HonCode

Go Back   HER2 Support Group Forums > Search Forums
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Showing results 1 to 25 of 41
Search took 0.01 seconds.
Search: Posts Made By: supportwife
Forum: Herceptin / Tykerb 02-22-2018, 12:09 PM
Replies: 7
Views: 999
Posted By supportwife
Re: Lisa D

Hi Lisa,

My wife had the same issue while on herceptin alone and she was put on coreg ( minimum dose ) to bring back the LVEF back to normal. Once that was done she continued with Herceptin. As...
Forum: her2group 01-19-2018, 10:15 AM
Replies: 31
Views: 6,968
Posted By supportwife
Re: Need input, KADCYLA or TAS116?

Hi Kim,

Since you have been on Kadcyla for so long, has it happened that they have suspended treatment for a few weeks to get platelets up? My wife was on kadcyla in the past, they switched...
Forum: her2group 01-18-2018, 02:34 PM
Replies: 40
Views: 11,846
Posted By supportwife
Re: Amy? (Mtngrl)

RIP Amy. You were such an inspiration. Whatever little interaction we had, you were so supportive of my wife's situation, in spite of all the turbulences you went through. Will miss you and your...
Forum: her2group 10-30-2017, 12:35 PM
Replies: 13
Views: 2,865
Posted By supportwife
Re: Any good chemos I could try?

Hi Amy,

Did you look into the option of Tucatinib, apparently it has shown good results for brain mets.
Forum: her2group 02-23-2017, 03:54 PM
Replies: 9
Views: 3,908
Posted By supportwife
Re: Surgery for cutaneous mets

Hi Steve,

Are you in US? I have been researching for places which offer electro chemotherapy here.

Thanks
Forum: her2group 02-23-2017, 12:19 PM
Replies: 4
Views: 3,703
Posted By supportwife
Re: Is late afternoon and evening tiredness a side effect ?

With continuous treatments, my wife experiences the same symptoms. She needs her afternoon nap otherwise by evening she feels dog tired.
Forum: her2group 02-23-2017, 12:17 PM
Replies: 9
Views: 3,908
Posted By supportwife
Re: Surgery for cutaneous mets

My wife has cutaneous mets, however the surgeons have stated that it would be very hard to surgically excise a cutaneous met. The skin being such a large organ and since they cannot determine the...
Forum: her2group 02-21-2017, 01:29 PM
Replies: 5
Views: 4,974
Posted By supportwife
Re: Any of you have Axillary Web Syndrome?

Hi Brenda,

My wife started experiencing something similar since December in her left hand. Doctors did an MRI to see if they could see anything but there wasn't anything in her left arm other...
Forum: her2group 02-17-2017, 12:05 PM
Replies: 9
Views: 3,523
Posted By supportwife
Re: CT scan vs PET scan

Here in America and we have been to two premium university hospitals, they have never done PET scan for my wife. They did it only once for radiation planning. The doctors are very comfortable with...
Forum: her2group 02-16-2017, 02:59 PM
Replies: 12
Views: 3,994
Posted By supportwife
Re: Sophia

Thanks a lot Phil, I am hoping Xeloda works with herceptin.
Forum: her2group 02-14-2017, 01:27 PM
Replies: 12
Views: 3,994
Posted By supportwife
Re: Sophia

So my wife was randomized into the Xeloda+Herceptin arm. We were so hoping to get MGAH22. The doctor said, give it 6-9 weeks and see how it helps. If not then go the next one. 9 weeks wait it is.
Forum: her2group 02-08-2017, 01:01 PM
Replies: 9
Views: 6,463
Posted By supportwife
Re: Any information on these trials would be helpful

I talked to the trial coordinator, they said we will know what drugs we are going to get once we are randomized. At that point we are free to decide whether we want to participate at that time. ...
Forum: her2group 02-06-2017, 03:00 PM
Replies: 9
Views: 6,463
Posted By supportwife
Re: Any information on these trials would be helpful

