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Search took 0.01 seconds. Search: Posts Made By: joyce lutz
Forum: her2group 01-17-2012, 06:38 PM
Replies: 1
Views: 1,176
Posted By joyce lutz
Anyone have a cranitomy for the cerebellum?

Looking for others who may have had this surgery and to see what their results were as compared to my daughter's so please let me know if you have had one and your results thus far. Thanks a bunch! ...
Forum: her2group 01-17-2012, 06:35 PM
Replies: 15
Views: 3,316
Posted By joyce lutz
Re: Courtneys latest Caringbridge message

Hi Courtney! Joyce here. So happy to hear you are doing well! If Jay gets time ask him to send me your email address as my account was compromised and I can't get my contacts. I'd like to update...
Forum: her2group 12-12-2011, 06:45 PM
Replies: 4
Views: 1,824
Posted By joyce lutz
Re: Decadron Wean

Steph - my daughter takes 3mg in the a.m. and 2 in the pm around 4 or 5:00. She doesn't take it every 8 hours. She never has in fact. It's always been a dose in the a.m. and another in the p.m. ...
Forum: her2group 12-12-2011, 06:40 PM
Replies: 4
Views: 1,824
Posted By joyce lutz
Re: Decadron Wean

Hi gals - Yes we have spoken to her docs to NO avail. They can put you on this crap but don't know how to get you off of it! I have also read that these side effects are from long term use of...
Forum: her2group 12-10-2011, 04:28 PM
Replies: 4
Views: 1,824
Posted By joyce lutz
Decadron Wean

For those of you who have weaned off of this steroid or who have tried to do so can you please tell me what side effects you experienced while doing the process? My daughter had a craniotomy 11/8...
Forum: her2group 11-05-2011, 01:51 AM
Replies: 4
Views: 1,900
Posted By joyce lutz
craniotomy info please

My daughter is scheduled for this on Monday and of course we are scared to death. If anyone has had this done please let us know if you have any advice and how yours turned out. Also what type of...
Forum: her2group 10-10-2011, 07:21 PM
Replies: 12
Views: 2,203
Posted By joyce lutz
What to take for depression

Hi All - Looking for an antidepressant that doesn't make one more tired than my daughter already is! I feel she needs to take something as she has frequent crying spells and irritability. Any ideas...
Forum: Herceptin / Tykerb 09-07-2011, 02:41 PM
Replies: 1
Views: 3,048
Posted By joyce lutz
Anyone here on Keppra for seizures?

My daughter is on this med and is having awful side effects. Major ones are double vision and speech problems. Is anyone else experiencing this and what can be done? My best to you all
Joyce
Forum: her2group 08-28-2011, 04:25 PM
Replies: 36
Views: 7,365
Posted By joyce lutz
Re: scan and doctor update

Pam - sorry to hear your news but happy about the heart news! You just keep fighting one step at a time like you have been! I know it's rough but it's what needs to be done and you can do it. My...
Forum: her2group 08-28-2011, 04:19 PM
Replies: 26
Views: 6,224
Posted By joyce lutz
Re: Gamma Knife A Success but more brain mets

Hi Courtney - I wish I had an answer for you too! Keep zapping those buggers. I wish I knew where to have Pam go. I don't understand why she is having so much edema and has to be on decadron when...
Forum: her2group 07-06-2011, 05:02 AM
Replies: 4
Views: 1,903
Posted By joyce lutz
Xericept - anyone know about this?

Saw that this drug helps with edema in brain mets. Is anyone on this or know anything about it? My best to you all
Joyce
Forum: her2group 06-25-2011, 05:24 AM
Replies: 6
Views: 1,295
Posted By joyce lutz
Re: Help for Fatigue from Radiation anyone?

Thanks Jackie - How are you doing now with the brain issues? When did you have the radiation? What are you taking now? My best to you
Joyce
Forum: her2group 06-24-2011, 04:44 PM
Replies: 6
Views: 1,295
Posted By joyce lutz
Re: Help for Fatigue from Radiation anyone?

