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Forum: her2group 08-09-2007, 06:39 PM
Replies: 20
Views: 2,936
Posted By Barbara
Krista:

Krista:

I am sorry about how ill you feel and the problems you are experiencing. I too was very ill with A/C and Taxol. I was admitted to the hospital after my first taxol treatment as my...
Forum: her2group 08-09-2007, 06:25 PM
Replies: 5
Views: 1,121
Posted By Barbara
Advice on Breast Implant

Everyone:

Thanks for your replies it helps me in my decision process. I think I will go forward. I plan to have some work done on my old acne scars at the same time (mini face lift) so maybe I...
Forum: her2group 08-07-2007, 12:54 PM
Replies: 5
Views: 1,121
Posted By Barbara
Advice on Breaet Implant or Not

Hi:

I am 62 years old and 3 and one half years out from diagnosis with Stage 2B, Hormone negative, Her2 positive breast cancer. I had one positve node out of thirteen. I am considering a breast...
Forum: her2group 08-03-2007, 03:12 PM
Replies: 5
Views: 1,757
Posted By Barbara
Blood Cell Stimulants

Hi:

I was surpised that there was a concern regarding both white cell stimulants such as Nuelasta and red cell stimulants (Arnesap, Procrit). I read two of the studies andy they only noted that...
Forum: her2group 07-11-2007, 08:54 PM
Replies: 24
Views: 5,171
Posted By Barbara
Long Term Herceptin

Hi:

I started on Herceptin in June 2004 and remain on a every three week schedule. My muga scans have remained stable between 63 and 65. I just had a muga today and don't have the results yet. ...
Forum: her2group 06-01-2007, 04:45 PM
Replies: 18
Views: 2,472
Posted By Barbara
Late Herceptin

Hi:

I started herceptin about six weeks after finishing my Taxol - that was in June 2004 and I am still NED. I was 2B, 1 positve node, vascular invasion, 8/9 on the Nottingham Scale with a grade...
Forum: her2group 05-17-2007, 09:54 PM
Replies: 5
Views: 1,455
Posted By Barbara
New Trial

Barbara:

I am not familar with the trial and what stage may be elgible Could you tell use more obout it. Thanks.

Barbara
Forum: her2group 05-06-2007, 07:24 PM
Replies: 5
Views: 1,650
Posted By Barbara
New Allergies

Hi:

After Taxol I developed an allergy to the metal in my watch and had to get a watch with a stainless steel band. I was told by my oncologist that Taxol can cause patients to develop new...
Forum: her2group 02-22-2007, 07:47 PM
Replies: 25
Views: 3,352
Posted By Barbara
Oncologist Exam

Chelee:

My oncologist only checks my heart, lungs and liver and run labs but I saw my breast surgeon every six months for two and a half years and every year since and she exams my chest wall,...
Forum: her2group 01-24-2007, 08:17 PM
Replies: 80
Views: 8,176
Posted By Barbara
Thoughts and Prayers

Christine & Joe:

I just logged on tonight after having guests and saw the post. I am so sorry to hear that you once again must battle this illness. You are in my prayers and thoughts.
...
Forum: her2group 01-10-2007, 09:06 PM
Replies: 7
Views: 1,690
Posted By Barbara
Question for Steph

Hi Steph:

In your entry you said you were on the Herceptin and Tykerb trial. The only Clinical Trial I can find for early stagers excludes those who have had Herceptin? Is the trial you are on...
Forum: her2group 12-12-2006, 06:45 PM
Replies: 12
Views: 1,664
Posted By Barbara
Brain Scans

Hi:

This is an interesting subject. I am stage 2B and I request a brain MRI yearly. I would love to have it every six months and would if I was Stage IV. My oncologist says that the CA 27-29...
Forum: her2group 11-11-2006, 01:22 PM
Replies: 19
Views: 1,953
Posted By Barbara
Great Results

Jessica:

I was very happy to hear of your results. Your determination in the face of such tough events has been great medicine for others in their struggle. I wish you a great life ahead.
...
Forum: her2group 11-09-2006, 08:27 AM
Replies: 15
Views: 2,693
Posted By Barbara
Blood Work Before Herceptin

Hi:

I have a CBC before each Herceptin infusion which is the protocol for all the Herceptin patients in my oncologist's office. I am one of those patients who did get anemia and low white counts...
Forum: her2group 10-21-2006, 07:44 PM
Replies: 7
Views: 1,285
Posted By Barbara
Late Herceptin

Brea:

When I studied re-occurrence data, the article that was most often cited was a study of women who had NOT received any chemo (Saphner, et. al.) and in that study year two was the peak year...
Forum: her2group 10-10-2006, 06:54 PM
Replies: 38
Views: 3,036
Posted By Barbara
Surgery Scheduled

Steph:

You will be in my thoughts and prayers. You have been a leader on this board and someone who has my respect and admiration. I wish you only the best.

Barbara
Forum: her2group 10-02-2006, 12:46 PM
Replies: 8
Views: 1,823
Posted By Barbara
Question for Lucky4x

Hi:

You said you were first diagnosed in 2000. If you would share, what was your tumor size and did you have any positive nodes? Were you ER+ or ER-? I wish you the best in defeating the lung...
Forum: her2group 09-17-2006, 02:09 PM
Replies: 11
Views: 1,757
Posted By Barbara
Scans at Diagnosis

Hi:

On my first visit and before Chemo my oncoligist order MRI's of the chest, abdomen and pelvis, a bone scan and a muga scan. The muga scan was to see if I would tolerate A/C as I was almost...
Forum: her2group 09-01-2006, 01:32 PM
Replies: 10
Views: 1,573
Posted By Barbara
Blood Counts

Hi:

I have been on Herceptin only for two years and my red and white counts are both below normal. They offer me Aranesp to boost my red cells but I have refused this medicine. Approximately...
Forum: her2group 08-26-2006, 08:18 AM
Replies: 21
Views: 4,405
Posted By Barbara
Flaxoil and Cottage Cheese Question for Lynette

Lynette:

I found your post very interesting but I do have a question. Did you mix your own flax oil and cottage cheese and if so what amounts did you use? If you purchased it, what brand name...
Forum: her2group 07-15-2006, 01:29 PM
Replies: 29
Views: 2,888
Posted By Barbara
Christine

Joe:

Thanks for the information regarding Christine. I am releived that her surgery went well and that she will be back with us shortly. It must be hard for you too.

Barb
Forum: her2group 07-14-2006, 05:09 PM
Replies: 10
Views: 1,676
Posted By Barbara
Had Cramps

Hi:

I am not on Arimidex or Lupron or any other cancer drug except Herceptin. I really think, considering the timing of my cramps, it is Herceptin.

Barb
Forum: her2group 07-14-2006, 01:57 PM
Replies: 3
Views: 946
Posted By Barbara
Follow-up

Hi:

For the first five years I would request quarterly labs including cancer markers CA 27-29 and CEA. The CA 27-29 is accuarate in about 70% of met cases. I would ask for the CEA as it is...
Forum: her2group 07-14-2006, 01:47 PM
Replies: 10
Views: 1,676
Posted By Barbara
Cramps in Hands

Hi:


I get cramps in my feet, calves, hamstrings, abdomen and hands. I have never mentioned it to my oncologist. I did mention it to my internist and she had me stop my Liptor for a month as...
Forum: her2group 07-10-2006, 07:25 PM
Replies: 9
Views: 2,143
Posted By Barbara
Infusion Time Q3wks

Hi:

When I receive my Q3wk Herceptin in 30 minutes I have an allergy attack. I have no problem when the infusion is done in 60-90 minutes. I can recall other posts where women have reported...
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