Thanks Tiffany, Doctor is suggesting we enroll into Margetuximab trial first. If we enroll into Keytruda trial we will not be eligible for Margetuximab trial later. If for some reason it fails we...
Forum: her2group 02-02-2017, 10:58 AM
Replies: 12
Views: 3,994
Posted By supportwife
Re: Sophia

My wife is getting into the SOPHIA trial with Margetuximab + chemo. Here in California it is a blinded trial. THe options are MGAH22+chemo or Herceptin+chemo. We are not sure which side we are...
Forum: her2group 01-30-2017, 10:51 AM
Replies: 9
Views: 6,463
Posted By supportwife
Any information on these trials would be helpful

Hi All,

we are evaluating if my wife is eligible for these trials for her skin mets.


1. Margetuximab with Vinorelbine

2. Pembroluzimab with herceptin and Vorinostat.
Forum: her2group 01-05-2017, 01:08 AM
Replies: 1
Views: 2,498
Posted By supportwife
Anybody using immunotherapy for her2+

Hi All,

currently my wife is getting treated for skin mets and currently on ASTELLAS trial, which is getting Enzalutamide + herceptin. it worked for a while but now the doctor is considering...
Forum: her2group 08-03-2016, 12:48 PM
Replies: 2
Views: 2,893
Posted By supportwife
Medical Insurance question

Hi All,

Currently My wife , mykids and I are on my wife's medical insurance plan through her company. However starting December, that will end as she is going to be switched to Medicare as she is...
Forum: her2group 07-29-2016, 10:41 AM
Replies: 10
Views: 3,500
Posted By supportwife
Re: Can anybody help please?

My wife went through the same thing, but it was more during the treatment. She was in denial when she got diagnosed, I remember those night marish days when I had to literally drag her out for...
Forum: her2group 02-29-2016, 01:21 PM
Replies: 4
Views: 3,824
Posted By supportwife
Anyone on I SPY-2 Trial?

Hi Friends,

Is anybody on I SPY-2 trial or have any information about it? I read online and could not really follow what drugs are going to be used.

Thanks
Forum: her2group 01-22-2016, 12:51 PM
Replies: 129
Views: 49,621
Posted By supportwife
Re: Need input!

Thanks Juls,

However that brings up a good point as part of regular scans, should we as patients / caregivers request for bone scan in addition to CT? From what I see, it does not seem like a...
Forum: her2group 01-21-2016, 11:32 PM
Replies: 129
Views: 49,621
Posted By supportwife
Re: Need input!

Are CT you refer same as bone scan? I have always been told that CT only looks at soft tissue and not bones. A bone scan is more accurate to check for bone issues. Is that not true?

Thanks
Forum: her2group 01-12-2016, 10:50 PM
Replies: 20
Views: 5,304
Posted By supportwife
Re: Yan Yan is in heaven

RIP Yanyan,

I know we exchanged a few emails, you were always so supportive. Thank you for all the support and encouragement.
Forum: her2group 12-17-2015, 04:48 PM
Replies: 20
Views: 5,808
Posted By supportwife
Re: Progression, starting TDM1

That's fantastic news. Keep your spirits up.
Forum: her2group 12-16-2015, 11:49 AM
Replies: 22
Views: 7,290
Posted By supportwife
Re: Approaching 5 yr cancerversary but running out of options

Hi Yanyan,

Sorry to hear about this. You are in my prayers. Please be strong. There are other options from what I heard Doxil with hyperthermia is being considered aggressively at many centers....
Forum: her2group 11-28-2015, 04:02 PM
Replies: 5
Views: 3,459
Posted By supportwife
Re: Multiple lung nodules any idea?

Hi Yanyan,

Not sure where you are located but UCSF is doing chemo with liposomal Doxil and it sounds promising. ALso they are doing a clinical trial with enzalutamide if you are er- and pr- also...
Showing results 1 to 25 of 41

 
Forum Jump

All times are GMT -7. The time now is 05:40 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter