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Search: Posts Made By: Juls
Forum: her2group 04-17-2019, 04:34 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hello everyone, this is Julie's son, Iain.

My beautiful Mum sadly passed away on Saturday 13th April.

I apologise if this is not the done thing to post the news here, but I know this forum has...
Forum: her2group 02-25-2019, 10:57 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,

Thanks for the info. It always helps!

So far they are giving me 2 weeks on with one off. I'm told that after this 2nd treatment blood levels particularly platelets will fall probably...
Forum: her2group 02-25-2019, 10:52 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi all,

Not been on site for a while. Had 2nd Eribulin on 21st - so far feel ok. A bit of sort throat but time will time!
Still waiting on all information I asked for at last oncologist visit....
Forum: her2group 02-08-2019, 10:10 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi All,

Choices are :-

1. Epirubicin

2. Eribulin

2. No Chemo.
Forum: her2group 02-08-2019, 10:01 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Thanks Donna,

Much appreciated!

Juls
Forum: her2group 02-06-2019, 04:03 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Nancy,

Have to agree - very little choice here!
Told I'm in the best place (Beatson)
Hopefully some answers tomorrow.

Regards
Juls
Forum: her2group 02-06-2019, 01:04 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi,

Another change - blood test good. So I have to decide tomorrow and start a Chemo next Thurs 14th!

Geez!

Juls
Forum: her2group 02-06-2019, 01:01 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Cathya,

Forgot to say I have had Letrozole.


Juls
Forum: her2group 02-05-2019, 03:12 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Nancy,

I'm not so far way - an hour down the coast!

That's good to know. My Onc. did say it was good for Her2+. I am a bit concerned about starting it this week as I am still recovering...
Forum: her2group 02-05-2019, 03:04 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi SoCalGal,

Think at the moment no-one sure which way to go. Consultation last Thursday was for Epiribucin. Friday morning Doctor called and suggested Eribulin. I have been researching today...
Forum: her2group 02-05-2019, 02:53 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,

Also on Gabapentin and Amitriptyline. Just finished Dexamethasone. One minute its my platelets next its Bilirubin!
Juls
Forum: her2group 02-03-2019, 06:14 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Becky,

Thanks for your reply. Will look into all this later today.
Apparently there is a similar drug to Kadcyla (mono clonal ?) which was mentioned last week. Think Keytruda so will also...
Forum: her2group 02-03-2019, 06:06 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,
Thank for your reply. I really don't know which way to go. Each time I speak to My Oncologist something else is mentioned. Then I'm left to research myself! I guess I have to reduced...
Forum: her2group 02-02-2019, 11:22 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi All,

Had consultation on Thursday. Most questions from 2weeks ago unanswered.
Again team worried about bilirubin & that it might knock me off other trials and treatments.

Asked if any tests...
Forum: her2group 01-29-2019, 10:21 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,

I can buy this here. Will look into it. I do have slightly low blood pressure so will research that as well.
Thanks Paul!
Now waiting to see if MRI is going to delay...
Forum: her2group 01-20-2019, 12:59 PM
Replies: 111
Views: 13,500
Posted By Juls
Re: ZW25 clinical trial - day one

Hi Flori

Thinking of you.

Keep on kicking.

Think I've joined you with this attitude! My iron fist well out silk glove.
Should be called Battling Bessie now!!

Take care
Forum: her2group 01-19-2019, 11:56 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi All.

Already a hiccup, Just received appt. for MRI/Liver. for 6th February.
Oncologists meeting regarding new treatment is 31st January. So obviously info won't be available. I'm guessing...
Forum: her2group 01-18-2019, 02:50 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Cathya,

Thanks - will add to list for discussion and do so more research. Unfortunately in my area (Scotland) info and discussion limited!! Think I did the talking at my last meeting.
...
Forum: her2group 01-18-2019, 10:43 AM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Cathya

I am strongly triple positive.

I have had letrozole before and just stopped aromasin last week because of this progression. Currently on no treatment. Radiation finished 16th Jan...
Forum: her2group 01-17-2019, 03:51 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi All,

Just out of hospital. Turned out sciatic pain is either cancer cell or new bone met in pelvis near groin. In exact position that I've felt nerve on and off over Summer. Got worse 31st...
Forum: her2group 01-08-2019, 01:38 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Flori,


I've been better!!

Haven't been on site for a while.
Sciatica flared up just when ablation done. Got so bad I ended up at Emergency Dept. Still in discomfort and walking badly.
...
Forum: her2group 01-08-2019, 01:23 PM
Replies: 124
Views: 14,095
Posted By Juls
Re: Treatment after Kadcyla?

Hi Unclaimed,

Thanks for asking. Haven't been on here for a while.
Going for Ct this week to check Ablation area etc. Had little pain from it but have had a bit of cramping.

Oncologist...
Forum: her2group 10-30-2018, 01:22 PM
Replies: 5
Views: 1,979
Posted By Juls
Re: Tens Machine

Becky,
Will look into it. I'm sure Health Shop has the oil.
Thanks!
Juls
Forum: her2group 10-29-2018, 09:39 AM
Replies: 5
Views: 1,979
Posted By Juls
Re: Tens Machine

Thanks Becky!


Might be a "no" then as I have a tiny bone met in pelvis (same side). Really wanted to use this as nerve driving me mad!

Juls
Forum: her2group 10-28-2018, 09:46 PM
Replies: 5
Views: 1,979
Posted By Juls
Tens Machine

Hi All,

Does anyone know if you can use a tens machine when you have cancer?

I bought one yesterday as I have had sciatica for last few weeks. After reading instructions noticed not...
Showing results 1 to 25 of 490

 
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