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Search: Posts Made By: Dakini52
Forum: her2group 11-14-2016, 01:17 PM
Replies: 39
Views: 9,622
Posted By Dakini52
Re: Update on my lung

Hi Amy, keeping my eye on your posts and praying that you are doing well.
Forum: her2group 10-14-2016, 09:42 PM
Replies: 27
Views: 6,581
Posted By Dakini52
Re: Ah, Sweet Anxiety

Congratulations Tracy! So happy to hear the good news.
Forum: her2group 09-07-2016, 08:44 PM
Replies: 28
Views: 9,748
Posted By Dakini52
Re: Local treatment in lungs?

Thinking of you Amy and sending healing thoughts your way. Hope everything continues to improve and that the new treatment is successful.
Forum: her2group 03-07-2016, 08:58 PM
Replies: 386
Views: 103,072
Posted By Dakini52
Re: Calling all stage iv sisters

Oh damn! That just turned my earlier smile upside down :-(. I am thinking of you as are many on this board. Please keep us posted on how you are doing.
Forum: her2group 02-27-2016, 11:32 PM
Replies: 386
Views: 103,072
Posted By Dakini52
Re: Calling all stage iv sisters

Awesome news Jackie! Makes me smile :-)
Forum: her2group 02-17-2016, 02:35 PM
Replies: 20
Views: 6,484
Posted By Dakini52
Re: 10 years later non BRCA ovarian cancer

Gyn Onc's are very specialized. They do not treat breast cancer patients and focus only on other female cancers such as ovarian, vulvar, uterine, cervical and such. I guess any female cancer below...
Forum: Profiles In Courage 02-16-2016, 07:58 PM
Replies: 7
Views: 9,976
Posted By Dakini52
Re: Bilateral Mastectomy 7 yrs. ago..pulled pectoral muscle..indented badly and painf

I had a similar thing happen to me and when they x-rayed my chest it showed that I had a fractured/separated rib. It was very painful for some time, however, I have no pain now. The rib is still...
Forum: her2group 02-16-2016, 07:52 PM
Replies: 20
Views: 6,484
Posted By Dakini52
Re: 10 years later non BRCA ovarian cancer

My daughter is in a gyn onc fellowship program in Pennsylvania currently and I know from talking to her that finding ovarian cancer at stage 1C is pretty incredible. Happily you were paying very...
Forum: her2group 02-16-2016, 07:46 PM
Replies: 27
Views: 13,965
Posted By Dakini52
Re: HER2 and Immunotherapy Studies for reference

Seems that the trials they are doing with vaccines for HER2 are limited to those who are +1 or +2 but not if you're +3. That seems odd and makes me think they don't have a great deal of confidence...
Forum: her2group 02-16-2016, 07:36 PM
Replies: 386
Views: 103,072
Posted By Dakini52
Re: Calling all stage iv sisters

Jackie, I'm thinking of you and hoping you have a positive outcome from all of this. I hope you will keep us all posted on your status. We care about you and want you to have the very best.
Debbie
Forum: her2group 01-13-2016, 01:51 PM
Replies: 9
Views: 3,085
Posted By Dakini52
Re: Puzzled??

Thanks everyone for your responses. Valley Girl - Here are the links I use when searching for trials:
...
Forum: her2group 01-08-2016, 06:56 PM
Replies: 9
Views: 3,085
Posted By Dakini52
Re: Puzzled??

Lauriesh, sorry I misspelled your name on the previous post.
Forum: her2group 01-08-2016, 06:55 PM
Replies: 9
Views: 3,085
Posted By Dakini52
Re: Puzzled??

Thanks for the response Larish. I notice that most of the trials at the UW are for our stage IV sisters which I TOTALLY support. God knows they are in the most need of immediate help. I guess I'm...
Forum: her2group 01-07-2016, 11:58 AM
Replies: 9
Views: 3,085
Posted By Dakini52
Puzzled??

I am confused as to why I appear to be ineligible for any of the vaccine trials that are available. I am currently continuing Herceptin treatment every 3 wks and have been for almost 6 years since...
Forum: her2group 12-13-2015, 06:45 PM
Replies: 1
Views: 2,998
Posted By Dakini52
Re: San antonio bc symposium news

This is such exciting news. I have not had brain mets so far but for those who do or will in the future it is no wonderful to see this type of medication being developed.
Forum: her2group 12-13-2015, 06:42 PM
Replies: 42
Views: 13,267
Posted By Dakini52
Re: Karen has moved on

I feel so sad. I always enjoyed reading her posts and feeling her spirit as she fought her battle. She will be missed by many.
Forum: her2group 12-13-2015, 06:39 PM
Replies: 10
Views: 3,836
Posted By Dakini52
Re: Help with EF

Good point Andi - I also take Coreg twice a day and I'm sure that is helpful as well.
Forum: her2group 12-13-2015, 02:59 PM
Replies: 10
Views: 3,836
Posted By Dakini52
Re: Help with EF

My endocrinologist recommended taking COQ10 several years ago and I have been taking it faithfully since then. I have been on Herceptin almost 6 years now and my EF is still at 65-70. It certainly...
Forum: her2group 11-19-2015, 04:51 PM
Replies: 1
Views: 3,079
Posted By Dakini52
Interesting Article on Herceptin

http://www.futurity.org/cancer-barcode-1052702-2/
Forum: her2group 11-16-2015, 07:48 PM
Replies: 13
Views: 4,330
Posted By Dakini52
Re: Redwolf, Penny has joined the Angels.

This is so sad. I will miss reading Penny's posts. Rest in Peace Redwolf.
Forum: her2group 11-16-2015, 07:44 PM
Replies: 16
Views: 18,199
Posted By Dakini52
Re: Bad Hair Day, No Hair Day: Tears and Smiles

You look lovely. I've only lost my hair once so far but as soon as it started to fall out in clumps I went straight to my hairdresser and had her shave my head. Bought some cute wigs, but have to...
Forum: her2group 11-16-2015, 07:11 PM
Replies: 2
Views: 3,396
Posted By Dakini52
Forum: her2group 11-02-2015, 09:22 PM
Replies: 4
Views: 2,688
Posted By Dakini52
Re: MM302 Anyone watching this trial?

I am in the Seattle area and during my treatment and appt with my on last week he mentioned that beyond TDM1, there are 4 other trials that are going on. Apparently Swedish Hospital is having...
Forum: Breast Cancer News 10-28-2015, 08:30 PM
Replies: 3
Views: 5,592
Posted By Dakini52
Re: I have cancer, but Iíve learned to live with it

Beautifully written. It reflects feelings that many of us who are in remission have I think.
Forum: her2group 10-15-2015, 10:59 AM
Replies: 5
Views: 2,226
Posted By Dakini52
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