancer 06-09-2010, 09:09 PM
Replies: 27
Views: 15,922
Posted By charlotte
just placed on hospice

hi gang... well, my Onc. says there is nothing more that he can do for me... He says if he gives me any more chemo the outcome will still be the same.
I have been taking tykerb, xeloda for over a...
Forum: Inflammatory Breast Cancer 03-26-2010, 08:01 PM
Replies: 1
Views: 7,696
Posted By charlotte
Bleeding from the mets?

I have a question here please... I have been having some bleeding from the mets. not profuse, but enough to get my attention.

another question I am on Tykerb, xeloda.. my finger nails are...
Forum: her2group 03-19-2010, 08:50 PM
Replies: 24
Views: 2,601
Posted By charlotte
My mother and Husband have both died in 4 weeks

I hope I don't depress ya'll but my mother died about 3 1/2 weeks ago.. that I thought was the hardest thing I was going through. she died with me stroking her arm and telling her how much I loved...
Forum: her2group 03-19-2010, 08:32 PM
Replies: 2
Views: 897
Posted By charlotte
blood coming out of breast cancer mets

Is there someone on this board who has had this happen? I called my Dr. Friday, and he has not returned my call as of yet.
Thanks.... I have been off the board for a while and will post another...
Forum: Keeping Your Mind Off of BC 01-05-2010, 11:54 AM
Replies: 178
Views: 21,919
Posted By charlotte
Christmas Blessing/Miracle

Hi guys... hope I am putting this thread in the right column???
Hello ya'll.. Normally I have only bad and worse than bad news to report.. I am of course having a big time problem, which I won't go...
Forum: Keeping Your Mind Off of BC 01-05-2010, 11:36 AM
Replies: 178
Views: 21,919
Posted By charlotte
Smile Christmas Blessing/Miracle

Hi guys... hope I am putting this thread in the right column???
Hello ya'll.. Normally I have only bad and worse than bad news to report.. I am of course having a big time problem, which I won't go...
Forum: her2group 01-02-2010, 09:12 AM
Replies: 70
Views: 10,997
Posted By charlotte
Re: Joy is at peace now

I would like to also add my hopes, and wishes to you.. I can only imagine how dificult this must be on the family.. Joy will truly be missed.. each time she posted , I would read her posts as soon...
Forum: her2group 12-26-2009, 02:22 AM
Replies: 18
Views: 2,513
Posted By charlotte
Re: Rashes and Recurrence??

I would also like to tell you that my inflammatory breast came back as a rash, itching, has fever.was about the size of a half dollar. It is now covering almost my entire chest area.. I had to go to...
Forum: her2group 12-26-2009, 02:03 AM
Replies: 26
Views: 2,942
Posted By charlotte
Re: Our Anniversary

thank you both for this site, and all that is done to help us folks along this journey... Merry Christmas to all.. Charlotte
Forum: Inflammatory Breast Cancer 12-21-2009, 02:45 AM
Replies: 23
Views: 17,767
Posted By charlotte
Re: when tykerb/xeloda don't work, what next?

I have been on tykerb+xeloda for about a year or so.
I have seen little if any mets disappearing. I was wondering if 5fu added to the mix would help.. This is my thoughts....Has anybody tried this...
Forum: her2group 12-06-2009, 08:08 PM
Replies: 5
Views: 1,220
Posted By charlotte
what the DR. said !!!!

I had a pet scan done recently.. My Dr. said and I quote" can see no evidence of cancer". I just looked at my chest with the inflammatory breasts, almost covering my entire chest.. It is red, angry...
Forum: Herceptin / Tykerb 12-01-2009, 03:47 AM
Replies: 9
Views: 5,091
Posted By charlotte
Re: Xeloda red hot feet!

I also am having side effects from xeloda/tykerb, I have slighty red feet and hands.. the worst part of this is my hands.. they peel, some fingernail damage, fingers are stiff hard to bend etc. I...
Forum: her2group 12-01-2009, 03:26 AM
Replies: 8
Views: 1,528
Posted By charlotte
Re: I am having problems getting correct day

thanks so much for the advice.
Thanks also for asking about Luke.. about 6 weeks ago I had to take him to the hospital, I had to almost drag him kicking and screaminghe Er. they took him right...
Forum: her2group 11-30-2009, 08:31 PM
Replies: 8
Views: 1,528
Posted By charlotte
I am having problems getting correct day

Hey, all... Charlotte checking in.. had a nice Thanksgiving day, at the end of the day, while I was making my way to my car, I fell on concrete.. I have a black eye, bruises all over my self.. I have...
Forum: her2group 11-17-2009, 12:01 AM
Replies: 37
Views: 3,074
Posted By charlotte
Re: How many of you have had a bone scan?

One bone scan was done last year.the background, I asked my Dr. what should I do? nothing .remarkable.on my scan. I have rib pain daily.. I also have had muscle jerking , ..
I have fallen twice in...
Forum: her2group 11-16-2009, 11:35 PM
Replies: 25
Views: 2,833
Posted By charlotte
Re: ~Believe51~Back In The Saddle Again!!

I was glad when I saw your post.. I have missed you.. and I believe many others on this board would agree .. Take care.
Charlotte
Forum: her2group 10-22-2009, 05:56 PM
Replies: 18
Views: 2,472
Posted By charlotte
Re: Stage 4/NED-how long did it last for you?

Each time I have a "progression", it is aroud 18 months. This disease stinks..So many wonderful people have shared their progress, ups and downs etc..
I go back to my Doc. on the 24 and we will see...
Forum: her2group 10-03-2009, 02:22 AM
Replies: 4
Views: 2,069
Posted By charlotte
trach/peg tube?

thanks for the replys.The Dr. came in yesterday and took one look at Luke and he said , this is a very sick man. uh duh.. The game plan is to wait until sometimes next week and then see how Luke is...
Forum: her2group 10-01-2009, 04:21 AM
Replies: 37
Views: 3,605
Posted By charlotte
Re: FREE Brain MRI

another question... would this test encompass folks like me?I have IBC( 4th stage).. also, I am only taking tykerb and xeloda. on a daily basis.
would like to participate in this study if possible....
Forum: her2group 10-01-2009, 04:16 AM
Replies: 37
Views: 3,605
Posted By charlotte
Re: FREE Brain MRI FREE

I also have been having problems getting to give the people my info.In all probably, I will not make the grade,,, too far out.. We will see.Charlotte
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