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Search: Posts Made By: julierene
Forum: her2group 11-09-2009, 10:33 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

He already shot and emotionally killed me first with his adultery. I will never see revenge and that seems to really hurt me the most. He will likely live on way past me, taint my children to the...
Forum: her2group 11-09-2009, 08:35 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

I want nothing more... I despise everything about him, and I am even more devastated that he will raise my children after I am gone. I hate that more than anything I could ever say I hate more than...
Forum: her2group 11-06-2009, 01:10 PM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

I kinda wish I had an way to just burn it all from my mind. His Mormon beliefs disgust me to this day, (sorry to any Mormons I may have offended) and I feel like I will forever be the victim of my...
Forum: her2group 11-06-2009, 10:54 AM
Replies: 42
Views: 5,999
Posted By julierene
Forum: her2group 11-06-2009, 07:22 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

I sure hope so! At times, I just feel like I was supposed to be the smart one and chosen my mate well. He fooled me in every sense of the imagination, and took away my ability to think of him in any...
Forum: her2group 11-05-2009, 10:27 AM
Replies: 12
Views: 2,400
Posted By julierene
Re: Update on Joy 10/27

I am so glad to hear they are considering her for Avastin. I was going to start Avastin/Ixempra before I became aware of the p53 gene therapy for Li-Fraumeni Syndrome (which I am positive for). So I...
Forum: her2group 11-05-2009, 10:00 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

Thanks, I am so glad you mentioned my ex. I have felt such a renewed sense of anger at him lately, that I can barely go a few minutes without some sort of horrid wish upon him. He only confessed his...
Forum: her2group 11-05-2009, 08:10 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

I already had my ovaries removed, because I had a DCIS bilateral cancer on the other side that was PR+ (I think). What good would ER+ meds be in my brain mets?
Forum: her2group 11-04-2009, 02:02 PM
Replies: 10
Views: 2,574
Posted By julierene
Re: T-DM1 Compassonate Use

My onc just told me last week, I still wasn't eligible.
Forum: her2group 11-04-2009, 01:57 PM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

Yeah, I figure the biggest BIRD I can give my ex is to stay alive.

Not a very common side effect at all either. That is my hope, every time I get some strange pain or sensation, I seem to have...
Forum: her2group 11-04-2009, 11:27 AM
Replies: 18
Views: 2,470
Posted By julierene
Re: Stage 4/NED-how long did it last for you?

Wish I could have been eligible for that TDM-1 trial, but it has never gone my way...
Forum: her2group 11-04-2009, 10:59 AM
Replies: 18
Views: 2,470
Posted By julierene
Forum: her2group 11-04-2009, 07:30 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trial, got Brain Mets...

A little foggy, but the weird "blue light" and smell of chlorine seems like a rare side effect.
Forum: her2group 11-04-2009, 07:27 AM
Replies: 1
Views: 1,198
Posted By julierene
Thumbs up A Friend - Just a little humor for the morning...

When you have to visit a public bathroom, you usually find a line of women, so you smile politely and take your place. Once it's your turn, you check for feet under the stall doors. Every stall...
Forum: her2group 11-03-2009, 09:11 AM
Replies: 42
Views: 5,999
Posted By julierene
Angry Re: Waiting on Trail, got Brain Mets...

Yes, they put me on steroids. 4mg three times a day. I took in the article, and they felt like the WBR was the best route b/c of all the little spots. They feel 80-90% sure that this will buy me the...
Forum: her2group 11-02-2009, 11:57 AM
Replies: 42
Views: 5,999
Posted By julierene
Re: Waiting on Trail, got Brain Mets...

I don't have time to research any of this....
Forum: her2group 11-02-2009, 09:51 AM
Replies: 19
Views: 1,863
Posted By julierene
Re: Found out too late?

Yes, being 5 years out is a huge accomplishment. A long time ago, back in 1991 I gave my blood for research. We had a huge line of cancers in our family, and they wanted to test me after my 5-year...
Forum: her2group 11-02-2009, 08:43 AM
Replies: 42
Views: 5,999
Posted By julierene
Waiting on Trial, got Brain Mets...

I was waiting on this perfect trial for my genetic p53 issue, but they required 4 weeks of being off therapy with growing disease. They had to have something to "measure". During my talks with the...
Forum: her2group 10-09-2009, 07:12 AM
Replies: 4
Views: 1,914
Posted By julierene
Re: Herceptin resistant

http://www.clinicaltrials.gov/ct2/show/NCT00570921?term=Everolimus&recr=Open&rank=32


http://www.clinicaltrials.gov/ct2/show/study/NCT00426556?term=Everolimus&recr=Open&rank=46&show_locs=Y#locn...
Forum: her2group 10-09-2009, 06:54 AM
Replies: 4
Views: 1,914
Posted By julierene
Re: Herceptin resistant

I'm sorta in your shoes, if you see my signature. I have heard great things about Avastin and Ixempra. The trick is getting insurance to approve the two together since they like all 3 taxanes to be...
Forum: her2group 10-09-2009, 06:32 AM
Replies: 83
Views: 9,411
Posted By julierene
Re: Insurance Company Does Not Want to approve TYKERB

I got Tykerb and Gemzar approved by BCBSTX... Have you had the chance to try Gemzar yet?
Forum: her2group 10-08-2009, 02:45 PM
Replies: 40
Views: 4,875
Posted By julierene
Re: Update on Joy 9/4

I wondered if anyone heard how the Ixempra is doing for Joy? I am about to start it too. I see she had a birthday too! Wishing Joy, Jennifer, and her family lots of love, Julie
Forum: her2group 09-29-2009, 03:34 PM
Replies: 31
Views: 5,407
Posted By julierene
Forum: her2group 09-29-2009, 03:34 PM
Replies: 29
Views: 3,682
Posted By julierene
Forum: her2group 09-28-2009, 04:58 PM
Replies: 40
Views: 4,875
Posted By julierene
Re: Update on Joy 9/4

I am so glad you finally got the chance to fill us in. Joy is an amazing person with a wonderful sister. Thanks again, and tell Joy we are rooting for her and that julierene is still happy in love...
Showing results 1 to 25 of 327

 
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