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Search: Posts Made By: potra
Forum: her2group 05-17-2012, 12:36 PM
Replies: 67
Views: 27,979
Posted By potra
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Can't thank you enough...my love to nina, Miriam
Forum: her2group 05-16-2012, 09:24 PM
Replies: 67
Views: 27,979
Posted By potra
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

thank you very much Paul, I have a consultation with them -next week-I'll let you know how it goes. I knew about the stats for Her2 patients and was "prepared"-also I'm a vet so it's not as scary as...
Forum: her2group 05-15-2012, 11:29 PM
Replies: 67
Views: 27,979
Posted By potra
Re: Intrathecal Herceptin/Topotecan for Leptomeningeal Disease

Dear Paul and Nina, delighted to hear your story! Gives me hope. I've asked for a second opinion at MDAnderson, Madrid.
Forum: Herceptin / Tykerb 05-04-2012, 10:28 AM
Replies: 10
Views: 9,265
Posted By potra
Re: Herceptin or Tykerb ?

Herceptin and Tykerb attack the Her2 receptor at different levels, thus they have a potentiated effect. As far as I know there is still no way to determine at which level it will work for you except...
Forum: Herceptin / Tykerb 05-04-2012, 03:34 AM
Replies: 689
Views: 290,115
Posted By potra
Re: Please post your two cents on Herceptin "side effects" real or perceived!

62yrs old, menopausia at 54, dx IDC april2011, lumpectomy July2011, er-/pr-, Her2+ sentinal nodes-, 8 cycles TAC/3WEEKS,
Herceptin/weekly. Dx bone mets Oct2011 and added Zometa to tx. After...
Forum: Herceptin / Tykerb 05-04-2012, 03:11 AM
Replies: 9
Views: 5,069
Posted By potra
Re: Stable...do I stop taxol and stay on just herceptin/zometa

I agree with Kristenschwick-my bone mets are primarily osteoblastic which is more typical of ERpositive (I'm negative), The plan (Mayo Clinic recommended this) is to biopsy an active bone lesion to...
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