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Search: Posts Made By: Freakzilla
Forum: her2group 07-26-2018, 03:37 PM
Replies: 5
Views: 3,697
Posted By Freakzilla
Re: Seeking Whole Brain Radiation Info

SRS Cyberknife and Gamma Knife can be used to treat multiple brain mets. My wife had 11 treated in one sitting and they have all gone now. She has had 20 treated over the back 30 months and only...
Forum: her2group 06-25-2018, 10:14 AM
Replies: 2
Views: 4,066
Posted By Freakzilla
Re: Microscopic Cells After Resection Of Subcutaneous Lesion

Thanks Cathy,

I think we're going in for more surgery. Find out next Monday. Nothing really online to compare this too.

All the best for the future.
Forum: her2group 06-20-2018, 08:09 AM
Replies: 2
Views: 4,066
Posted By Freakzilla
Microscopic Cells After Resection Of Subcutaneous Lesion

Hi Guys,

Nearly two months ago my wife had a subcutaneous lesion removed from her scalp. The lesion was excised with a 1cm margin. Pathology has come back and microscopic cells have been found...
Forum: her2group 03-03-2018, 01:53 PM
Replies: 33
Views: 11,999
Posted By Freakzilla
Re: Cyberknife or Whole Brain?

Why not hit the other leisons with cyberknife at the same time? Job done then.
Forum: her2group 03-02-2018, 04:57 PM
Replies: 33
Views: 11,999
Posted By Freakzilla
Re: Cyberknife or Whole Brain?

Definately SRS. That will only radiate the areas of brain where there are disease. It's done in a single sitting, and can be repeated if needed. Breast Cancer Brain Mets have a 90 - 95% success...
Forum: her2group 07-19-2016, 02:35 PM
Replies: 48
Views: 40,232
Posted By Freakzilla
Re: My leptomeningeal journey

Ann, that's great news. Really pleased for you.

You've been a massive help to us and many others. :)

Can I ask what your normal range for protein is? Would I be right in saying is a...
Forum: her2group 06-08-2016, 08:15 AM
Replies: 0
Views: 2,817
Posted By Freakzilla
Do Dural Tumours Responds to Systemic Treatment - Herceptin & Perjeta

My wife had 11 dural mets treated with Gamma Knife 4 weeks ago. She has no systemic disease. She is starting Taxotere, Herceptin & Perjeta in two weeks time. Either the same week or the week after...
Forum: her2group 06-06-2016, 03:51 AM
Replies: 2
Views: 3,422
Posted By Freakzilla
Can Cold Cap Prevent Treatment From Working?

Hi Guys,

In two weeks time my wife is starting IV Taxotere, Herceptin & Perjeta, as well as IT Herceptin. She will be having a maximum of 6 doses of taxotere, although we hope less.

3...
Forum: her2group 05-31-2016, 08:45 AM
Replies: 235
Views: 209,076
Posted By Freakzilla
Re: Intrathecal (IT) Herceptin (Trastuzumab) for brain mets (Leptomeningeal Metastase

Sorry to jump on the thread. Does anyone know if IT Herceptin reaches the Dura layer?
Forum: her2group 05-22-2016, 03:58 AM
Replies: 3
Views: 4,437
Posted By Freakzilla
Forum: her2group 04-07-2016, 02:43 PM
Replies: 7
Views: 4,871
Posted By Freakzilla
Re: IT Herceptin In Europe

Thanks Becky, That's the combination I wanted. It's not available on the NHS in the UK any more. If I paid for it privately, then we'd never be able to use Perjeta.

Although, if this doesn't...
Forum: her2group 04-07-2016, 02:41 PM
Replies: 7
Views: 4,871
Posted By Freakzilla
Re: IT Herceptin In Europe

Thanks, I've already contacted him today, and hope to get a reply. Thanks for looking.
Forum: her2group 04-07-2016, 09:25 AM
Replies: 7
Views: 4,871
Posted By Freakzilla
IT Herceptin In Europe

Had First Brain MRI since Surgery and Conformal Radiotherapy. The resection cavity looks fine.

