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Forum: her2group 07-13-2006, 04:16 AM
Replies: 11
Views: 1,294
Posted By DeborahNC
Can't answer your questions, Chelee, but I had...

Can't answer your questions, Chelee, but I had recurrance within 2 years of lumpectomy (Stage 0/DCIS/ER+, Her not tested) and 33 rads. DCIS returned with a vengence plus a small IDC component, neg...
Forum: her2group 07-12-2006, 05:28 AM
Replies: 26
Views: 3,359
Posted By DeborahNC
Sheryl Ann

Did the opth say what s/he thought the pressure in your eye was from?

You're not too far from rads, so it's to be expected you still have the fatigue and brain fog. It seemed like it took several...
Forum: her2group 07-09-2006, 04:18 PM
Replies: 15
Views: 2,020
Posted By DeborahNC
Chelee

I stopped Herceptin in June after 7 months. I want to see if this fatigue, iron deficient anemia and weight gain have anything to do with Herceptin use. My onc has said that I can resume at any...
Forum: her2group 07-08-2006, 04:11 AM
Replies: 10
Views: 1,454
Posted By DeborahNC
My BP would go to 160/100 every time I went for...

My BP would go to 160/100 every time I went for infusion. It settled down after I got home.
Forum: her2group 07-08-2006, 04:08 AM
Replies: 6
Views: 1,512
Posted By DeborahNC
I read this story on another forum. I suppose if...

I read this story on another forum. I suppose if I were a Cameroon mother who was desperately trying to protect my daughter from sexual predators I would do the same as my women peers. As does...
Forum: her2group 07-08-2006, 04:01 AM
Replies: 15
Views: 2,020
Posted By DeborahNC
I was prescribed Femara after I finished...

I was prescribed Femara after I finished Herceptin. My onc is on who waits to begin an AI.
Forum: her2group 07-08-2006, 03:59 AM
Replies: 11
Views: 1,626
Posted By DeborahNC
My iron was 4 five months ago. They tried an...

My iron was 4 five months ago. They tried an iron infusion, Ferisol (sp?), to which I had a violent reaction. I've gotten my ferritin up to 31 using Niferex.
Forum: her2group 07-05-2006, 04:07 PM
Replies: 7
Views: 1,437
Posted By DeborahNC
Alice, I know you feel alone, I think we all...

Alice,

I know you feel alone, I think we all do at one time or another on this journey, but please be assured that you aren't. Coping with BC along with all the other trials in life can be...
Forum: her2group 07-05-2006, 10:01 AM
Replies: 13
Views: 2,621
Posted By DeborahNC
I have sent this to several friends who are on...

I have sent this to several friends who are on these drugs. Two have already suffered jaw breaks during dental implants, but neither reported their dentists warning them beforehand.

I'm am so...
Forum: her2group 07-05-2006, 07:38 AM
Replies: 5
Views: 1,110
Posted By DeborahNC
Ann, Do you have a link to that article? I'd...

Ann, Do you have a link to that article? I'd like to read it. I've had myriad x-rays during my 53 years and remember how freaked out I became when I first heard what radiation does to the body as...
Forum: her2group 07-05-2006, 07:35 AM
Replies: 26
Views: 3,359
Posted By DeborahNC
Thanks for all the replies

The linked articles read as if too much AI is not an ideal situation. As I am only weakly ER+ this makes me wonder if any AI will be of much benefit or could even do more harm than good.

I will...
Forum: her2group 07-03-2006, 06:28 PM
Replies: 26
Views: 3,359
Posted By DeborahNC
Thanks for that suggestion, Sarah. I hadn't...

Thanks for that suggestion, Sarah. I hadn't heard that one. Yes, the label lists a plethora of side effects, so it's like 'choose one.'

I know there are others on the board who are on Femara. ...
Forum: Articles of Interest 07-03-2006, 05:19 AM
Replies: 3
Views: 1,577
Posted By DeborahNC
"..the fact that PET detects tumors is more...

"..the fact that PET detects tumors is more evidence for a high level of glucose uptake." To me, a lay person, that in itself seems enough reason to research glycolysis.

Thanks for the article.
Forum: her2group 07-03-2006, 05:06 AM
Replies: 14
Views: 1,589
Posted By DeborahNC
Thank you for the update, Tricia. I held you...

Thank you for the update, Tricia. I held you both in my heart yesterday. Although I'm not a well known poster here, I care about everyone on this site.
Forum: her2group 07-03-2006, 03:13 AM
Replies: 26
Views: 3,359
Posted By DeborahNC
No one here is on Femara?

No one here is on Femara?
Forum: her2group 07-02-2006, 02:06 PM
Replies: 26
Views: 3,359
Posted By DeborahNC
Femara side effects?

I have only been on Femara two weeks, but have developed pressure headaches, brain fog, hearing disturbances (as if I were at the oceanside, waves crashing).

Can those of you who are on it or have...
Forum: her2group 06-30-2006, 11:51 AM
Replies: 4
Views: 2,038
Posted By DeborahNC
Thank you, Joe. I have emailed the contact...

Thank you, Joe. I have emailed the contact provided on the DAKO site with my onc's info as recommended.

I appreciate having all the Q&A's posted!
Forum: Articles of Interest 06-29-2006, 05:30 PM
Replies: 1
Views: 1,346
Posted By DeborahNC
GLA Inhibits Her2

My apologies if this has been previously posted. I saw it today for the first time.---

CHICAGO --- Gamma-linolenic acid (GLA), a substance in evening primrose oil and several other plant oils...
Forum: her2group 06-23-2006, 09:08 AM
Replies: 22
Views: 2,661
Posted By DeborahNC
Congrats!

My last Herceptin was Wednesday. This was by my own choice. I did 7 out of the 12 months recommended and both my onc and breast surgeon concurred with my decision. I do have the option to start...
Forum: her2group 06-21-2006, 03:51 AM
Replies: 39
Views: 3,752
Posted By DeborahNC
((Holding you and your step daughter close))

((Holding you and your step daughter close))
Forum: her2group 06-13-2006, 05:24 AM
Replies: 11
Views: 2,415
Posted By DeborahNC
Dee, I had bilateral mastectomies Spet. 05. ...

Dee,

I had bilateral mastectomies Spet. 05. This was my second go round with BC; I recurred 2 years after a lumpectomy containg high grade DCIS.

My left breast was healthy, my right had small...
Forum: her2group 06-04-2006, 04:48 PM
Replies: 5
Views: 1,240
Posted By DeborahNC
I became very SOB due to low hemoglobin during...

I became very SOB due to low hemoglobin during Taxol treatment. I was given Aranesp and the symptom disappeared. Please let your medical team know what you are experiencing. I called one of the...
Forum: her2group 05-29-2006, 05:11 AM
Replies: 26
Views: 4,147
Posted By DeborahNC
Can you ask how one can convince one's onc to...

Can you ask how one can convince one's onc to give the test? My onc just waves away any suggestion of it.
Forum: her2group 05-29-2006, 05:07 AM
Replies: 45
Views: 9,151
Posted By DeborahNC
I'm on Herceptin only for Stage 1. My onc does...

I'm on Herceptin only for Stage 1. My onc does not give AI until Herceptin is completed, but has plans to for me to start when I'm through.
Forum: her2group 05-25-2006, 05:12 AM
Replies: 7
Views: 1,105
Posted By DeborahNC
What a relief for you! I love hearing such great...

What a relief for you! I love hearing such great news.
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