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Forum: Inflammatory Breast Cancer 09-27-2007, 02:37 PM
Replies: 2
Views: 3,108
Posted By Barb
Does this mean after 4 years of Herceptin, I...

Does this mean after 4 years of Herceptin, I could be free of cancer? How can one tell? My onc has recommended that I stop having it, as the fatigue I have experienced the last 4 years affects my...
Forum: her2group 05-06-2007, 08:07 PM
Replies: 6
Views: 1,247
Posted By Barb
Suspending Herceptin

Jan 2001. Bilateral mastectomy (BC in both breasts); 11/18 Ax Lymph RHS + 8 Ax Lymph LHS; portacath in situ. Chemo + Rad then Arimidex on completion. In remission until:
Aug 2003. Mets to bone in...
Forum: her2group 04-29-2007, 11:04 PM
Replies: 23
Views: 2,083
Posted By Barb
Congratulations Lolly, was wondering how you were...

Congratulations Lolly, was wondering how you were going along. Now I've found you. I still have difficulty working my way around these pages to find everyone/thing!!
Take care
Barb
Forum: Profiles In Courage 04-29-2007, 09:50 PM
Replies: 6
Views: 8,936
Posted By Barb
Stopping Herceptin

Jan 2001. Bilateral mastectomy (BC in both breasts); 11/18 Ax Lymph RHS + 8 Ax Lymph LHS; portacath in situ. Chemo + Rad then Arimidex on completion. In remission until:
Aug 2003. Mets to bone in...
Forum: Inflammatory Breast Cancer 12-09-2006, 08:02 PM
Replies: 9
Views: 4,060
Posted By Barb
Hi Lolly Thanks for that info, I found it most...

Hi Lolly
Thanks for that info, I found it most interesting to get info from a different country. Think Herceptin has been in the US for quite a few years, right? Even between states here, there...
Forum: her2group 12-09-2006, 04:40 PM
Replies: 16
Views: 1,717
Posted By Barb
Hi Vanessa Good to hear from you. The PN is a...

Hi Vanessa
Good to hear from you. The PN is a real nuisance and I don't know if you can get weekly B12 vitamin injections recommended, it might just help alleviate the loss of feeling, it's hard to...
Forum: her2group 12-09-2006, 04:39 PM
Replies: 16
Views: 1,717
Posted By Barb
Hi Vanessa Good to hear from you. The PN is a...

Hi Vanessa
Good to hear from you. The PN is a real nuisance and I don't know if you can get weekly B12 vitamin injections recommended, it might just help alleviate the loss of feeling, it's hard to...
Forum: her2group 12-09-2006, 12:45 PM
Replies: 16
Views: 1,717
Posted By Barb
Vanessa

Whoops, must have got up too early this am and got the messages muddled!! Should have addressed the Taxotere query to you Vanessa. This is what I wrote in error to Virginia:
Re Taxotere, I'm so glad...
Forum: her2group 12-09-2006, 12:40 PM
Replies: 16
Views: 1,717
Posted By Barb
Virginia Girl

I'm curious too, what is alternate chemo?
Re Taxotere, I'm so glad I did have it but ..... Did you get peripheral neuropathy as a result and if so does it still bother you in any way and did you...
Forum: Inflammatory Breast Cancer 12-09-2006, 12:27 PM
Replies: 9
Views: 4,060
Posted By Barb
Stopping Herceptin

Hi Lolly
Just to let you know that I got your brief message before you lost the post! So glad to hear that others seem to lose their way here. I have no idea how I posted this 'new' thread of mine...
Forum: Inflammatory Breast Cancer 12-09-2006, 12:13 AM
Replies: 9
Views: 4,060
Posted By Barb
Stopping Herceptin

Nice to hear from you Lolly. Having herceptin indefinitely is a bit open ended, no-one seems to know if you should stop it - until or if it returns!!! I don't think I'll be opting to come off it. My...
Forum: her2group 12-08-2006, 11:34 PM
Replies: 30
Views: 3,481
Posted By Barb
Smile Hi Sue You replied to me back in January...

Hi Sue

You replied to me back in January this year and somehow I missed or it got too hot and I didn't spend any time online. Was wondering how you were going with your Herceptin, wasn't it good...
Forum: Inflammatory Breast Cancer 12-08-2006, 05:37 PM
Replies: 9
Views: 4,060
Posted By Barb
Stopping Herceptin after 3 years

Hi girls, haven't been here for some time.
To recap briefly, 2001 Stage 3 bilateral mastectomy with 18 (11 infected) lymph + others removed. AC, radiotherapy, CMF. Remission for 18mths. 2003 Mets...
Forum: her2group 01-11-2006, 01:49 AM
Replies: 3
Views: 1,265
Posted By Barb
Hi Hope, I saw your posting on P neuropathy, was...

Hi Hope, I saw your posting on P neuropathy, was it caused by the Abraxane do you think?
I had Taxotere over 2 years ago, the regime being 18 treatments, 3 weeks on and 1 week off. I only lasted to...
Forum: her2group 01-11-2006, 01:11 AM
Replies: 10
Views: 1,873
Posted By Barb
Robin, whereever do you get your research from. ...

Robin, whereever do you get your research from. I'm feeling like a true country bumpkin as to knowledge. Before I looked at this site, I thought I knew as much as I needed to know, but now, I'm not...
Forum: her2group 01-11-2006, 01:01 AM
Replies: 21
Views: 3,840
Posted By Barb
I went to UK from Australia for 2 months and had...

I went to UK from Australia for 2 months and had to officially export from Australia, 4 doses of Herceptin confident that 2 double doses would be sufficient as I know it stays in the body for at...
Forum: her2group 01-02-2006, 02:17 AM
Replies: 8
Views: 2,023
Posted By Barb
Red face Help for a newbie to chat rooms and forums

I class myself as an illiterate user of Chat Rooms and Forums. This is so new to me but I am so interested in it, being HER2+. (I am not stupid mind, I can do spreadsheets and all sorts of wonderful...
Forum: her2group 01-02-2006, 01:16 AM
Replies: 21
Views: 3,840
Posted By Barb
Exclamation Short shelf life for Herceptin & other stuff

Hi Gina
In Australia, I understand it is the norm here for one to enter the onc treatment room before they are allowed to order the Herceptin to be made up. I also had infusions when I went to UK...
Forum: her2group 11-11-2005, 05:10 PM
Replies: 31
Views: 3,815
Posted By Barb
I think the bone pain could be from the Arimidex....

I think the bone pain could be from the Arimidex. I was on Arimidex on and off for 18 months. I say 'off', as I had so much bone pain that it became intolerable so I had to have breaks from it. It...
Showing results 1 to 19 of 19

 
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