Thanks. How long did the fatigue last?
Forum: her2group 06-24-2011, 01:12 PM
Replies: 6
Views: 1,295
Posted By joyce lutz
Help for Fatigue from Radiation anyone?

My daughter finished a 2nd round of SRS for her brain mets on 4/26 and had WBR 6/10 and is now experiencing TERRIBLE fatigue as a result of the radiation. Does anyone have any suggestions to help...
Forum: her2group 06-24-2011, 01:08 PM
Replies: 2
Views: 1,812
Posted By joyce lutz
Re: trials / brain mets?

Sorry you have this to deal with! My daughter finished a 2nd round of SRS for 9 brain mets on 4/26 and is now experiencing SEVERE fatigue. She had WBR 5/10 and so that is a contributing factor I'm...
Forum: her2group 06-09-2011, 05:31 PM
Replies: 3
Views: 1,892
Posted By joyce lutz
Re: Boswellia and fatigue questions

Courtney please send the email address to me and thanks to both of you for your reply. Courtney I too think of you often and am SO glad you are doing well. Right now Pam is just tired all of the...
Forum: her2group 06-08-2011, 05:24 PM
Replies: 3
Views: 1,892
Posted By joyce lutz
Boswellia and fatigue questions

I know a few of you w/brain mets use this alternative therapy to keep swelling in the brain down. I need to know how to find a doctor that is familiar w/it and will know whether or not my daughter...
Forum: her2group 06-01-2011, 07:08 PM
Replies: 43
Views: 6,603
Posted By joyce lutz
Re: Intrathecal Herceptin Is Working!

F A N T A S T I C - We get Pam's results from SRS middle of June! My best.
Joyce
Forum: her2group 05-19-2011, 06:23 PM
Replies: 43
Views: 6,603
Posted By joyce lutz
Re: Intrathecal Herceptin Is Working!

COURTNEY - FABULOUS news! I'm SO happy for you! I pray for you every night and he/she is listening! Pam gets her results middle of June. She had 9 tumors zapped with SRS LINAC surgery. Time will...
Forum: her2group 04-24-2011, 07:47 AM
Replies: 13
Views: 1,784
Posted By joyce lutz
Re: Can't Sleep!

Thank you for all of the ideas I will pass them along to her. I tried looking up "Hema" and did not see anything on it. Can you give more info? thanks! My best to you all
Joyce
Forum: her2group 04-23-2011, 08:11 PM
Replies: 46
Views: 6,778
Posted By joyce lutz
Re: Started Intrathecal Herceptin Today

Courtney! I've been looking for you and am so glad to have found you again! I tried to find you on Caringbridge to no avail. Please send me that info if you can. My daughter just had her first...
Forum: her2group 04-23-2011, 08:55 AM
Replies: 13
Views: 1,784
Posted By joyce lutz
Can't Sleep!

Any suggestions for my daughter to use to help her sleep? She is only getting 3 hrs. a night and it is dragging her down. She has tried Ativan and Ambien and neither of those work any more. She...
Forum: her2group 03-30-2011, 07:38 PM
Replies: 14
Views: 2,792
Posted By joyce lutz
Re: Severe Symptoms: Brain Mets & Decadron

Seems like we always need to be our own advocates! Good for you pushing for the best for your mom! I know how much energy it takes, but you keep pushing for her! My best to you and your mom.
Joyce
Forum: her2group 03-30-2011, 07:34 PM
Replies: 9
Views: 1,802
Posted By joyce lutz
Re: Brain Mets

My daughter is to receive LINAC (SRS) next month. She has several brain mets and they are zapping them in 2 separate sessions. She had WBR in June of 2010 but they didn't shrink all that much and...
Forum: her2group 03-22-2011, 06:20 AM
Replies: 5
Views: 1,875
Posted By joyce lutz
Re: Need help for necrosis of the brain from WBR

Thank you Jackie and Steph - they have been monitoring the brain via perfusion mri's and another test and dr. says it isn't tumor growth it is necrosis which is spreading. I'm at a loss of what to...
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