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Search: Posts Made By: StephN
Forum: Breast Cancer News Yesterday, 06:42 PM
Replies: 1
Views: 52
Posted By StephN
Angry Re: FDA --Breast Implant Associated Lymphoma

One of my high school classmates is having to have her implants removed and replaced due to a recall. She is very tired of all these changes and the renewed fear that something that was supposed to...
Forum: her2group 08-15-2019, 10:39 PM
Replies: 235
Views: 140,833
Posted By StephN
Angry Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

KathyT, you are rounding another bend in a long road. Sorry you have to take that path, but there is a lot of helpful info in this long thread. You may want to ask about a two-pronged approach. ...
Forum: her2group 07-15-2019, 09:58 PM
Replies: 66
Views: 4,536
Posted By StephN
Wink Re: Whack-a-mole next...

Looking in to say a big hello and see how the Whacking is going. There are improvements in this form of treatment all the time.

Take care and enjoy your days and those "swing dance" evenings!
Forum: her2group 06-23-2019, 04:23 PM
Replies: 66
Views: 4,536
Posted By StephN
Wink Re: Whack-a-mole next...

Whack, whack, whack! Go after as many lesions as your team will engineer. Go shrink your tumor load.
I have never had intravenous Alpha Lipoic Acid, but I have taken a 300 mg tablet that also has...
Forum: her2group 06-22-2019, 01:05 AM
Replies: 13
Views: 758
Posted By StephN
Wink Re: Happy and grateful to be joining the fourteen year club!

Fourteen and counting! Enjoy the good news, and thanks for coming to share with us.
Forum: her2group 06-18-2019, 09:36 PM
Replies: 5
Views: 342
Posted By StephN
Thumbs up Re: Happy birthday in heaven today Joe!

Yes, we do need to remember Joe and Christine for all they gave for us to be able to communicate on this site. Cheers!
Forum: Profiles In Courage 06-17-2019, 10:31 PM
Replies: 2
Views: 889
Posted By StephN
Re: 16 years and still going!!

Nice to hear from you again! Keep up the good health and I can't imagine how old your kids are by now!
Forum: her2group 06-17-2019, 10:25 PM
Replies: 111
Views: 14,678
Posted By StephN
Re: ZW25 clinical trial - day one

Dearest friend,

I have been thinking of you and asking the Herceptin Goddess to be good to you. We never know how things will go for us. I have two friends with sisters in latter stages of...
Forum: her2group 05-20-2019, 07:54 PM
Replies: 111
Views: 14,678
Posted By StephN
Wink Re: ZW25 clinical trial - day one

Thinking of you with warm and fond thoughts. And Seattle memories.
Forum: her2group 05-03-2019, 09:50 PM
Replies: 111
Views: 14,678
Posted By StephN
Wink Re: ZW25 clinical trial - day one

Well, Flori, you gave that trial 6 months of your life energy and maybe got a little something besides aggravation. Sorry to hear you got such a bad case of the crud that is going around. Hubby and...
Forum: her2group 03-28-2019, 10:27 PM
Replies: 3
Views: 583
Posted By StephN
Wink Re: FDA approves Subcutaneous Herceptin for her2+ Breast Cancer

Thank you. If I ever need Herceptin again, this is a great alternative since my port cath damaged the vein it was in for 9 years. (I now have a rather large stent in that damaged area.) A boon for...
Forum: her2group 03-28-2019, 10:23 PM
Replies: 12
Views: 1,103
Posted By StephN
Wink Re: Will be 8yrs NED from Stage IV in April

Hello Kim!
So very nice hear a peep from YOU, rather than the cancer.

Wonderful that you are in my club with mets under control/shut down. Love knowing that you have prevailed. Keep living your...
Forum: her2group 03-09-2019, 06:06 PM
Replies: 3
Views: 583
Posted By StephN
Wink Re: FDA approves Subcutaneous Herceptin for her2+ Breast Cancer

Thank you so much for this, Learned Lani!

I would like more information as to the exact procedure, cost and wide market date expectations. Can you post the company website or any other such info?...
Forum: her2group 03-09-2019, 05:58 PM
Replies: 3
Views: 541
Posted By StephN
Wink Re: herceptin injection approved!!!!

That would have saved me considerable time and energy all the years I was on Herceptin alone. Probably could also gotten it closer to home, with approval.

Hope you feel ok these days, dear...
Forum: Profiles In Courage 02-22-2019, 07:33 PM
Replies: 23
Views: 18,363
Posted By StephN
Wink Re: Gabrielle diagnosed Dec 1999 - Still Here

Glad you stopped in with a brief hello. Keep up the good work and enjoy your good health in Florida!
Forum: her2group 12-20-2018, 10:26 PM
Replies: 17
Views: 2,741
Posted By StephN
Re: Brain met ??? Anyone have advice

Hello Benk. I had gamma knife on two brain mets way back in Jan of 2005. One was rather large and almost at the gamma knife limit and the other quite small. Since that time I have not had any more...
Forum: her2group 12-18-2018, 12:03 AM
Replies: 2
Views: 1,566
Posted By StephN
Wink Re: fake medical advice

From the article:

"As is true with fake news in general, medical lies tend to spread further than truths on the internet and they have very real repercussions."

It can be hard to sort out...
Forum: her2group 12-17-2018, 11:58 PM
Replies: 111
Views: 14,678
Posted By StephN
Re: ZW25 clinical trial - day one

Stable is normally a good thing, but you have suffered a lot just to maintain. So disheartened right along with you at the lack of response - for a TRIAL for heavens sake! Any trial is supposed to...
Forum: Articles of Interest 12-03-2018, 10:28 PM
Replies: 1
Views: 1,115
Posted By StephN
Wink Re: self-reported diet during treatment and chemotherapy-induced peripheral neuropath

Very interesting work to look at diet in this way. Thanks.
Forum: Inflammatory Breast Cancer 11-21-2018, 09:47 PM
Replies: 3
Views: 2,014
Posted By StephN
Wink Re: IBC ( inflammatory breast cancer)

Five big years - and five more coming right up.

Thanks for the HOPE offered for others.
Forum: her2group 11-21-2018, 09:45 PM
Replies: 111
Views: 14,678
Posted By StephN
Re: ZW25 clinical trial - day one

Keep up the good fight! The nerve of that doc! Special Favor indeed. I'll "special favor" him with a piece of my mind. No, he really sounds like his experience is at the research bench and not...
Forum: her2group 11-06-2018, 12:33 AM
Replies: 12
Views: 2,661
Posted By StephN
Thumbs up Re: 13 years!!!

Good to hear from you! May you stay on this same road of health, and may life happen in good ways. Are you still enjoying Florida?
Forum: her2group 11-06-2018, 12:31 AM
Replies: 111
Views: 14,678
Posted By StephN
Thumbs up Re: ZW25 clinical trial - day one

To you I send the mostest, bestest, positivest, strongest energy waves I can! My hubby tells me to "breathe before I speak" but you know that is hard for me ; - } Make that list, but try to breathe...
Forum: General Cancer News 10-31-2018, 07:29 PM
Replies: 2
Views: 745
Posted By StephN
Wink Re: Bigger brains linked to greater risk of developing tumors

Now I know my problem! I will have to check on this theory at my next brain MRI soon.
Forum: her2group 10-19-2018, 08:45 PM
Replies: 111
Views: 14,678
Posted By StephN
Wink Re: ZW25 clinical trial - day one

Tumor numbers, etc. dropping "a bunch" bodes well for a scan that also shows improvement. I just know your horizon is getting farther out with each treatment.

Sending all good thoughts and...
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