HonCode

Go Back   HER2 Support Group Forums > Search Forums
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Showing results 1 to 25 of 47
Search took 0.01 seconds.
Search: Posts Made By: DizzyDo
Forum: her2group 12-04-2016, 07:32 AM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Hello everyone!

It's been ages since I posted, but just an update. I had another SRS round in May of this year to bring it to a total of 4 treatment cycles for 6 mets. The radiation onc was...
Forum: her2group 01-08-2016, 06:33 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Hi All -

Sorry it's been a while since I posted...I decided to make some changes in my life. I quit my job in Washington and took a new one in North Dakota! This is closer to family and...
Forum: her2group 08-10-2015, 04:44 AM
Replies: 26
Views: 4,706
Posted By DizzyDo
Re: Brain Met

Hello Freakzilla -

I also had brain mets - three total, found last December. All treated with SRS. Other than having the dex steroids change me into a raging lunatic, the treatment worked very...
Forum: her2group 07-02-2015, 07:58 PM
Replies: 27
Views: 3,884
Posted By DizzyDo
Re: IT Hercepton and update on Saygoon

All the best to you Paula, you are in my prayers!
Forum: her2group 07-02-2015, 07:56 PM
Replies: 39
Views: 5,791
Posted By DizzyDo
Re: 10 yrs brain mets - still NED ...

Wow! You are truly amazing! Here's to many more!
Forum: her2group 04-20-2015, 12:03 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

KSGal - oh loved the typo, too funny! I spit coffee on my iPad when I saw it, I was laughing so hard. Thanks all for the positive thoughts and best to all of you. For those of you doing the SRS,...
Forum: her2group 04-16-2015, 02:16 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Thanks everyone for the kind comments and support! I just got the results of my MRI two months post treatment. No new lesions, the large one is down to 8 mm from 15. The small ones are about the...
Forum: her2group 02-15-2015, 09:40 AM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Hi everyone - just an update - I finished my treatment two weeks ago, it was pretty straight forward. Now it's wait and see - MRI will be in 2 months. Tapering off the Dex is a bit rougher than I...
Forum: her2group 01-24-2015, 10:51 AM
Replies: 16
Views: 2,315
Posted By DizzyDo
Re: Question on brain mets

Such good news! :) I am happy for you!
Forum: her2group 01-24-2015, 10:48 AM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Hi everyone! Just an update - I'm still doing good - I had my second treatment this week and I am scheduled for the final one next week. Definitely the worst part of this is the Dex, my skin is...
Forum: her2group 01-13-2015, 06:59 PM
Replies: 12
Views: 2,289
Posted By DizzyDo
Re: Recommended: regular brain MRIs for all HER2+ patients

I didn't have symptoms before the seizure either. But It does scare me that it could have happened when I was driving or something. I was at work and my coworkers told me I started batting my arm,...
Forum: her2group 01-13-2015, 06:45 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

I had my first session today with the gamma. Pretty much a non event, I almost fell asleep! Lots of people they made it easy. I get 2 more treatments over the next 2 weeks because there are 3...
Forum: her2group 01-10-2015, 11:00 AM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Thanks for all the support! I love the other posts as well about the stereotactic radiation successes. Right now I am hanging in here, my only issue is dealing with the dex. Wow this stuff is...
Forum: her2group 01-10-2015, 10:39 AM
Replies: 26
Views: 2,191
Posted By DizzyDo
Re: Cyberknife Success and Ceesun

Wow great news! Thanks for posting this, it gives me so much hope!
Forum: her2group 01-08-2015, 10:49 PM
Replies: 32
Views: 3,223
Posted By DizzyDo
Re: 10 years - one decade - since brain mets diagnosis

Wow Steph thank you SO MUCH for sharing that!!!! You really made my day and it does really, really help ease my mind. I am now 10 days from my brain mets diagnosis after seizure and my zaps are...
Forum: her2group 01-07-2015, 03:13 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Re: Ugh Brain Mets!

Thanks for the replies Jessica and RolePaul. Love the idea of mediation and the sleep advice, I'll give that a whirl Jessica!

Your reply gave me a good teehee RolePaul, I am definitely a Dex...
Forum: her2group 01-05-2015, 10:40 PM
Replies: 16
Views: 2,315
Posted By DizzyDo
Re: Question on brain mets

Oh Bejuice - I just posted my brain met story, hope it doesn't scare you! Good idea to get the MRI. Best of luck to you and I'm praying for a clean scan for you!
Forum: her2group 01-05-2015, 10:35 PM
Replies: 49
Views: 19,306
Posted By DizzyDo
Ugh Brain Mets!

Hello Lovelies, I need some of your advice again.

Just when things were going well....I just found out I have 3 little mets in my brain. Ugh. I had a seizure last week and the MRI found em. Doc...
Forum: her2group 08-31-2014, 10:41 AM
Replies: 11
Views: 2,540
Posted By DizzyDo
Re: Managing Diarrhea

Hi Mtngrl -

I am also on the Herceptin/Perjeta combo, having dropped the taxol in late May. The big D is a struggle and was horrible at first, with the help of the nurses where I get treated, I...
Forum: her2group 08-24-2014, 12:32 PM
Replies: 6
Views: 1,873
Posted By DizzyDo
Re: "Just Breathe"

Thanks, I needed to read that today!
Forum: her2group 07-25-2014, 01:48 PM
Replies: 3
Views: 1,734
Posted By DizzyDo
Re: Big news for Her2+!

There are also metastatic trials underway as well. Interesting that the stock for Puma (the biotech developing this) shot up 300% after this announcement. A lot of investors were shorting the stock...
Forum: her2group 07-25-2014, 01:39 PM
Replies: 12
Views: 2,006
Posted By DizzyDo
Re: Wanting to encourage the new her2 sisters.

Thanks for coming back and sharing with us. I am a newbie, The insight from those of you that have been through this is so valuable!
Forum: her2group 07-24-2014, 10:57 PM
Replies: 4
Views: 3,594
Posted By DizzyDo
Re: My story of how Dr. Slamon saved my life!

Wow so cool you were actually in the movie! Thanks for sharing that!
Forum: her2group 07-24-2014, 10:56 PM
Replies: 6
Views: 1,605
Posted By DizzyDo
Re: A friend's good news

Wow - metastatic on two different kinds of breast cancer and ned! Thanks for sharing that, amazing!
Forum: her2group 07-24-2014, 10:54 PM
Replies: 9
Views: 1,760
Posted By DizzyDo
Re: Scan results are in

Thanks for all the well wishes, your support really helps me! Thanks also for the advice, it's really good to have more experienced people who know this better than I!

Does anyone go to SCCA or...
Showing results 1 to 25 of 47

 
Forum Jump

All times are GMT -7. The time now is 05:45 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2018, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter