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Search: Posts Made By: jaykay
Forum: her2group 11-27-2017, 12:06 PM
Replies: 19
Views: 645
Posted By jaykay
Re: Senior Member Check-In!

5 years out from 2nd diagnosis and 17.5 from 1st diagnosis. Thanks to this group for helping me cope. You are all smart, wise and compassionate!

I know it's not original but "what a long,...
Forum: her2group 11-14-2017, 07:25 AM
Replies: 7
Views: 865
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Side effects from letrozole? Can't tell whether it's the letrozole or getting older, lol. I've been osteopenic for years (before BC) and have done the fosamax, actonel, reclast . My...
Forum: her2group 11-13-2017, 05:15 PM
Replies: 7
Views: 865
Posted By jaykay
Re: New Article: 20-year risk of BC recurrence & length of endocrine therapy

Ok, so a combo of er+ and her2+ stinks big time. I was on tamoxifen and letrozole for 10 years, happily anti-estrogen free for 18 months, then "kaboom", breast cancer again in other breast. Back on...
Forum: her2group 10-11-2017, 03:14 PM
Replies: 6
Views: 1,363
Posted By jaykay
Re: Anyone switch from Arimidex to tamoxifen?

Hi Dee,

Why wouldn't your Onc put you on another AI like letrozole or aromasin? I was on tamoxifen for 4.5 years and hated every second. I was on letrozole for 5 years the first time and 4 years...
Forum: her2group 10-06-2017, 03:06 PM
Replies: 42
Views: 7,636
Posted By jaykay
Re: Phooey--Brain Mets

Thanks for checking in!
Forum: her2group 09-03-2017, 05:48 PM
Replies: 27
Views: 4,332
Posted By jaykay
Re: Our Waterdreamer is Gone

So sorry to hear this. Condolences to Fern's friends and family.

I hate this disease
Forum: her2group 08-16-2017, 11:03 AM
Replies: 9
Views: 2,752
Posted By jaykay
Re: Update, good news, bad news

Great news on both fronts, Tracy
Forum: Herceptin / Tykerb 08-10-2017, 05:45 AM
Replies: 18
Views: 2,020
Posted By jaykay
Forum: her2group 08-02-2017, 09:31 AM
Replies: 5
Views: 2,606
Posted By jaykay
Re: My herceptin is being suspended during 6 week radiation. Not comfortable with thi

Hi and congratulations on completing chemo. My herceptin was not suspended during my radiation. I was on an every three week schedule, not every week and my radiation was on my right side, not my...
Forum: her2group 07-16-2017, 09:36 AM
Replies: 42
Views: 7,636
Posted By jaykay
Re: Phooey--Brain Mets

Phooey is right! And resectable (as others have pointed out) sounds good to me.

Janis
Forum: her2group 05-21-2017, 09:39 AM
Replies: 23
Views: 5,485
Posted By jaykay
Re: 12 years, but who is counting?

Congratulations, Karen and glad to hear from you!
Forum: her2group 05-18-2017, 05:22 PM
Replies: 12
Views: 4,177
Posted By jaykay
Re: A Blessing From Cancer

What great news! Congratulations
Forum: her2group 05-10-2017, 01:48 PM
Replies: 15
Views: 3,891
Posted By jaykay
Re: twelve years !

Excellent! Congratulations
Forum: her2group 04-28-2017, 06:34 PM
Replies: 1
Views: 2,803
Posted By jaykay
Re: Scalp itch....anyone else?

Hi, congrats on completing chemo; you're in the home stretch!

Can I assume your hair is growing back? I remember bad itching but I washed my hair with sulfate free shampoo (same stuff I used...
Forum: her2group 04-26-2017, 02:36 PM
Replies: 13
Views: 4,895
Posted By jaykay
Re: when did you 'break up' with your onco?

From April 2000 - September 2012, I saw my onc every six months. I was definitely NED but I think she wanted to see my every 6 months because I was Her2+ and never had chemo or herceptin (Stage 1A)....
Forum: her2group 04-26-2017, 02:30 PM
Replies: 11
Views: 4,616
Posted By jaykay
Re: Laurie7 has died

I hate cancer
Forum: her2group 03-13-2017, 09:42 AM
Replies: 71
Views: 16,267
Posted By jaykay
Re: Back Pain

Hi Tiffany,

I hope the results of your CT scan are negative for anything bad.

However, I echo some of the others here in that I cannot believe you have to wait that long for the results. I...
Forum: her2group 03-07-2017, 06:59 PM
Replies: 24
Views: 7,607
Posted By jaykay
Forum: her2group 03-07-2017, 06:16 PM
Replies: 24
Views: 7,607
Posted By jaykay
Re: How Her2+ BC patients develop brain metastases

I am shocked, too. And somewhat scared
Forum: her2group 02-19-2017, 06:29 PM
Replies: 9
Views: 3,784
Posted By jaykay
Forum: her2group 01-24-2017, 05:03 PM
Replies: 45
Views: 13,268
Posted By jaykay
Re: Port or No Port?

I know this sounds strange, but I loved my port. I could only use one arm for blood/infusion and didn't want to blow out the veins on the "good" arm with chemo. I had a low profile port that didn't...
Forum: her2group 01-06-2017, 09:38 AM
Replies: 12
Views: 3,619
Posted By jaykay
Re: 6 years

Great news!
Forum: her2group 01-05-2017, 10:28 AM
Replies: 12
Views: 2,962
Posted By jaykay
Re: What Makes HER2 Positive Cancers Unique After Treatment?

I don't consider my cancer ever being "cured". That's why the term "no evidence of disease" (aka NED) is more appropriate.

While my oncologist considers my 2nd breast cancer a new primary...
Forum: Diet and Nutrition 11-19-2016, 07:22 PM
Replies: 25
Views: 4,378
Posted By jaykay
Re: Alcohol ban? Really?

Lol. I'm not an expert but I believe in moderation with occasional chocolate cheating:-)
Forum: her2group 11-19-2016, 08:38 AM
Replies: 13
Views: 4,115
Posted By jaykay
Re: What Can We do to Prevent and Treat Chemo Induced Neuropathy?

I've been taking B6 (100mg) since I finished chemo and have very little neuropathy (right arm/hand which radiation also contributed to - my opinion). I actually switched to a "b complex 100" to get...
Showing results 1 to 25 of 429

 
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