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Search: Posts Made By: Juls
Forum: her2group 10-16-2018, 02:34 AM
Replies: 39
Views: 1,928
Posted By Juls
Re: ZW25 clinical trial - day one

Great news Flori!

Good luck for tomorrow.

Juls
Forum: her2group 10-12-2018, 10:09 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Thanks Nancy & Donna.


At hospital yesterday & all good after ablation.
My Bilirubin level has been an issue for months but in 1 week bilirubin level has gone down from 47 to 22.
Don't need...
Forum: her2group 10-12-2018, 09:53 AM
Replies: 39
Views: 1,928
Posted By Juls
Re: ZW25 clinical trial - day one

Hi Flori,

Thinking of you!

Juls
Forum: her2group 10-05-2018, 12:13 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Thanks Becky, Carol Ann & Melissa,


Feel like I've been run over by a truck today!!


Juls
Forum: her2group 10-04-2018, 02:36 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Ablation done yesterday.
So far so good!

Juls
Forum: her2group 09-24-2018, 03:27 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Carol Ann -

Thanks! Slow progress but good!

Laurel -

Thanks for your kind words. I first asked for this procedure over 5 years ago. Been a long time coming!

Juls
Forum: her2group 09-22-2018, 02:21 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

A step forward.

At long last!

Got telephone call from Doctor's Secretary yesterday. Doc wants to do ablation on 3rd Oct

Guess where I'm spending my "big" birthday!
Geez!
Juls
Forum: her2group 09-22-2018, 02:05 PM
Replies: 39
Views: 1,928
Posted By Juls
Re: ZW25 clinical trial - day one

Flori,

Hope round 3 goes well.
Thinking of you.
Juls
Forum: her2group 08-31-2018, 03:35 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi All,

Just an update!!

Saw Consultant Radiologist re ablation this week. (Originally referred to him 5 years ago & then again 3 months ago.) To be honest wasn't sure he actually existed.
...
Forum: her2group 08-29-2018, 04:08 PM
Replies: 39
Views: 1,928
Posted By Juls
Re: ZW25 clinical trial - day one

Good to hear treatment has started at long last!

Hope your feeling better today.

Juls
Forum: her2group 08-08-2018, 03:46 PM
Replies: 71
Views: 6,722
Posted By Juls
Re: Cancer 'n Me

Hi Flori,

I feel your frustration!

Juls


(Like you - still waiting for next move. Only plus is I'm on Aromasin while I wait.)
Forum: General Cancer News 07-31-2018, 04:43 PM
Replies: 1
Views: 433
Posted By Juls
Forum: her2group 07-30-2018, 01:46 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Flori,

I'll ask again for Herceptin.
Good luck tomorrow re trials info.

Juls


Just received Ct appt for 1 week after MRI. Both are for abdomen scans. Seriously?
Forum: her2group 07-30-2018, 01:21 PM
Replies: 71
Views: 6,722
Posted By Juls
Re: Cancer 'n Me

Hi Flori,
Thinking of you.
Good luck tomorrow.
Juls
Forum: her2group 07-27-2018, 01:26 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Valleygirl,

Both these trials sound interesting. Can't find much info about NCTO3248492 trial either.

Juls
Forum: her2group 07-27-2018, 01:10 PM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Flori.

Yes- thought it would still be prescribed and give me some benefit. When I asked a few weeks ago was told "No" as I had failed it!


Similar to you, Doctor wasn't giving me another...
Forum: her2group 07-27-2018, 11:25 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Just been told that MRI reports taking 4-6 weeks minimum at the moment. So not only have I waited 7 weeks for appt etc. I have now to wait another 2 weeks after MRI for Doctor appt & might not get...
Forum: her2group 07-27-2018, 11:20 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Flori,

Good to hear from you.

Haven't looked into any trials recently. Haven't been offered any either!

Have you been taken off all treatment at the moment?

I'm on Aromasin &...
Forum: her2group 07-23-2018, 05:05 AM
Replies: 97
Views: 13,078
Posted By Juls
Forum: her2group 07-23-2018, 05:04 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi All,

On another note :-

After nearly 6 weeks wait for "an appt in a few days" - just received letter for MRI appt in 2 weeks time!
Forum: her2group 07-23-2018, 05:02 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul

Reserved is a good word!

Juls
Forum: her2group 07-20-2018, 04:30 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,

Not sure if any of us know Health Care Policy here! It's only when flung into it that you become aware of the rules and regulations. I certainly didn't realise how many drugs not...
Forum: her2group 07-19-2018, 06:29 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul,

Will do!
I wonder if she was just brushing me off or didn't really know!

Thanks again.
Juls
Forum: her2group 07-17-2018, 11:12 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul
Interesting! It was my Oncologist that told me it was only a carrier.

Thanks for doing this Paul!

Juls
Forum: her2group 07-16-2018, 03:10 AM
Replies: 71
Views: 4,662
Posted By Juls
Re: Treatment after Kadcyla?

Hi Paul

I thought it must have some benefit. Particularly as my Oncologists next comment was "have to watch your heart." (Mind you, this was more to do with future chemo's and my heart being up...
Showing results 1 to 25 of 465

 
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