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Search took 0.00 seconds. Search: Posts Made By: JustwannaBE
Forum: her2group 05-11-2009, 08:25 PM
Replies: 20
Views: 2,722
Posted By JustwannaBE
In my opinion, I would do chemo first, and do the...

In my opinion, I would do chemo first, and do the liver resection as last resort. In my case, I think the liver resection caused 'microseeding' and 5 months later, I had 8 new big tumors, whereas, I...
Forum: her2group 03-09-2009, 07:14 PM
Replies: 127
Views: 15,309
Posted By JustwannaBE
I am praying for Caryn, you and the kids. God...

I am praying for Caryn, you and the kids. God bless this mess. All of you are so strong !
Forum: her2group 02-24-2009, 06:10 PM
Replies: 47
Views: 8,223
Posted By JustwannaBE
What I would do differently:

I would have made the drs do blood work prior to any surgeries, i.e tumor markers, her2 neu serum. I would have had the drs do pet scans before any surgeries, to see if there were any other tumors in...
Forum: her2group 12-12-2008, 07:34 PM
Replies: 50
Views: 6,267
Posted By JustwannaBE
Exactly a week ago, I went thru the maa mapping...

Exactly a week ago, I went thru the maa mapping process and it wasn't too terrible. It was done as an outpatient, and they coiled off 12 blood vessels and that process took 2 1/2 hours. All...
Forum: her2group 11-21-2008, 09:53 AM
Replies: 50
Views: 6,267
Posted By JustwannaBE
Hi Eric: Thanks for posting the good and not so...

Hi Eric: Thanks for posting the good and not so good news about Caryn. The chemo will knock that stuff right out of those lymph nodes, I know it will. Anyway, I posted on this thread back in...
Forum: her2group 11-20-2008, 09:09 PM
Replies: 29
Views: 3,771
Posted By JustwannaBE
Hi Chelee, after my liver resection back in...

Hi Chelee, after my liver resection back in April, I complained that my back hurt and I couldn't take deep breaths. After a month, my dr sent me for a chest x-ray and it came back clean, so there...
Forum: her2group 11-20-2008, 08:45 PM
Replies: 8
Views: 2,689
Posted By JustwannaBE
Hi StephN: I have had a small hiatal hernia for...

Hi StephN: I have had a small hiatal hernia for the last 20 years. My gyno is the one who found it back then as I thought I was swallowing my tongue when I would sleep on my right side and start...
Forum: her2group 10-02-2008, 07:20 PM
Replies: 0
Views: 928
Posted By JustwannaBE
Lightbulb M. D. Anderson Study Finds Change in HER2 Status After Treatment With Herceptin

I just found this article. This makes sense to me now and where I am at with my cancer status, as it appears I am now triple negative, as I have been asking how this can happen for 5 months now, and...
Forum: her2group 09-26-2008, 01:41 PM
Replies: 50
Views: 6,267
Posted By JustwannaBE
Hi Eric. Since it is just one tumor, why can't...

Hi Eric. Since it is just one tumor, why can't they do a liver resection ? Also you may want to investigate another technology called SIRT's. Go to Aboutlivertumors.com and check out either the...
Forum: her2group 09-26-2008, 01:25 PM
Replies: 36
Views: 4,425
Posted By JustwannaBE
I had the test run after my liver resection...

I had the test run after my liver resection surgery in April and it came back in normal (6) range. I asked my onc to run it on me, and he did so, but said it was old technology. I wish I had...
Forum: Herceptin / Tykerb 08-24-2008, 12:27 PM
Replies: 8
Views: 2,325
Posted By JustwannaBE
Hi ya'll: I will give you some background...I was...

Hi ya'll: I will give you some background...I was on taxol/herceptin until January of 2008.Then I was only on herceptin until April, when they found a tumor in my liver. I had a liver resection done...
Forum: Herceptin / Tykerb 08-23-2008, 08:07 PM
Replies: 7
Views: 3,036
Posted By JustwannaBE
Hi MJ: Yes, I had confusion all the time while...

Hi MJ: Yes, I had confusion all the time while I took tykerb. I didn't realize it was tykerb until I stopped taking it. But I know the feeling. I would sit there and thought I knew what I was...
Forum: Herceptin / Tykerb 08-23-2008, 07:44 PM
Replies: 8
Views: 2,325
Posted By JustwannaBE
Hi Goops. I was on Herceptin and did very...

Hi Goops.
I was on Herceptin and did very well with that for about 6 months until they introduced Tykerb into the mix. I was VERY fatigued, as well as broke out in zits, had the shits every day...
Forum: her2group 07-07-2008, 11:12 AM
Replies: 6
Views: 1,609
Posted By JustwannaBE
The company that did my CTC test used the...

The company that did my CTC test used the CellSearch technology. The name of the company is Genoptix based out of Carlsbad, CA. It is hard to impress me, but this company did impress me as they...
Forum: her2group 07-03-2008, 12:34 PM
Replies: 6
Views: 1,609
Posted By JustwannaBE
I read that a few weeks ago, however, I don't...

I read that a few weeks ago, however, I don't think that test has been approved by the FDA yet. There is a test, which I just had a few weeks ago, that does determine if there are cancer cells in...
Forum: Herceptin / Tykerb 06-25-2008, 04:18 PM
Replies: 689
Views: 298,388
Posted By JustwannaBE
Hmmm... I have never posted to this website, but...

Hmmm... I have never posted to this website, but have been reading it since I was diagnosed in May, 2007. I am ER/PR neg, HER2 +. In May, 2007, I had a left breast lumpectomy. Sentinel node...
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