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Posts Made By:
carstell
Forum:
her2group
01-20-2009, 11:08 AM
Replies:
2
herceptin/function tests abnormal.
Views:
1,337
Posted By
carstell
Hey Kathy, A lot of meds are filtered throught...
Hey Kathy,
A lot of meds are filtered throught the kidneys. I had lab work done after my 1 year MRI and MUGA scans, my kidney values were all off. It was because of the dye that they used for the...
Forum:
her2group
09-29-2008, 07:07 AM
Replies:
108
~Rich66~Update on Mom If You have A Moment
Views:
12,423
Posted By
carstell
Hey Rich, I shot you off an email from my home...
Hey Rich, I shot you off an email from my home address too. I had pretty bad bone pain with the Taxol. It was mainly in my hips and thigh bones, but I also felt it in my upper arms and ribs too. I...
Forum:
Herceptin / Tykerb
09-22-2008, 11:28 AM
Replies:
1
Herceptin/Tamoxifin side effects
Views:
1,505
Posted By
carstell
Herceptin/Tamoxifin side effects
I know that I have posted a topic like this, but I was wondering how many of you are having issues similar to mine.
I keep having "flu-like" symptoms. Body aches,chills,nausea. Don't know wether...
Forum:
her2group
09-05-2008, 09:26 AM
Replies:
15
Herceptin side effects
Views:
2,012
Posted By
carstell
Hey Carol, I am right there with you.I get...
Hey Carol,
I am right there with you.I get bodyaches and goose bumps all the time. At least once a day. My onc thought that maybe the Herceptin might be prolonging the side effects of the Taxol. I...
Forum:
her2group
08-24-2008, 05:38 PM
Replies:
13
Starting taxol/herceptin treatment on tues.
Views:
1,886
Posted By
carstell
Sheila- I totally forgot about the red face! I...
Sheila- I totally forgot about the red face! I would get red cheeks the day after Taxol. It would sting for the first day, then get better over the next few days. I can't believe I forgot about...
Forum:
her2group
08-24-2008, 11:58 AM
Replies:
13
Starting taxol/herceptin treatment on tues.
Views:
1,886
Posted By
carstell
I think that I did pretty well with the...
I think that I did pretty well with the Taxol/Herceptin combo. I did it the 12 week rout too. I did get some peripheral neuropathy in my left foot that I am still dealing with. My biggest complaint...
Forum:
her2group
08-24-2008, 11:54 AM
Replies:
13
Anyone not taking the AI's
Views:
2,221
Posted By
carstell
I am on the herceptin every 3 weeks and the...
I am on the herceptin every 3 weeks and the Tamoxifin daily. Sorry you are having so many problems! I have really had no issues up to this point with the Tamoxifin. I have only been on it since early...
Forum:
General Cancer News
08-11-2008, 03:59 PM
Replies:
1
Low vitamin D levels substantially increase risk of death
Views:
1,022
Posted By
carstell
My onc brought this up for the first time at my...
My onc brought this up for the first time at my last appt. I am having a level drawn with my next Herceptin infusion.He showed me a study out of Canada.
Cheryl
Forum:
her2group
08-07-2008, 03:02 PM
Replies:
22
Magic Mouthwash
Views:
2,799
Posted By
carstell
Hey Terri- I really didn't like the magig...
Hey Terri- I really didn't like the magig mouthwash. It numbed up too much. I found that if I dabbed it on the sore areas, or just held a q-tip with the med on it for awhile that was better. I really...
Forum:
Breast Cancer News
08-04-2008, 01:39 PM
Replies:
3
Christina Applegate fighting cancer
Views:
1,146
Posted By
carstell
I was drawn to the part of the article that said...
I was drawn to the part of the article that said that her cancer was "not life threatening" Are they kidding? Perhaps celebrities are privelaged to a different form of breast cancer than we are???
...
Forum:
her2group
08-04-2008, 01:36 PM
Replies:
7
Bill / Lee - a question
Views:
1,096
Posted By
carstell
Perhaps "Supporters of breast cancer survivors" ...
Perhaps "Supporters of breast cancer survivors"
Cheryl
Forum:
Caregivers Corner
08-04-2008, 01:34 PM
Replies:
4
Our New Board
Views:
3,535
Posted By
carstell
Very true Joe, I know that my first thoughts...
Very true Joe,
I know that my first thoughts when I was told that I had cancer was my children. They are 12 and 10 now. My son missed 19 days of school last year, all starting right after my...
Forum:
her2group
08-02-2008, 12:38 PM
Replies:
9
Tamoxifin and her2/neu+ gals
Views:
1,399
Posted By
carstell
Thanks for the responses! It is amazing to me how...
