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Forum: her2group

12-11-2011, 08:34 AM

Replies: 4

Decadron Wean

Views: 1,823

Posted By Survivor2be

Re: Decadron Wean

That was a lot of steroids for her to be on, especially of she's only on 8 now. She probably needs to up the dose a little, then wean more slowly, like 2 mg every week-10 days. Talk to ur doc!!

Forum: her2group

11-29-2011, 09:10 PM

Replies: 30

Its all going wrong

Views: 4,602

Posted By Survivor2be

Re: Its all going wrong

OTher names for SRS are CyberKnife or GammaKnife. Try searching that.
www.brainmetsbc.org has good info about all that stuff too.

From what I've searched, the SRS is "quicker" than traditional...

Forum: her2group

11-29-2011, 08:58 PM

Replies: 16

Mets to Brain

Views: 3,292

Posted By Survivor2be

Re: Mets to Brain

[B]Joan[B], Thank you for the concern. My primary oncologist are at a community center which does not have targeted imaging. They are Texas Oncology, which is part of the MD Anderson network, so...

Forum: her2group

11-28-2011, 08:44 PM

Replies: 16

Mets to Brain

Views: 3,292

Posted By Survivor2be

Re: Mets to Brain

Just made my decision that I will do WBRT in december. Had my cranio-surgery 11/17/11. Just feel like I need to do everything medically possible to prevent any future recurrence or I will regret my...

Forum: her2group

11-26-2011, 09:43 AM

Replies: 29

support for foregoing radiation?

Views: 5,291

Posted By Survivor2be

Re: support for foregoing radiation?

No, you should not wait a year. They want the radiation to occur quickly to "sterilize" the breast area. Get temporary expanders, do the radiation and a year after radiation, when the skin has...

Forum: her2group

11-26-2011, 02:44 AM

Replies: 24

Brain mets

Views: 4,497

Posted By Survivor2be

Re: Brain mets

Jeana: I just had surgery for brain metastasis. Wondering how you're treatments are going. Hope you were able to do the chemo and blast those cells!!!

Forum: her2group

11-26-2011, 02:34 AM

Replies: 25

Women under 40

Views: 6,486

Posted By Survivor2be

Re: Women under 40

I have been fighting BC for a year now and am stage IV with brain mets. I am 34 and my children are 10, 6, 4. I did chemo, then surgery, then rads before it went to the brain. Up to that point, I...

Forum: her2group

11-25-2011, 11:16 PM

Replies: 29

support for foregoing radiation?

Views: 5,291

Posted By Survivor2be

Re: support for foregoing radiation?

Just to share my story as well, which originally did NOT include radiation!!!
Triple neg, stage 2a at the time. I did chemo for 6 months first before I did my bilat mastectomy. The plan was to do...

Forum: her2group

11-25-2011, 02:04 AM

Replies: 4

craniotomy info please

Views: 1,900

Posted By Survivor2be

Re: craniotomy info please

I just had my brain surgery on 11/17/11. I was in the neuro ICU for one night, then the oncology floor for 1 night and then went home. I walk every morning. I am on steroids ( but coming off them),...

Forum: her2group

11-25-2011, 01:41 AM

Replies: 389

Calling all stage iv sisters

Views: 155,300

Posted By Survivor2be

Re: Calling all stage iv sisters

Jackie, thank you for this list soooo much. It does matter to so many. Please add my info. Original diagnosis: 9/2010 triple negative: chemo, mastectomy, radiation. Breast recurrence 9/2011 HER2+,...

Forum: her2group

11-25-2011, 01:28 AM

Replies: 16

Mets to Brain

Views: 3,292

Posted By Survivor2be

Re: Mets to Brain

Patrice. It is so scary, isn't it!!! I was diagnosed with a single small lesion 10/28/11. I just had surgery to remove it. The future plan is not set yet. I am on herceptin and working on tykerb for...

Showing results 1 to 11 of 11

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