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Search: Posts Made By: v-ness
Forum: her2group 05-02-2017, 04:55 PM
Replies: 13
Views: 5,619
Posted By v-ness
Re: when did you 'break up' with your onco?

thanks for your responses. actually, i got a hysterectomy in august 2010 because my mom died of ovarian cancer right after i finished radiation that spring. i think i am going to stick with my onco...
Forum: her2group 04-25-2017, 02:47 PM
Replies: 13
Views: 5,619
Posted By v-ness
when did you 'break up' with your onco?

hi all - this week it has been 7 years since i finished rads (although i still had herceptin until october 2010). last year my onco told me we could "break up" if i wanted. i wasn't really so keen on...
Forum: her2group 06-07-2016, 11:38 AM
Replies: 40
Views: 12,825
Posted By v-ness
Re: Karen has moved on

this news is a punch in the stomach. i actually returned here today to ask her advice about something because last summer we had PM'd each other after my boyfriend was diagnosed stage 4. she was so...
Forum: her2group 05-28-2016, 12:56 PM
Replies: 21
Views: 6,436
Posted By v-ness
Re: Law suit due to Taxotere permanent hair loss/balding

thank you, lauriesh, for pointing out the facts people should know about. it's one thing to feel grateful that a chemo drug saves your life, but that does not mean a company should not be taken to...
Forum: her2group 05-28-2016, 12:41 PM
Replies: 4
Views: 2,786
Posted By v-ness
Re: tamoxifen side effects?

i was on tamoxifen for 6 yrs and had extreme hot flashes and joint pain. i am happy to report for those looking forward to the end of tamoxifen that, in my case, the joint pain lifted as if a...
Forum: her2group 05-28-2016, 12:34 PM
Replies: 36
Views: 11,885
Posted By v-ness
Re: 12 years Stage 4 - Still A-OK

i am so thrilled for you to read this post. many congratulations to you and best wishes for today and every day.
Forum: her2group 03-04-2016, 02:06 PM
Replies: 14
Views: 3,868
Posted By v-ness
Re: Majority of breast cancer patients develop symptoms of PTSD

what do you mean by 'scaring women into self exams'? i am confused. cancer is scary, no matter how you try to reason with women to perform self exams at any age, it will come off as 'scaring' because...
Forum: her2group 02-21-2016, 10:27 AM
Replies: 8
Views: 3,361
Posted By v-ness
Re: Cancer centers of America

ok, checked with him. his onco doesn't actually 'work' with alschuler. instead, the onco admitted that such things are beyond the scope of his knowledge since naturally he focuses on oncology. he...
Forum: her2group 02-20-2016, 06:53 PM
Replies: 9
Views: 4,083
Posted By v-ness
Re: Got hope? Here's a great story...

thank you for this, andi. my BF read the Radical Remission book and while he thought some of it was kind of really 'out there', he did decide to do several things it mentioned - juicing and some diet...
Forum: her2group 02-20-2016, 06:41 PM
Replies: 8
Views: 3,361
Posted By v-ness
Re: Cancer centers of America

patrice - how odd that you're being treated at DF too and the team you have pooh-pooh supplements. Sloan-Kettering has an entire area devoted to integrative medicine. i mean right here on their...
Forum: her2group 02-19-2016, 05:40 PM
Replies: 8
Views: 3,361
Posted By v-ness
Re: Cancer centers of America

i know nothing of the Cancer Center of America *but* i can tell you that my boyfriend is being treated for stage 4 colon cancer at Dana Farber and the onco referred him to their department for...
Forum: her2group 02-17-2016, 12:09 PM
Replies: 5
Views: 3,265
Posted By v-ness
Re: going off tamoxifen

thank you for your responses! i appreciate it. i left a message for my onco on friday but i still haven't heard back, but i still quit taking it on friday. i'm just waiting to hear if i can now quit...
Forum: her2group 02-12-2016, 02:26 PM
Replies: 68
Views: 25,378
Posted By v-ness
Re: Boosting Your Immune System - share your ideas

