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Search: Posts Made By: jaykay
Forum: her2group 12-09-2019, 02:18 PM
Replies: 1
Views: 70
Posted By jaykay
Re: Osteoporosis: is it caused by chemo?Not just aging?

I’ve had osteopenia since I went through menopause 20+ years ago (pre breast cancer). Being on letrozole for many years does not help but I’m holding my own. My vitamin d levels have always been...
Forum: her2group 12-09-2019, 02:07 PM
Replies: 11
Views: 842
Posted By jaykay
Re: Melanoma Biopsy when almost 5yrs NED BC.

Hi Jessica,

Sorry you had to go though the angst of another cancer. I also had a melanoma removed 3.5 years ago. I noticed it myself, my dermatologist did the biopsy and I was shocked to hear it...
Forum: her2group 09-10-2019, 09:20 AM
Replies: 68
Views: 7,115
Posted By jaykay
Re: Whack-a-mole next...

Great news, Flori!
Forum: her2group 09-05-2019, 09:50 AM
Replies: 68
Views: 7,115
Posted By jaykay
Re: Whack-a-mole next...

Dear Flori,

I'm with Jessica re: doctors and their timelines. Many of us would be speaking from the grave if their timelines were valid.

Thinking of you and sending positive thoughts

xoxo...
Forum: her2group 09-01-2019, 11:52 AM
Replies: 9
Views: 898
Posted By jaykay
Re: Tamoxifen - 8-10 years?

I took Tamoxifen for 4.5 years and Femara (letrozole) for 5 years after my first bout with breast cancer. 2 years after I stopped, I had a new primary (I call it a recurrence!) tumor in my "healthy"...
Forum: her2group 08-16-2019, 08:41 AM
Replies: 68
Views: 7,115
Posted By jaykay
Re: Whack-a-mole next...

Like everyone else you have touched - thinking of you, Flori. Hang in there!
Forum: her2group 06-24-2019, 11:06 AM
Replies: 68
Views: 7,115
Posted By jaykay
Re: Whack-a-mole next...

Aw, f__k, Flori! No words of wisdoms, only love and positive thoughts.
Forum: her2group 06-12-2019, 05:33 PM
Replies: 13
Views: 1,598
Posted By jaykay
Re: Long term survivor checking in!

Such great news from all the long term survivors! I’m almost 7 years out from my second diagnosis and I echo Donna’s thoughts.
Forum: her2group 04-01-2019, 05:49 PM
Replies: 7
Views: 740
Posted By jaykay
Re: 5 yr or 10 yr Femara

Hi Donna, congrats on the five year mark!

I was told 10 years is the “new norm” for AI’s. This is my second “stretch” with femara (almost 6 years). First time was 5 years and I developed a new...
Forum: her2group 10-31-2018, 08:49 AM
Replies: 18
Views: 3,820
Posted By jaykay
Re: Sleepness nights after chemo

I believe the drug is zofran for nausea. Ativan for stress relief, sleeping aid. Similar to Valium
Forum: her2group 09-07-2018, 02:51 PM
Replies: 10
Views: 3,910
Posted By jaykay
Re: Chemo Not Needed for Most Early Breast Cancer: TAILORx

I’m with Sarah on this one. I was diagnosed with stage 1a and had radiation as well as anti-estrogens for 10 years. Herceptin was out of the question for early stage. 12 years later...
Forum: her2group 08-09-2018, 05:29 PM
Replies: 9
Views: 3,771
Posted By jaykay
Re: Recurrence

Hi Ginny, sorry to hear of your recurrence. I recurred after 12 years and even though it was considered a new primary because it was in the other breast, it was the exact same pathology as the...
Forum: her2group 07-30-2018, 03:33 PM
Replies: 71
Views: 13,775
Posted By jaykay
Re: Cancer 'n Me

Hey Flori,

Thinking of you and hoping for some positive news re:trials and everything else. You are an incredibly brave lady.
Janis
Forum: her2group 05-13-2018, 10:48 AM
Replies: 71
Views: 13,775
Posted By jaykay
Re: Cancer 'n Me

Ah Flori - love the mohel reference but hate the context. Will be thinking of you tomorrow.

F’ing cancer
Forum: her2group 04-11-2018, 12:39 PM
Replies: 8
Views: 3,952
Posted By jaykay
Re: Stroke after tamoxifen

Oh jeez, Europa! I'm glad you're okay now but it must have been frightening for you
Forum: her2group 03-11-2018, 10:13 AM
Replies: 39
Views: 10,009
Posted By jaykay
Re: Kadcyla n me

Dear Flori - crossing my fingers and toes that the side effects and liver numbers stay within the tolerable range.

Thinking of you
Forum: her2group 02-09-2018, 06:13 AM
Replies: 17
Views: 5,621
Posted By jaykay
Re: 6 years later and MRI picks up something

Waiting sucks. I had an 18 month stint where the breast MRI showed something and there was nothing on the ultrasound. Every six months for both tests until MRI was clear.
And I have implants!
...
Forum: her2group 02-06-2018, 03:24 PM
Replies: 6
Views: 4,256
Posted By jaykay
Re: Sore mouth from chemo - ice therapy?

I used biotene products at the recommendation of my dentist for dry mouth. I'm not sure I ever had a sore mouth.

I had a prescription for "magic mouthwash" which is similar to what Paul...
Forum: her2group 01-26-2018, 07:11 AM
Replies: 4
Views: 4,362
Posted By jaykay
Re: Michka has earned her wings (back in 2017)

Thanks, Lani for the bad news. I think we all figured something was wrong when there was no activity. Same with Amy. Sigh...
Forum: her2group 01-26-2018, 07:09 AM
Replies: 40
Views: 14,691
Posted By jaykay
Re: Amy? (Mtngrl)

I hate this disease. So sad to hear about Amy
Forum: her2group 11-27-2017, 12:06 PM
Replies: 25
Views: 8,158
Posted By jaykay
Re: Senior Member Check-In!

5 years out from 2nd diagnosis and 17.5 from 1st diagnosis. Thanks to this group for helping me cope. You are all smart, wise and compassionate!

I know it's not original but "what a long,...
Forum: her2group 11-14-2017, 07:25 AM
Replies: 7
Views: 3,502
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Side effects from letrozole? Can't tell whether it's the letrozole or getting older, lol. I've been osteopenic for years (before BC) and have done the fosamax, actonel, reclast . My...
Forum: her2group 11-13-2017, 05:15 PM
Replies: 7
Views: 3,502
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Ok, so a combo of er+ and her2+ stinks big time. I was on tamoxifen and letrozole for 10 years, happily anti-estrogen free for 18 months, then "kaboom", breast cancer again in other breast. Back on...
Forum: her2group 10-11-2017, 03:14 PM
Replies: 6
Views: 3,102
Posted By jaykay
Re: Anyone switch from Arimidex to tamoxifen?

Hi Dee,

Why wouldn't your Onc put you on another AI like letrozole or aromasin? I was on tamoxifen for 4.5 years and hated every second. I was on letrozole for 5 years the first time and 4 years...
Forum: her2group 10-06-2017, 03:06 PM
Replies: 42
Views: 11,836
Posted By jaykay
Re: Phooey--Brain Mets

Thanks for checking in!
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