The bad news is there is a tumor on the meninges. It's only 2mm big. There are two other tumors....
Forum: her2group 02-01-2016, 12:47 PM
Replies: 1
Views: 2,767
Posted By Freakzilla
Could Crainiotomy make Bone Scan abnormal.

Hi Guys,

I haven't been around for a while as everything has been good.

My girlfriend had a solitary brain met removed in November. This was followed by 40.5 gy Conformal Radiotherapy to...
Forum: her2group 11-23-2015, 02:14 PM
Replies: 3
Views: 3,574
Posted By Freakzilla
Re: Could leg weakness be brain met?

Brenda,

If you are at all worried make an appointment to see your Onc. Better to be safe.
Forum: her2group 11-08-2015, 01:40 PM
Replies: 2
Views: 3,293
Posted By Freakzilla
Forum: her2group 11-07-2015, 10:42 AM
Replies: 2
Views: 3,293
Posted By Freakzilla
Has anyone had targetted Radiotherapy after Brain Met Resection

Hi Guys,

Has anyone had targeted radiotherapy to the resection cavity after removal of a Brain Met. If so what treatment did you have?

We are looking at either Linac or Tomotherapy over...
Forum: her2group 11-06-2015, 09:36 AM
Replies: 15
Views: 3,915
Posted By Freakzilla
Re: Update On Solitary Brain Met Treatment

Update

It was decided today that either Linac or Tomotherapy will be used to boost the resection cavity.

Planning will be done on Thursday and treatment will start within a week of that....
Forum: her2group 11-04-2015, 09:42 AM
Replies: 3
Views: 2,898
Posted By Freakzilla
Kadcyla will stay on UK Cancer Drugs Fund

Via Change. Org

4 Nov 2015 — Fantastic news - Roche and the NHS have reached an agreement on the pricing of Kadcyla which means that it stays on the Cancer Drugs Fund and will remain...
Forum: her2group 11-02-2015, 02:41 PM
Replies: 15
Views: 3,915
Posted By Freakzilla
Re: Update On Solitary Brain Met Treatment

Update

Surgery was performed yesterday. All of the tumour was removed. There was a cyst in the middle which was drained. The tumour was around the edge of the previous one, so cells were...
Forum: her2group 10-30-2015, 05:20 PM
Replies: 15
Views: 3,915
Posted By Freakzilla
Re: Update On Solitary Brain Met Treatment

​Not a good day.

It has deemed to be residual orrecurrence in the resection cavity. 3cm in 7 weeks. My girlfriend is in for emergency surgery now with an SRS boost in 4 weeks if all goes...
Forum: her2group 10-27-2015, 01:23 PM
Replies: 15
Views: 3,915
Posted By Freakzilla
Update On Solitary Brain Met Treatment

Right,

As you all know my girlfriend had a solitary 4 x 3.5cm Brain Met completely resected 8 weeks ago. We had been waiting for an SRS boost to the resection bed.

12 days ago my...
Forum: her2group 10-23-2015, 08:47 AM
Replies: 4
Views: 3,246
Posted By Freakzilla
Re: SRS Cost

Thank You, still waiting to hear. We've got everything crossed.
Forum: her2group 10-22-2015, 08:49 AM
Replies: 4
Views: 3,246
Posted By Freakzilla
SRS Cost

Hi Guys,

As you'll know from my previous posts. 8 weeks ago my Girlfriend has a solitary 4 x 3.5cm Bran Met completely resected. For the past 5 weeks we have tried to get a SRS boost to where the...
Forum: her2group 09-29-2015, 08:06 AM
Replies: 49
Views: 23,013
Posted By Freakzilla
Re: Ugh Brain Mets!

I think we're going to look at the Marsden as well. One of the best in the world.
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