Thanks for the responses! It is amazing to me how confusing this all seems to be, and how much of an advocate you need to be for yourself.I am now struggling with my insurance to see if the cyp2d6...
Forum:
her2group
07-24-2008, 09:32 AM
Replies:
11
Adriamycin?
Views:
1,715
Posted By
carstell
I had Adriamycin too. I found that if I stayed on...
I had Adriamycin too. I found that if I stayed on top of my side effects, I was OK. I actually made a med chart of my anti-nausea meds (yes I am a nurse) So I could keep up with them. Also helped me...
Forum:
her2group
07-24-2008, 09:26 AM
Replies:
9
Tamoxifin and her2/neu+ gals
Views:
1,399
Posted By
carstell
Big ribbons
My uncle Bill lives in a small town in Minnesota. There they have a rodeo. On one of the days, they have a "dare to wear pink day".a portion of money made that day goes to breast cancer research. So...
Forum:
her2group
07-22-2008, 03:20 PM
Replies:
10
just having a bad day
Views:
1,425
Posted By
carstell
Thats what I like about the boards. We all have...
Thats what I like about the boards. We all have our down days. Luckily they seem to fall on different days, so we can bring each other up!Stay strong and know that you are not alone.
Cheryl
Forum:
her2group
07-22-2008, 03:16 PM
Replies:
9
Tamoxifin and her2/neu+ gals
Views:
1,399
Posted By
carstell
Tamoxifin and her2/neu+ gals
Anyone on Tamoxifin. I have been looking into the cyp2d6 test. Tamoxifin metabolizing test, because I have heard through other boards that we her2/ neu gals might not get the same benefits from...
Forum:
her2group
07-12-2008, 05:56 PM
Replies:
15
Port and MUGA question
Views:
2,256
Posted By
carstell
Probably too late for this discussion, but the...
Probably too late for this discussion, but the place that I have gotten my MUGA scans has a policy that they will not use ports.I suggested that I could get my port accessed before coming. I was told...
Forum:
her2group
07-12-2008, 05:34 PM
Replies:
10
Herceptin - when does the year start?
Views:
1,112
Posted By
carstell
My physician counts 1 year from the first dose. I...
My physician counts 1 year from the first dose. I recieved Herceptin weekly with my 12 Taxols. So I will have 9 more months of every 3 week Herceptin only. Confusing isn't it?
Cheryl
Forum:
Herceptin / Tykerb
06-28-2008, 11:33 AM
Replies:
14
Cardiac function, MUGA results
Views:
2,287
Posted By
carstell
Thanks Chris- I have been taking the COQ10 and...
Thanks Chris- I have been taking the COQ10 and fish oil. I feel that besides the lack of exercise, I have done all that I can. Now I am trying to start back with the exercise, and hope the numbers...
Forum:
her2group
06-24-2008, 11:16 AM
Replies:
13
fatigue - chemo result... or?
Views:
1,306
Posted By
carstell
Hey Pam, I am with the other gals on the...
Hey Pam,
I am with the other gals on the cumulative effects. I just finished my #12 Taxol last Friday. I have had to take a nap every day so far.Just exhausted.
On the dirty house note. I was...
Forum:
Herceptin / Tykerb
06-24-2008, 11:02 AM
Replies:
14
Cardiac function, MUGA results
Views:
2,287
Posted By
carstell
I know that my numbers are pretty good, I was...
I know that my numbers are pretty good, I was just concerned with the 10% drop. I will talk to my Dr. before I start the maintenence Herceptin. I am also trying to get a little exercising started. I...
Forum:
Herceptin / Tykerb
06-19-2008, 03:15 PM
Replies:
14
Cardiac function, MUGA results
Views:
2,287
Posted By
carstell
Cardiac function, MUGA results
Hi all,
I just had my 3rd MUGA scan Tuesday. I am done with my 4 DD A/C and have 1 more of 12 Taxol/Herceptin tomorrow(6/20). My results have gone down each time. 72%,66%,63%. My dr assures me that...
Forum:
her2group
05-05-2008, 05:22 PM
Replies:
14
constipation
Views:
1,644
Posted By
carstell
Miralax has been a godsend for me. I had some...
Miralax has been a godsend for me. I had some issues before chemo but I swear by Miralax!!!
Cheryl
Forum:
her2group
02-21-2008, 05:04 PM
Replies:
15
Let's Help This 40 Yr Old Woman
Views:
1,986
Posted By
carstell
I was 40 when I was diagnosed. I didn't have the...
I was 40 when I was diagnosed. I didn't have the option to wait 3-6 months, But would not have been able to. I was sent right from mammogram to ultrasound to biopsy. I would push to see a surgeon.We...
Showing results 1 to 25 of 26
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