i take D3 - 10,000 daily, vitamin E and C and B12, turmeric, echinacea and matcha green tea. also, i exercise vigorously 5 days a week.
yeah 6 remission. :)
Forum: her2group 02-12-2016, 02:11 PM
Replies: 5
Views: 3,265
Posted By v-ness
going off tamoxifen

hi - i have continued on tamoxifen even though my five years were up last april because my boyfriend was diagnosed with stage 4 cancer. i wanted any anti-cancer ammo i could get in my corner for...
Forum: Diet and Nutrition 02-12-2016, 02:09 PM
Replies: 2
Views: 3,933
Posted By v-ness
going off tamoxifen

hi - i have continued on tamoxifen even though my five years were up last april because my boyfriend was diagnosed with stage 4 cancer. i wanted any anti-cancer ammo i could get in my corner for...
Forum: Diet and Nutrition 02-12-2016, 12:39 PM
Replies: 8
Views: 5,379
Posted By v-ness
Re: Running with breast cancer?

i would not take any advice from a health food store worker. they say the same thing about massages and my oncologist said it's BS. you are getting a LOT more out of running during cancer than you...
Forum: her2group 11-11-2015, 11:20 AM
Replies: 5
Views: 3,406
Posted By v-ness
Re: big step towards preventing metastasis of breast cancer!

i find this at once fascinating, exciting and yet chilling. thinking how micro-mets can just hide out for decades? ugh. an office-mate just got a recurrence in the same place in her breast 12 yrs...
Forum: her2group 11-11-2015, 10:01 AM
Replies: 11
Views: 5,499
Posted By v-ness
Re: Anyone taking/taken Taxotere and Carboplatin with Herceptin???

TCH was my protocol and i had no issues with the first infusion whatsoever with the exception of the advent of hot flashes. i lost my hair 2 weeks after the infusion. i did not find it to be...
Forum: her2group 07-22-2015, 07:14 AM
Replies: 4
Views: 1,304
Posted By v-ness
Re: Link knee cartilage problems pre-diagnosis and breast cancer?

i did. i had stopped running because of my knees and had (still have) patellar chondromalacia and little bone floaters in my knee and of course decreased amounts of cartilage. i cannot tell you what...
Forum: her2group 07-22-2015, 07:12 AM
Replies: 39
Views: 3,589
Posted By v-ness
Re: All clear Mammo and ten years out!

congratulations to you, tricia! i love coming here and seeing several good news posts.
Forum: her2group 07-22-2015, 07:09 AM
Replies: 10
Views: 2,303
Posted By v-ness
Re: Some Slight Consolation

hi - do you need to have quit your job to get your loans forgiven? my BF is still planning to return to work in the fall (he's a prof and advisor) in the advisor position. others will take over his...
Forum: her2group 07-22-2015, 07:03 AM
Replies: 39
Views: 5,713
Posted By v-ness
Re: 10 yrs brain mets - still NED ...

i have used you as an example to my boyfriend in one of my many pep talks about his stage 4 cancer (not in the brain, but still). stories like yours help him feel strong and in the fight and swear...
Forum: her2group 07-22-2015, 07:00 AM
Replies: 4
Views: 1,412
Posted By v-ness
Re: Graduating to yearly mammos

i understand what you mean. i like any time i can get a manual exam now that i'm like you on the once-a-year mammo. so i get my every 6 mo onco visit and in between that i go to the gyno and then the...
Forum: her2group 06-16-2015, 01:06 PM
Replies: 20
Views: 6,466
Posted By v-ness
Re: 10 years later non BRCA ovarian cancer

cathy - i am sorry to read that you have to deal with cancer yet again but so happy to read that you caught the ovarian at stage 1. that is amazing, because usually it's caught so much later because...
Forum: her2group 06-16-2015, 12:58 PM
Replies: 19
Views: 1,774
Posted By v-ness
Re: A decade

congratulations! love reading messages like this. valerie
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