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Forum: her2group 05-12-2018, 01:25 PM
Replies: 35
Views: 22,428
Posted By scrunchthecat
Re: Working thread - what do you think the HER2+ standard of care should be really?

So here's a new issue that has come up in a couple of cancer discussion boards recently: Why must we all receive the maximum tolerated dose? Why is that the standard of care? An article recently...
Forum: her2group 04-09-2018, 03:20 PM
Replies: 9
Views: 5,399
Posted By scrunchthecat
Our Dear Agness Is Not Well

Dear HER2 Support Community,

I am very sorry to tell you that our beloved Agness is not doing well. Her family has created a closed Facebook Group where people who were touched by her may leave a...
Forum: her2group 01-01-2017, 06:15 PM
Replies: 48
Views: 40,523
Posted By scrunchthecat
Re: My leptomeningeal journey

Anne - so glad to hear that treatment is going well. Hope you and your family have a fantastic holiday!
Forum: her2group 10-14-2016, 05:01 PM
Replies: 27
Views: 7,951
Posted By scrunchthecat
Re: Ah, Sweet Anxiety

Congrats!!!!
Forum: her2group 05-29-2016, 05:52 AM
Replies: 51
Views: 14,020
Posted By scrunchthecat
Re: Resveratrol--interpret this article?

Thanks for the most informative post, VCD. SoCalGal- I have a question for you: your profile states that you developed a herceptin allergy, but then went on premeds and things got better? I have been...
Forum: her2group 05-14-2016, 09:39 AM
Replies: 35
Views: 22,428
Posted By scrunchthecat
Re: Working thread - what do you think the HER2+ standard of care should be really?

It seems that the cancer-industrial complex has some statistics about how well patients will respond to specific treatments, based on results from both IHC and the FISH test. IHC grades HER2 from 1...
Forum: her2group 04-25-2016, 06:18 PM
Replies: 11
Views: 4,744
Posted By scrunchthecat
Re: Unexpected trigger for GERD

I had a round of GERD during round 4 of THP. I took nexium for 2 weeks and then followed the GERD diet of smaller meals, no acidic foods and it eventually went away.
Forum: her2group 02-27-2016, 07:39 AM
Replies: 48
Views: 40,523
Posted By scrunchthecat
Re: My leptomeningeal journey

That's great news, Ann! Hang in there, and keep us posted.
Forum: her2group 02-20-2016, 09:38 AM
Replies: 17
Views: 6,030
Posted By scrunchthecat
Re: discovering why some Stage IVs are exceptional responders to herceptin/lapatinib(

StephN - Which vaccine trial did you participate in at UWash??
I am being considered for one at NIH: NCT01730118.

sj
Forum: her2group 02-14-2016, 06:25 AM
Replies: 389
Views: 154,950
Posted By scrunchthecat
Re: Calling all stage iv sisters

Hey MaineR - No AI for me. I have had a great response to the HER2 treatments. Honestly, they don't know what to do with PR+. lol - I was going to say that there is one lonely thread on BCO for folks...
Forum: her2group 02-13-2016, 07:47 PM
Replies: 389
Views: 154,950
Posted By scrunchthecat
Re: Calling all stage iv sisters

I was diagnosed May 2015, Stage IV from the outset with a few small spots on my liver. I had a large (6cm) tumor on my right breast and a bunch of hot lymph nodes in my right arm. Started THP in June...
Forum: her2group 01-28-2016, 08:50 PM
Replies: 48
Views: 40,523
Posted By scrunchthecat
Re: My leptomeningeal journey

Agness - Thank you for sharing your story. I have read only snippets on Inspire and BCO. I hope things are going well for you now.
Forum: her2group 01-17-2016, 08:42 AM
Replies: 68
Views: 31,043
Posted By scrunchthecat
Re: Boosting Your Immune System - share your ideas

I am taking 100mg of CoQ10 and 1000 units of D3 every day. I am going to add 1 gram of Turkey Tail (http://www.amazon.com/gp/product/B00WGROQIM?) beginning next week. These are all the recommended...
Forum: her2group 01-17-2016, 08:24 AM
Replies: 11
Views: 6,981
Posted By scrunchthecat
Re: Feeling down...

Sweetie, the best advice I received since diagnoses was from my PT: Think of "going to the gym" as the icing on the cake. Try to get 30 minutes of exercise every day, preferably first thing in the...
Forum: her2group 01-13-2016, 04:42 PM
Replies: 1
Views: 2,890
Posted By scrunchthecat
Re: News: Time Is Right for Obama's Ambitious Cancer 'Moonshot,' Experts Say

You can share your story with Biden here. Let him know about MBC!

https://www.whitehouse.gov/webform/cancer-touches-all-us-share-your-story-here
Forum: her2group 01-10-2016, 06:15 PM
Replies: 35
Views: 22,428
Posted By scrunchthecat
Re: Working thread - what do you think the HER2+ standard of care should be really?

Agness - Thanks for starting this! I don't have a lot of original material to add, but I can underscore some of your points:

1. There needs to be a better understanding of, and a better...
Forum: her2group 12-27-2015, 10:24 AM
Replies: 1
Views: 3,394
Posted By scrunchthecat
Re: Markers of resistance - overcoming resistance to anti-HER2 therapy

Thanks, Agness! Hope you are enjoying your holidays.
Forum: her2group 11-01-2015, 02:54 PM
Replies: 15
Views: 4,476
Posted By scrunchthecat
Re: Progesterone Positive, Estrogen Negative

Hi Maine Rotweillers,

Ask the DF people what they generally recommend for folks who are HER2+, ER- and weakly PR+

Thanks!
Forum: her2group 10-27-2015, 11:02 AM
Replies: 15
Views: 4,476
Posted By scrunchthecat
Re: Progesterone Positive, Estrogen Negative

Hi Maine,

I am also HER2+ ER- and PR+. I am HER2+++ - strongly HER2. My onc has me on HER2 treatment only. I got the Cleopatra protocol - Taxotere, Herceptin, Perjeta for 6 rounds, now on H&P...
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