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Forum: her2group

07-08-2008, 02:36 PM

Replies: 17

All Those Not Quite Ned...let's Talk!

Views: 2,226

Posted By dee1969

Not NED either...but ok!

Hi! I have not reached that beautiful spot of NED but right now I am happy to celebrate being classed as stable. This is a very important thread, esp for all those newly diagnosed as Stage IV . I was...

Forum: her2group

07-05-2008, 03:38 PM

Replies: 12

Brain Mets MRI shows great improvement

Views: 1,826

Posted By dee1969

Thankyou Emmay

Hi Emmay, Thankyou for your long and descriptive email, it is so reassuring to read ( and re-read). A lot of us are in unchartered territory and your sister especially is a Pioneer. I will take all...

Forum: her2group

06-27-2008, 10:45 AM

Replies: 24

zometa questions

Views: 2,176

Posted By dee1969

Thanks!

Hi Flori, Thanks for reply. I will be armed with Decadron for next infusion. All the best, D

Forum: her2group

06-27-2008, 10:40 AM

Replies: 12

Brain Mets MRI shows great improvement

Views: 1,826

Posted By dee1969

I have new brain lesions- would love any more info you have

Hi- I am due a follow-up brain mri in 4 weeks, they suspect 2 new lesions, but are too small yet to radiate , so want to wait a month to rescan. I am very scared of a sudden onslaught of new brain...

Forum: her2group

06-26-2008, 09:32 AM

Replies: 24

zometa questions

Views: 2,176

Posted By dee1969

Zometa hurts A LOT, will decadron hep me

Hi Lori. I had my first Zometa infusion 2 days ago and i cannot believe the pain since, and I normally don't suffer side effects from anything. I ended up taking Norco in the end but thats not doing...

Forum: her2group

08-07-2007, 06:26 AM

Replies: 4

Abraxane & hair loss

Views: 1,726

Posted By dee1969

I finally shaved mine after 4 cycles ( 1 a week,...

I finally shaved mine after 4 cycles ( 1 a week, 4th week off) of Abraxane. It fell out really slow but my ponytail hid it. I shaved it, but it still grows, so I have never been bald, bald with it....

Forum: her2group

08-06-2007, 11:28 AM

Replies: 14

Did anyone get a weird private message today?

Views: 1,433

Posted By dee1969

Yes I got a message too

Hi , I got a Greeting and some Yoga quote and link to a website

Forum: her2group

08-06-2007, 11:11 AM

Replies: 3

Important info for Herceptin users

Views: 1,628

Posted By dee1969

Important info for Herceptin users

Hi, heres some info for Herceptin users which I thought pretty amazing. Read the official report at: http://www.enh.org/aboutus/press/article.aspx?id=3104

You are all so fantastic who contribute...

Forum: Clinical Trials

06-06-2007, 09:04 AM

Replies: 9

Back Home from Seattle

Views: 4,946

Posted By dee1969

Could i get name, any info from you about this vaccine?

Hi Mary! I was diagnosed stage 4 BC, with tumours in brain , liver, kidneys and lungs two months ago. ( Had bilateral mastectomy, stage 3 two years ago). Am her2 and estrogen pos. I am on Abraxane...

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